Giving Your Body a Break

 
“My body is saying 'no more.' That message is pretty clear. It's my mind that's the problem. How do you not worry? How do you turn off that uncertainty?”
 
 

The following essay is from the NPR My Cancer weekly podcast:

It's nature's way of telling you. I'm old enough to remember the old Spirit song (I guess I'm dating myself). But the message is pretty clear. It's time for a break. I'm just finishing my 11th chemo cycle, getting ready for the 12th. My doctors said no one does 12 cycles and keeps on going. When I heard that, my first reaction was, "Well, I'm going to be the one to break that rule." I was being foolish.

I was going to cheat a little anyway. I was going to put off my next chemo cycle for four days so I'd be off the drugs for Thanksgiving. I really don't want to be totally sick that day. My latest blood work indicates I may need a couple of extra days anyway before I can start the next cycle. Now I can take those days and not feel guilty.

As all of you who've done chemo know, your body's capacity to take those poisons isn't unlimited. You have to give yourself time to recover. So why would I be reluctant to take a break? Because the last time I did, things didn't go so well.

After the first six cycles, I took two weeks off and then started a lesser treatment program — just one drug. The next scans did not bring good news. In those few weeks, freed from the assault of the complete chemo package, my tumors grew. A new one sprouted on my spine. My greatest fear about taking a break was realized. It was clear evidence of how aggressive and fast-moving this disease can be. So it was back on the drugs, with a couple of new ones thrown into the mix.

And that seems to have worked. My tumors have shrunk. There's some evidence the lesion on my spine is healing, a sign the tumor may be dying. With things going my way, I'm a little reluctant to take a break. Why let the tumors catch their breath? If they're down, I want to kick them. Hard.

There's a psychological component, too. While my body desperately needs a break from the chemical onslaught, I don't want to be worrying the whole time. Will it be one step forward, two steps back? If the tumors do start to grow again, we wouldn't know for a couple of weeks. That's long enough for bad things to happen.

How do you decide? I guess your body decides for you. I feel like I've had the flu for ten months. I really don't remember what it feels like not to be sick. Getting back my old body and my old health is really attractive — even if it's just for a couple of weeks.

In the end, like everything associated with this disease, it's all a risk. You take your best shot and wait to see what happens. My body is saying "no more." That message is pretty clear. It's my mind that's the problem. How do you not worry? How do you turn off that uncertainty?

You don't. So I think I'll just take that break and hope for the best. Besides, no matter what happens during that couple of weeks, I know where I'll be when the break is over. Back on the poison.

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I have such respect for your incredible courage and painstaking honesty.

Thank you for allowing me to be a long distance witness to your commitment to living each day.

Prayers and good energy are coming your way from Arkansas.

Sent by Susan Fleming | 10:37 AM ET | 11-13-2006

Hi,

Just read your story and what stood out at me was the question, "How do you not worry?" I am sure this will not be a unique comment, but I would pose that this question is among the many that man (including myself) has struggled with. I have heard it said that roughly 95 percent of the world's population believes in a God or, if you will, a higher power. Without interjecting my own opinion, but instead to point out that the three major religions of this world have in common the belief that man can be relieved of such a burden by simply turning over their problems. Positive thinking gets you everywhere, isn't that what we are told as children by our mothers and teachers when we are down and acting pessimistically about our worries.

I work in a hospital and literally everyday I am there I come face to face with peoples struggle with their various health problems. A prime story, a couple of months ago a patient came in with multiple problems resulting from an HIV infection. The patient at that point was unaware of his condition, but after his diagnoses he started to reside himself to a certain death, to giving up. Reading your words you portray the stance that you have not and will not give up positive thinking.

I have seen many types of deaths in my time at the hospital and for me death is not so bad, but instead it's the after — I'm sure for most people, that is their primary concern. Everyday that man is here on this earth we make advancements, but in truth there is but only so far we can go. We may one day figure out every nuance to cell biology. But in the end what we may master, if you will, is life and I say we have mastered it now by simply living. By living, thinking, procreating, and every other possible "ing" one could manage we have mastered life.

I write these brief words to say that I hear your story and on every level of my being through your words I am reminded of my short life and how absolutely lucky I am for my health and present day well being.

I wish you luck and grace for your future.

Sent by Don Lemaire Jr. | 11:30 AM ET | 11-13-2006

Why not do both? Take a break from the chemo but get a check up to see how the cancer is reacting to some time without chemo. Stress has a negative effect on health. You would probably be better off knowing the tumors are growing than stressing about if they are... Good luck!

Sent by Kristen Young | 11:56 AM ET | 11-13-2006

Leroy, enjoy the break and your Thanksgiving. Get your physical and emotional strength back up and go to battle again when the time is right.

Sent by Karen | 11:58 AM ET | 11-13-2006

Mr. Sievers,

Keep "kicking" your cancer hard.

My thoughts are with you and I admire your courage. Be well.

Sent by Daniel Hernandez | 12:36 PM ET | 11-13-2006

Leroy,

I am so happy to hear that you have good news that your brain is clear of cancer and that the tumors on your spine are responding. HURRAY! There is no way to not worry, all you can do is keep telling yourself, over and over, this is my time to enjoy, and I am going to do just that. I'm doing that right now waiting for the dreaded call re: my surgery date. It's so hard, isn't it, to do what you know you have to do, when you are feeling good? You know what I mean. I have some good news, my husband just had an angiogram last Thursday and found that his major artery was 100 percent blocked and the doctors put in two stents and fixed him. Thank God we found it in time. Sometimes good things happen to good people. Have a wonderful break from chemo and know that we are all pulling for you.

Sent by Ruth White | 12:39 PM ET | 11-13-2006

Cancer literally feeds on animal products in a persons system. Get rid of the animal products, get rid of the cancer.

Read The China Study by T. Colin Campbell. Tumors don't grow and actually shrink and even disappear when we feed our body plant protein versus animal protein.

Sent by Debra Smith | 1:13 PM ET | 11-13-2006

Leroy — you've hit close to home with me on this one. I'm on my 10th cycle, and have quite a few more scheduled in the treat/scan/review results, repeat as necessary mode of treatment. I dropped Oxaliplatin after the 8th cycle because of the peripheral neuropathy and the remaining tumors took advantage of the two week break in treatment to grow a little and run my tumor marker numbers up. The good news is that the CPT-11 we started up on the next cycle has knocked the markers back down. But I have the same worry about taking another break. I've got an extra week in my present cycle because of Thanksgiving. The clinic isn't open on the holiday (and they sure deserve a break there). I have a lot to be thankful for this year (I am still alive after all), but I don't want to give my tumors any vacation. Maybe some extra cranberries on Thanksgiving will hold them at bay for the extra week.

Good luck and enjoy your short vacation from chemo.

Sent by Bob Maimone | 9:33 AM ET | 11-14-2006

Leroy,

I, like you, am facing the prospect of a month off of treatment for myself in the month of December. I have decided that this is what I want, in order to be able to enjoy the Christmas holidays with my family, and two wonderful granddaughters. Having said that, I am also concerned that I might run the risk of giving my cancer a chance to regroup and do more damage. Even though that seems like a risk, I think I am willing to take it in order to feel semi-normal for that brief period of time. My granddaughters are almost two and three, and I don't want them to see grandpa sick during the festivities. I don't know if this is selfish on my part, or if I am trying to protect them. What ever the reason, I have decided to take December off to try and feel alive for a while.

Sent by Steven Schneider | 9:47 AM ET | 11-14-2006

I know what you mean about wanting to kick the cancer hard while it's working. Mine has just stopped on the last check, with a little shrinkage. I'll bet with the shrinkage you've gotten, you just want to keep on beating it down and to heck with how you feel. Keep up the fight! And hope (that word gets me through these times).

Sent by Mark Weissenborn | 2:43 PM ET | 11-14-2006

Leroy:

I'm the caregiver and usually don't pass all information on to my husband who is Stage IV Colon Cancer, but thank you for being here. I most certainly want him to follow your progress. You have put into words many of the things we think... and worry about everyday. Through your writing, I have a little more hope and feel less alone. I hope my husband finds the same relief.

Sent by Nikki Schwerdfeger | 12:33 PM ET | 11-15-2006

I just read the Herald article "Fighter offers lesson in courage" I too am having chemo. I cried for some reason while reading the article. Not for your problem but rather your courage and your ability to affect others.Not everyone is willing to share and help they just complain. Keep evolving!!
Sandy

Sent by Sandra Swentek | 8:30 PM ET | 10-13-2007



   
   
   
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Leroy Sievers

Leroy Sievers

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Leroy Sievers in the Ted Koppel Documentary

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