The Cancer Balance Sheet

The balance sheet keeps changing. Life is a continuing set of trade-offs. Does the good outweigh the bad? It's easy for cancer patients to say we've gotten a bad deal. How is it that we could be going along blindly and then all of a sudden, on one fateful day, have everything change?

We add up the losses. The first thing we lose is our future. It becomes something to be counted in months, maybe years if we're lucky, but certainly not decades. And by losing the future, we lose some of our dreams. We lose the sense that all things are still possible. Life becomes narrower.

We lose sleep. Sometimes because we're just too sick to sleep, there's no way to get comfortable. But usually it's because sometimes night is the time when we think about what has happened to us, what is happening inside our bodies. We think about our deaths. Is there a cancer patient who hasn't already thought through his or her own funeral? Who should the speakers be? What might they say?

We lose some of our strength, certainly physical strength. Sometimes we're just too tired to work out. Sometimes the pain, or nausea, or just that feeling of the chemo-blahs is too much for us to overcome. The treadmills, the weights, all sit in the corner, unused.

It's easy to lose our optimism. How can you keep a positive outlook? How can you believe things will turn out okay, that tomorrow will be better than today? The cancer patient is bombarded with bad news from that first black day of diagnosis. So many months to live. Tubes to be inserted, medicines to take, the old lifestyle lost, replaced by a new one that is, quite frankly, a whole lot scarier.

When you look at the life of a cancer patient, it certainly seems that Death has put his finger on the scales, weighing them down in the "bad" direction.

Can anything possibly balance out what we've lost to this disease? Can anything replace the parts of our lives that have been stolen from us?

So is there anything on the other side of the scales? We make new friends. We reconnect with old friends. We learn again, if we've forgotten it in the crush of our daily lives, just how important a kind word, a touch, a look can be. We learn that even if they say the wrong thing, our friends are trying to reach out to us.

We look at life differently. Each day becomes precious, even the bad days. We all talk about living life to the fullest, stopping to smell the roses. You know the cliches. But when you can hear the clock ticking, enjoying the little things becomes even more important, and even more satisfying.

We learn things that other people don't know. I said to a friend the other day, "I know things that you don't know." He asked me what, and I couldn't really answer him, not in any coherent way. I just know things.

And in the end, we discover, or rediscover, our strength. It takes so much to get through the physical challenges of cancer. But the mental challenges are even tougher. We learn we're stronger than we ever thought. We can get through this. We can get our friends and loved ones through it, too.

So can any of these things, or all of them taken together, outweigh the bad? Or at least balance them? I don't know. I know that for five years, I worked 15 hours a day, sacrificing my life for my job. Was that a good balance? I know I'm a different person now, that I wouldn't make that choice again. For that matter, I'm a different person than I was 10 months ago, when I was first diagnosed.

When my life is put on the scales to be judged, will it balance out? I think so. Cancer is just one part of my life. It's not the whole thing.

 

Comments (Send a comment)

Leroy, I got a question for you. How do you think you would live your life now, if you had never insisted that the doctors tell you how long they think you had to live? Do you regret asking them? Maybe this is an impossible question to answer, I don't know, I am asking because I don't think I would want to know how long I had to live. When I read the statistics on the internet of the prognosis of my cancer it scares me but my doctors have never told me that I would die, but I haven't asked them either. They did tell me that the surgery I'm about to have is life threatening though.

Sent by Ruth White | 4:13 PM ET | 10-10-2006

You have put into words what has happened in the lives of us cancer patients, thank you. I feel a sense of urgency to focus on the most important things in life now, because the quality and quantity of my life has been forever altered. I think about whether my 1-year-old grandson will have the opportunity to remember me, and wonder just what things my 7-year-old granddaughter will remember. I think about my daughters ages 19-33 who lost their dad seven years ago when the youngest was 12 and I know that they still need me now. I think also about how for so much of my 54 years maybe I focused on the wrong things, things that seem silly now. Will the thoughts never stop? That's why we can't sleep; it seems to be a constant vigil. Maybe this whole cancer thing is not about answers, only about questions. And life has to keep being lived, one way or another. We are constantly seeking equilibrium, getting out of balance and again seeking the equilibrium. And yes you're right, we do know things others don't know(things we didn't know before diagnosis and treatment).

Sent by Sherri | 4:23 PM ET | 10-10-2006

You're right. Everyone with cancer thinks about it. Whenever I think about it, I am always always reminded of the lyrics from Pink Floyd's Time:

Ticking away the moments that make up a a dull day

you fritter and and waste the moments in an offhand way

Kicking around on a piece of ground in your hometown,

Waiting for someone or something to show you the way.

Tired of lying in the sunshine staying home to watch the rain,

You are young and life is long and there is time to kill to today

And then one day you find ten years have got behind you

No one told you when to run, you missed the starting gun.

There always to be too much time when youre young and too little as you grow older. Cancer teaches you to priortize in a hurry.

For more semi-insightful musings on my lung and brain cancer, please visit my blog at: http://mylungcancerstory.blogspot.com/

Sent by Tom Clarke | 4:46 PM ET | 10-10-2006

Hi Leroy,

I'm 20 years old and I recently lost my dad to liver cancer six months ago. I'll be sending prayers out for you, hoping that your health will go up and that you might recover.

I admire your positive attitude and your willingness to share your feelings. My father was never open about his cancer, so it's good that your web log can give me some insight as to what he went through.

Thank you and I'm hoping for the best.

Sent by R. Scott Goddard Jr. | 4:49 PM ET | 10-10-2006

I thought of a few other things we lose. Weight though not universally. Our illusion of control over our lives. It's not really that we lose control over our lives none of us really have it. Just ask the Katrina folks. The difference is that cancer patients know it at a visceral level. It's not such a bad thing, letting go of that. We lose the friends that really weren't anyway. We lose the trivia of life.

Sent by Stephanie | 4:55 PM ET | 10-10-2006

Oh, and our vanity. And our sense of privacy about our bodies.

Sent by Stephanie | 4:59 PM ET | 10-10-2006

Cancer is just one part of my life. At this time, thank God, it's a small part. But, you're right, life goes on and you have to appreciate the small things. There is beauty in each day and things and people to be appreciated. I do look at the world differently now and I think others look at me differently too. I have learned a great deal from my ordeal and I hope I've been changed for the better.

Sent by Chris | 5:02 PM ET | 10-10-2006

What are the things that you know? You said that you couldn't describe these things, but can you give us a hint?

Sent by Kelley | 5:08 PM ET | 10-10-2006

Despite having cancer, I think I am blessed beyond measure, for many of the reasons you've noted. Before my diagnosis 11 months ago, I took much of life for granted. I would've said, before cancer, that I was an appreciative person who enjoyed life. But now, when the future is uncertain and I've been given this chance to drastically refocus, I am much more appreciative, and find little in life more important than loving others. God has given me this opportunity to enjoy whatever days I have left on earth with a clearer vision. So, yes, I know things others don't. And I am thankful. Once again, thank you for articulating my thoughts so well, and for the gentle reminder.

Sent by Karen | 5:19 PM ET | 10-10-2006

You know I was thinking about part of this just a couple of days ago. Sometimes I think that people as well as myself, expect to much transcendence as a result of this cancer experience that we share. I feel especially guilty if Im not living life to the fullest. In fact, much of my time I feel I'm wasting. I'm not working now so maybe that has something to do with it. But I gotta say that I feel a lot of pressure from myself and from society in general to be strong, be positive and smell the roses and all of that. Much of the time I just sit and stare out the window. I don't feel stronger, braver, more actualized, more insightful, or any of that. I just feel hurt, damaged, sad, and anxious. I guess that's definitely not brave.

Sent by Cindy H. | 5:20 PM ET | 10-10-2006

When my son was 15 years-old, we were discussing the different ways in which people die. I told him that I'd like to go in my sleep, but, he said that he really wouldn't mind dying from cancer. I was shocked, and asked him why on earth he would say that. He said that it would give him time to think about his life and make amends wherever possible, but most of all to think harder about God.

Sent by Heather | 11:55 AM ET | 10-11-2006

You are so right about not taking anything for granted. Even the bad days are days that Im above ground. I have found out which friends are good for the medical side and which friends are good for the emotional side. I am blessed to have an equal measure of both. So as we put into words those things that we know that non-cancer people don't — I would say that it is slowing your life to a crawl to wring every second out of each day. And enjoying each one (even the bad ones) because this moment is all anyone ever gets. It just takes an earthquake sometimes to really "get it."

Sent by Robin | 12:23 PM ET | 10-11-2006

Dear Leroy,

I have been moved by many of your essays and blogs on the NPR Web site. It has been very enlightening to read your words since I am a gynecologist and occasionally have to share the news that one of my patients has cancer. In fact I have to do this tomorrow morning. I have always believed that "cancer", despite all the anger and fear which seem so hostile and aggressive towards our bodies, is rather an extreme (and bad) conversion of some of the most important cell functions that have given us life. I have always received a small bit of consolation in seeing "cancer cells" as some extension of our own cell functions. When the mechanisms of cell growth and repair go haywire and cause so much havoc it makes me as a physician feel totally lost helpless. I often have so little to offer other than support and information. It helps me to remember that all life is a cycle of birth, growth, ageing and also dying. I see cancer as a part of that process in many respects. Cancer is both part of your body and not part of your body at the same time. When I think of the patient and cancer as more related it helps me to focus on the patient and not on the "disease." It may sound odd, but it helps me to focus more on the people and not the cancer, which is good and I hope makes me a better doctor.

I hope I can do this tomorrow as I sit in front of my patient with her chart in hand.

Thanks for all your thoughts.

Sent by Gus Lawrence | 12:26 PM ET | 10-11-2006

The only reason I'm still here is because the good days still out number the bad days. I don't do much, but I do refuse to feel guilty. If I have some time left, then I'll make the most of it. I read, listen to music, curl up with the cat in front of the woodstove. I'm fortunate to have supportive generous friends who also take up my time, but obligation is no longer in my vocabulary. There are times when things feel unbelievably awful, but there are other times when I can barely fathom how fortunate I am and how good my life is.

Sent by Tina Ray | 1:44 PM ET | 10-11-2006

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