I Wasn't Supposed to Be the Story...
I was supposed to have died last month. That's what the doctors told me six months ago when I was diagnosed with cancer for the second time. Now that was mostly my fault. I kept badgering the doctor for a prognosis. After all, when you get news like that, there's really only one question that everyone wants to ask. "How long?" Of course, no one really wants the answer.
So I've beaten their first prognosis, and now I'm working on the second one. I've learned a lot in these last six months. One of the real surprises is that the doctors really don't know what's going to happen. I am being treated at Johns Hopkins, one of the best hospitals in the world. I have some of the best doctors in the world. But even they don't know the answers to some of the most basic questions. Will chemo work? Would a different drug be more effective? What will happen next? What should I do? And of course, that original question just keeps coming back. How long? They really can't answer that one either. They have studies, and averages, and that's what they tell you. "A person with your disease, on average, will live this long..." But that has nothing to do with your individual case.
So you pretty much have to just blunder through all this. It's not easy. But cancer affects everyone. I don't know a single person who doesn't have a loved one, a family member, colleague, friend of a friend, who has cancer.
But for those of us directly affected, cancer opens up a whole new world. I like to call it a parallel universe. It looks like the regular world, but it's very, very different. It's populated by other patients with whom you share war stories. "What drugs are you on?" "How are your side effects?"
And there are the doctors and nurses who fight like hell to save patients when they know that they will lose virtually all of them.
And there are the loved ones, and no matter how hard you try, there's really no way to comfort them.
This is a new thing for me. I've been a journalist for more than 25 years. In covering more than a dozen wars, I've seen my share of death, but I never thought I'd be talking about my own. I wasn't supposed to be the story. But all that's changed. Now, a number of you have already heard part of my story on Morning Edition. But starting today, on this blog, and in a weekly podcast, we're going to be able to go much further.
I'm going to be talking about my experiences, and I hope that many of you will write in with your own stories, suggestions, complaints, or just send a note when you're feeling overwhelmed by all of this and just need to vent a little. I'm sure you'll all get tired of hearing just about me, so my goal is to turn this into a real dialogue. I hope you'll be back here tomorrow.
6:54 AM ET | 06-26-2006 | permalink


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