My New Way of Life
“The new drug I'm taking is supposed to actually shrink the tumors. I'm trying as hard as I can not to get my hopes up. I don't want to be too disappointed if it's not working. OK, I know I'm kidding myself, I will be hugely disappointed.”
The following is a commentary from Morning Edition, Oct. 3, 2006:
"My doctors are trying to kill me." That's how I began one of my first commentaries about having cancer. That was about nine months ago, and they haven't succeeded yet. But I haven't been cured either.
I was talking about chemotherapy. Every three weeks, I go into the hospital and sit in a nice chair while poisonous chemicals are pumped into my body. The whole process can take five or six hours. Then it's pills twice a day for two more weeks.
Nine months later, chemotherapy has become a way of life. My life.
It's hard for me to remember what I felt like before all this happened. The drugs never really leave your system. Even on my weeks off, I get the nausea. My fingers still tingle, and so do my feet. That's constant. And the effect is cumulative. I think your body does build up a tolerance for the drugs. But you just keep pumping in round after round. Your body never gets a break.
So you change the way you live. When I wake up in the morning, I feel pretty good, as long as I'm lying in bed. But once I get up and move around, the nausea comes on strong. It takes me a couple of hours to really get going. Eating is the last thing I want to think about in the morning, but you have to take the pills with food. That means I have to find something remotely appetizing for breakfast. And then fight through the fatigue to get going. So I don't schedule anything early in the morning. No business meetings, no errands.
The middle of the day is when I get most of my work done. I try to cram as much as possible into those few hours when I feel pretty good. But even a light schedule, a meeting or an interview, some time in the office, that can be exhausting. Sometimes I'll get home from what 10 months ago would have been not a half-day, but a quarter-day for me, and I'm just totally spent.
The evening is sort of a repeat of the morning. The nausea comes back. I wonder sometimes if it isn't at least partly psychological. My body knows what's coming, so my stomach might as well get a head start on feeling bad.
And I'm doing all this to what end? I said at the beginning I haven't been cured. Conventional medical wisdom is that I won't be cured. What all of this is about, is buying time. The new drug I'm taking is supposed to actually shrink the tumors. I'm trying as hard as I can not to get my hopes up. I don't want to be too disappointed if it's not working. OK, I know I'm kidding myself, I will be hugely disappointed.
I'm not looking for pity, far from it. This is just the direction my life has taken. But I do remember enough of how I felt before I had cancer, before my body was filled with poison, to wish every now and then that I could get my old life back. Even if it was just for a few days. That would be nice.
5:03 AM ET | 10- 3-2006 | permalink


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