It's Hard to Know How to React to Good News

 
“Assuming no new tumors rear their ugly little heads in the next couple of weeks, it's possible that in the near future, I will have no active tumors in my body. That's something I never thought I would say.”
 
 

I took the Christmas tree down last week, and put it out on the street for the garbage men to pick up. It looked a little forlorn out there, no more ornaments or lights, just lying by the street. When I was little, we used to get our tree on Christmas Eve and then keep it up as long as we could. Our record was March 1. Why it didn't combust when someone just looked at it is still a mystery.

I didn't just feel bad because I thought the tree had come down much too early. I looked at it out there and thought that more likely than not, that was my last tree. It's hard not to sound melodramatic sometimes, but the way my cancer had been going, the spread to the spine, the growth of the tumors in my lungs, my doctors and I were all pretty much reaching the same conclusion: It was unlikely that I would survive the year. And I was pretty much at peace with that — as much as you can be.

Then a funny thing happened last week. Hope, which had been absent for far too long, reared its head again. I had just finished radiation on my spine, which my doctors thought would kill those tumors, or at least hold them in place. But there were still the tumors in my lungs, and some of them were growing.

Doctors don't know how cancer spreads. Did these tumors come from my very first tumor five years ago? Or do these tumors in my lungs send their poison off to other parts of my body now? So there is something of a debate in the world of oncology. Do you go after the existing tumors? Or as many oncologists say, do you worry about the cancer you can't see? Do you have to attack it systematically with chemo, as opposed to killing a tumor here or there? It's a little like trying to fight a brushfire. Do you spray retardant around the fire, or go in and stamp out every little hotspot?

We'd been leaning towards the hotspot approach, what the doctors call "spot-welding." I figured it couldn't hurt to kill the existing tumors, if that was possible, and then worry about whatever happened next when the time came. So last week we met with a doctor who does a relatively new procedure called Radio Frequency Ablation. Basically he sticks a needle through the lung into the tumor itself, and burns it out. And he is totally confident that he can kill the three active tumors in my lungs.

That means, assuming no new tumors rear their ugly little heads in the next couple of weeks, it's possible that in the near future, I will have no active tumors in my body. That's something I never thought I would say. To be sure, this is not a cure. I will be fighting cancer the rest of my life. I'll still have to undergo more chemo, and I'm sure that at some point, there will be new tumors. But this is the first time it has seemed possible to push back, to have the upper hand, even if it's just for a short time.

It's a little hard to get my head around this. I don't want to blow this out of proportion, but I am so used to leaving the hospital with bad news, that it's hard to know how to react to good news. Hope is funny that way. For now, I'll just enjoy the idea that those tumors have no idea what's coming their way. I hope it hurts them.

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I decided to check out the npr sight and came across your blog. I will be sending positive thoughts your way that the tumors get the you know what beat out of them!

Sent by Rose | 12:51 PM ET | 01-22-2007

Mr.Sievers:

That is very good news for you, I am so glad! That going to the precipice and then being pulled back must get — I don't know, "wearing," to say the least. A friend of mine has had an extremely hard time with treatment. She deals with things very differently from you and I've had to practice "staying quiet" and "not pushing" when she does. I wish I could give her what I can't — hope if not for a cure, for peace. Some of what you seem to have (though I imagine that it's hard to come by for you as well, at times. Take care.

Be well.

Sent by Sandra Yudilevich | 12:56 PM ET | 01-22-2007

It is really good to hear your latest news. I have followed your blog with interest, hope and some nervousness. I feel better now, too! Thank you for sharing the downs and ups of your medical, and sometimes metaphysical, journey.

Sent by Paula | 1:03 PM ET | 01-22-2007

I wish for you whatever gives you peace. If a little hope is something you need or desire then I'm glad you have it. I admire your approach to life, living and dying. As a healthcare provider I learn from you how to better understand and empathize with others. Thanks for your thoughtful blogging and for giving me hope that I can help make a difference in another's life.

Sent by Greg | 1:10 PM ET | 01-22-2007

Awesome! RFA is the way to go! It has a decent track record against lung tumors. Keep pushing back, every way you can. The end of this story isn't written yet.

Sent by Marilyn | 1:12 PM ET | 01-22-2007

"...He gives strength to the weary and increases the power of the weak. Even youths grow tired and weary, and young men stumble and fall but those who hope in the Lord will renew their strength. They will soar on wings like eagles they will run and not grow weary, they will walk and not be faint."

Isaiah 40

Sent by Emile Bellott | 1:18 PM ET | 01-22-2007

I am so happy for you and your family.

Sent by Irene | 1:21 PM ET | 01-22-2007

Ah, I know something of how you are feeling. I have Stage 4 breast cancer, diagnosed in 2000, which had metastasized to my liver by the time we discovered I had a tumor in my breast. I did chemo and "got rid of it" in 2000 and then again when it came back in 2002. I had a wonderful three-year remission taking an anti-estrogen medication called Faslodex and then last year at this time had to start chemo again. I'm still doing chemo though 2 of 4 spots in my liver are gone, after an entire year of Taxotere and now, Navelbine.

Now I am offered something very, very new that only a small number of women have available to them: women with breast cancer who have liver-only metastasis are being helped by liver surgery! This has not previously been offered because usually when it is in the liver there are other mets as well. And so... my husband and I have spoken to a surgeon about taking the cancer out with a knife and this week I will plan the date of my operation.

I have a chance IF all goes well to be free of obvious tumors as you have a chance with radiofrequency ablation. I am so hopeful because the choice otherwise is to do continuous chemo until "it" keeps growing beyond the effects of the chemo and I die.

So I am putting all my eggs in one basket and HOPING, knowing that it may or may not happen, but it sure feels good to HOPE.

Good luck!

Sent by Nancy O. | 1:39 PM ET | 01-22-2007

Leroy,

Hope is such a wonderful feeling. Today's entry has put a smile on my face and made the day brighter. You are a great inspiration.

Sent by Chris | 1:44 PM ET | 01-22-2007

Leroy,

Three cheers!

Sent by Art | 1:47 PM ET | 01-22-2007

Leroy,

Perhaps secretly you've always had that hope or you wouldn't put yourself through all this. It's just a little more logical now?

When I was growing up my favorite quote was by Camus:

"In the midst of winter I discovered that there was within me an invincible spring." It seems he wrote it for cancer patients...

May the great news help revive your spirit.

Sent by Francis | 10:39 AM ET | 01-23-2007

What excellent good morning news Mr. Sievers! And what interesting technology. I'm sure many of your readers are writing that one down. There are so many new things being tried right now. I read an article late last year (in either Time or Newsweek) about a Tampa Brain Surgeon who developed brain cancer himself and is now a lab rat for several new experimental treatments? (Hopefully you can find it easier than I can.) He is doing exceptionally well and so many of them sounded very intriguing. We just may be getting closer and closer to turning the corner on cancer (as you've defined it recently). Here is to HOPE!!!

Sent by Nichole | 10:40 AM ET | 01-23-2007

I can't tell you how much I hope this works for you. I am so tired of people dying of cancer: friends, family and even strangers. It makes me so angry! So consider me one of your new cheerleaders. And here's to you, Mr. Sievers: May you have many more years of Christmas trees.

Sent by April | 10:42 AM ET | 01-23-2007

Leroy, we are all in the same place, trying to hold on until hope can offer us some promise of a more complete life. It is hard not to be cynical, but you have to see where this option can lead you. Good luck.

Sent by Brit | 10:46 AM ET | 01-23-2007

Yeah! Burn those tumors up! How awesome to find a guy who is totally confident he can do anything related to cancer. Rock on ablation!

Sent by Crow | 10:49 AM ET | 01-23-2007

Yessssss!!!! Go for it Leroy! It is uplifting to see your optimism for this procedure. Know that it is shared. I dare to suspect that most of your blog readers would want to double high-five you if we were all in the same room together. I have a huge grin on my face as I am typing this.

Sent by Sheara | 11:30 AM ET | 01-23-2007

WOW!! I am amazed at this new procedure and have hope for you. I know it's been a long and winding road, but this is great news, Mr. S. I rejoice with you and pray for your continued victories.

Sent by Sherri Eggleston | 11:33 AM ET | 01-23-2007

Dear Leroy, that is fantastic news! I look forward to reading your blog and all the comments every day. We're all pulling for you! It's been far too long since you've given us something to cheer about. Even though I don't have cancer, I can feel everyone's pain and the love that's shown here... my fingers are crossed for you.

Sent by Margo G. | 11:36 AM ET | 01-23-2007

That's great news, Leroy. I hope that the RFA works and I, too, hope it causes the tumors pain (I rarely wish pain on people, but, as you know, cancer is different).

Sent by Adam K. | 11:37 AM ET | 01-23-2007

I don't think we should ever lose HOPE. I think that HOPE is what keeps us going. Even when given GOOD news, we all wonder IF it really is GOOD news... all we have is today. And the HOPE for tomorrow. Bless you Leroy — you have helped so many of us... just by giving us some hope with your word! Thank you!

Sent by Joan Weaver | 11:39 AM ET | 01-23-2007

I e-mailed you last week about my brother and his 6-year fight with cancer. He will be fighting his cancer the rest of his life, too. But there are a lot of folks out there fighting something out there every day. It can be a disease, depression even poverty. Our father who grew up during the Depression with type I diabetes — told us kids he never thought he live past 65. He is still kicking at 86 and is in great health. You just never know when you gonna go, even when you are fighting something fatal like cancer. Something else can take your life away in minutes, seconds even. You just never know, cancer or no cancer. But I admire you because you put up a good fight. That's a hell of a lot more than most people do in this life.

Sent by Emily J. Saxton | 11:41 AM ET | 01-23-2007

That's fabulous news, Leroy! It looks like the prayers of your blog readers, and other supporters, are being heard and answered!

Sent by Nancy | 11:42 AM ET | 01-23-2007

Dear Leroy,

Thank you so much for sharing your story and helping others. It gives the rest of us a very different perspective in life. Thank you so much!

Sent by Ulrike | 11:45 AM ET | 01-23-2007

Mr. Sievers,

I have been reading your posts off and on, and am always glad when I see a new one on the Web site. I love how honest you are, and your sharing your experience is a great gift to me. Wherever your journey leads you, I will hold you in warm, comforting light.

Thank you.

Sent by Sara Knowles | 11:46 AM ET | 01-23-2007

My younger sister is fighting cancer, too. Hers has also spread to the spine. I can't tell you how happy I was to read that you might be able to lick your cancer. A lot of folks are rooting for you.

Sent by Pat Sterling | 11:54 AM ET | 01-23-2007

You keep right on fighting Leroy! Fight with every blink and breath in your body. Give those little bastards hell!

Sent by Tim Louis | 11:57 AM ET | 01-23-2007

When my dad was diagnosed this past July with lung cancer which had spread to his right hip, shoulder, spine and skull... there was no mention of ablation. He past away on Thanksgiving morning after a four-month fight, which included chemo with Avastin and radiation. I always wonder if his doctors did all that they could for him or was it just too fast spreading for them to ever get a handle on. My dad never had good news or a reprieve from it all. I hope the ablation works for you. My dad didn't talk much about his cancer so I love reading your thoughts. I wonder if he felt and thought things like you do. Having worked in retail his whole life, my dad loved Christmas. I wish you many more Christmas holidays!

Sent by Kelly | 11:58 AM ET | 01-23-2007

Great news! I'm a big believer in dealing with what is going to get us. My oncologist likes to talk about the "lurking" cells. I'll get to them when they come out of hiding. I've had both my colon and liver resectioned. Today, I saw a lung surgeon, but it turned out that my last Pet scan, which I had not received the results of, didn't show any lung nodules "glowing." That means they are less than 1 cm. When they grow well get them but not until then. Best of luck. I've been on Cpt 11, after a reaction to oxaliplatin so I know the side effects are harder (no hair, more nausea) but I managed it for six months and it looks like with good results. If you need to do that after the RFA you'll get through it.

Sent by Dona | 12:34 PM ET | 01-23-2007

After six months of chemo, I had RFA on my liver (a 4 cm spot crossing both lobes) a little over two years ago — a metastatic recurrence of inflammatory breast cancer (treated, full-bore, two years prior). Long story short: I am still here and I am (touch wood) still fine! RFA is my friend!! My tumor was operable in the conventional sense, but the RFA — a much less invasive procedure — greatly reduced the strain on my immune system. Minimizing the impact left me in much better shape to recover from the surgery, and from the recent chemo. The four scars total about 4 cm in length, and I think that's the best 4 cm trade I could have made! I am really thrilled that you've received this news... I hope the positive possibilities sink in for you soon! And no, I don't kid myself that I am "cured", but boy, this is a pretty acceptable holding pattern.

Rock on, Leroy!

Sent by JJ | 12:36 PM ET | 01-23-2007

I read about your story for the first time for you see, this is my first time on this site. I am glad to hear, HOPE IS KNOCKING AT YOUR DOOR.I will continue to follow your story. Myself and my family will pray for you and your family today and everyday and send more positive thoughts and energy your way. God Bless You.

Sent by Sally | 12:49 PM ET | 01-23-2007

My thoughts and prayers are with you and your family. I am a registered nurse and have been exposed to the struggles and trials cancer presents to the patient and family. I admire your thoughtfulness, and insight. Thank you. I look up your story each day, and I receive so much from your words detailing your journey. There is a lot of living that is done in the presence of cancer and facing ones mortality. Thank you.

Sent by Drew Ellsworth, RN | 1:00 PM ET | 01-23-2007

Oh, I dearly hope this all goes well and you can get that upper hand. I am headed to Hawaii this week, and if you don't mind, I will have an extra Mai-Tai thinking of you and hoping that you don't make that trip for a long time. Best of luck, and thank you for attending so thoughtfully to this project, which I think has provided enormous insight to an awful lot of people.

Sent by Linda | 1:03 PM ET | 01-23-2007

I'm glad to hear that you're still in the fight. I was diagnosed with oral cancer in 2005. My latest scans were clear. I'm now on the annual schedule. I hope and pray that you're headed in that direction as well.

Sent by Howard Dukes | 1:04 PM ET | 01-23-2007

HOPE — such a little word but oh, what a feeling! Great news!

Sent by Julie | 1:05 PM ET | 01-23-2007

I was diagnosed with lung cancer February 2003. After rigorous radiation and chemo, I have been in remission. I wish you the best as well as all who contact you that are facing cancer. My story is at: www.rea-alp.com/~dragnfly

Sent by John Weber | 1:07 PM ET | 01-23-2007

Yahoo! This decision is a no-brainer, Leroy, unlike most of the choices we have to make with this metastatic disease. After having tumors recur in my liver AFTER a liver resection last May, hope has been hard to muster. Eight rounds of Folfiri + Avastin + Erbitux have shrunk the tumors significantly. Now comes the challenge of deciding whether or not to continue chemo or try a "maintenance" cocktail of Avastin and Erbitux. Your post today served as a timely reminder to hold on to hope and to keep fighting the fight, because you never know when the good news is going to come. Good luck with the RFA. Sounds like you have a confident and skilled Interventional Radiologist.

Sent by Janet Turcotte | 1:09 PM ET | 01-23-2007

A friend just told me about your blog. I'm a breast cancer survivor, and (allegedly) free and clear for now... but taking Rx for another 4 years.) A friend of mine with (allegedly) terminal stage IV melanoma is doing the same "search and destroy" routine you are. She's writing about her faith journey (and hope and less-than-hope) at http://chronichope.blogspot.com/

And then I read in New Scientist that there's promise with a non-patentable process involving mitochondria that makes cancer cells "mortal" so the cancer dies.

Sent by Knitting Painter Woman | 1:14 PM ET | 01-23-2007

This makes my year for 2007 already! All the best to you. You inspire every person to understand hope and why it is the reason we do hope.

Sent by Brin Luther | 1:16 PM ET | 01-23-2007

That is great news! I am excited for you... that there is a glimmer of hope. I hope that glimmer combusts with success and you get to put many more Christmas trees on the curb. Best wishes to you and your loved ones. Aloha.

Sent by Fran | 1:18 PM ET | 01-23-2007

Isn't new technology great? Imagine the applications that it can have throughout medicine.

Who knows, someday this may be the preferred method to eliminate cancer.

We will all be looking forward to hearing about the results of the procedure.

Sent by Marie | 1:20 PM ET | 01-23-2007

Dear Leroy,

It's a relief to hear good news from you. I'm glad another option has opened more possibilities. Very best wishes!

Sent by Katie | 1:21 PM ET | 01-23-2007

Leroy — I can identify completely with your feelings of not knowing if you will have another Christmas tree to enjoy next year. I, too, have those thoughts but they are more often than not, having to do with my grandchildren. Will I see them graduate grade school, high school? I love them so much and want to see them grow up and the fact that I may not makes me angry at my disease. My cancer is not considered terminal yet but after going through three surgeries and two rounds of chemotherapy in less than three years, I wonder.

So many time when I am reading your blog I think to myself "he is putting into words exactly what I am feeling and haven't been able to verbalize." Thank you for that and the knowledge that we are not alone in our struggle.

I am very happy for your good news and renewed hope. Keep the faith Leroy. We are all plugging for you.

Sent by Geneva | 1:22 PM ET | 01-23-2007

Leroy,

I've just started to read your blog. I've even subscribed to it so I can get e-mail updates.

Could you comment on spirituality? Do you pray or meditate about your cancer, your emotions in connection to your cancer?

Thank you.

Stephen

Sent by Stephen | 1:25 PM ET | 01-23-2007

Know that you have brought a lot of hope to people today. Hurrah!

Sent by Alice Martin | 3:54 PM ET | 01-23-2007

Thank God for hope! And for new discoveries whether diagnostic tools, therapies or just understanding.

Our doctor has told us that my wife will be in treatment for the rest of her life, but we are always hoping for new discoveries. We are three and a half years into the journey and so far so good. We wish you and all other fellow travelers strength and hope for their journeys.

Sent by Chuck | 3:58 PM ET | 01-23-2007

Dear Leroy,

It's your strength and hope that inspires me and you do not know how you encourage so many others who come to your blog daily as a ritual.

I have traveled this difficulty journey reading your daily posts and as I deal with stage 4 breast cancer, it's hope alone that pushes me on.

Hugs and prayers for you my friend.

Sent by Aisha | 4:00 PM ET | 01-23-2007

Dearest Leroy,

Hope rocks!

Now: About that trip to Hawaii???

Sent by Sarah | 4:15 PM ET | 01-23-2007

Such is the emotional roller coaster of cancer treatment! We must (and do) prepare ourselves for the worst, then, here comes a little sliver of hope! Not to cancel out the acceptance, but to add to our collection of tools. Hang in! I'm praying for you!

Sent by Lee R. Berkshire | 4:16 PM ET | 01-23-2007

Leroy — As a breast cancer survivor, I just take one day at a time and plan as far out as I'm comfortable. Take the treatment and the good news and run with it. Your journey has now taken an uphill. God bless.

Sent by Robin | 4:17 PM ET | 01-23-2007

What happy news!!! Glad to hear it.

Sent by Lilly T. | 4:24 PM ET | 01-23-2007

Wow! That is encouraging news. I'll be hoping right along with you.

You are doing a wonderful thing in sharing your thoughts and feelings so eloquently. Thank you for that.

Best wishes.

Sent by Judith Newkirk | 8:11 PM ET | 01-23-2007

This is beautiful and I want to read it everyday. Cancer has hit my family hard and I want to share some of the insight found on this blog with them.

Sent by Deb | 8:14 PM ET | 01-23-2007

Way to go, Leroy.

Spot wielding — I like it. It makes sense that if your lung tumors can be burnt, real crispy by radio waves it's what they deserve.

Back when I took the various therapies for my testicular cancer a then new view of cancer spread came out of the world of HIV study. The thought was that like the HIV virus, very early on the testicular cancer cell would pretend to be killed and carted away. These killed cancer cells could be dumped in trash sites all the way up around the lymph nodes in the neck. They lie in wait, receiving ever increasing doses of valium from the mother tumor. Once the testical is removed, the levels of tumor valium ("mellow yellow" - that's right 60s tune) drop until the sleeper cells get mean and you got full blown lymph, maybe lung and brain involvement. Good news is that the cancer still thinks they are testical cells and therefore they respond well to Chemo cis-platin. Lance Armstrong is a clear example of this.

There is a difference between cancer in the lung that is not of the lung (good) and real lung cancer (really bad).

Sent by Joseph Lyons | 12:04 PM ET | 01-24-2007

I'm a survivor of childhood cancer. The cancer itself was defeated, but the cure seems to be a hard price to pay. Every time I go to the doctor for what seems to be a simple ailment — there's a catch. The radiation treatment has damaged so much of my body, hormones, brain, tissue. Sometimes I wonder since I had cancer so young if I will have to face it again later on. How will I cope with treatment again, knowing what could happen? Would it even be worth fighting?

Sent by Jessica | 12:13 PM ET | 01-24-2007

Dear Leroy. I've just read your newest column and I feel inspired that hope is present. I read or listen to you regularly. I am a cancer survivor myself. My journey was not as complex as yours for which I am blessed. However, I am touched every day by a survivor and their survival. I wish I could sit with you through the next procedure, but because I am here and you are there I will keep you in my thoughts, prayers and heart.

Sent by Mary Stasko | 12:15 PM ET | 01-24-2007

I'm writing about HOPE.

When I was really ill from the chemo and my liver was like Swiss cheese, one of the parents from my daughter's school sent me a beautiful card. The outside of the card had one word, "HOPE." It was all about hope. It was so beautiful I put it on the mantelpiece in the room where I used to spend all day lying on the couch with my cat who knew I was sick. Anyway, I had a miracle and now my liver is free of cancer. I pray that it stays that way. I left the card there, I look at it every day. This Christmas one of my friends gave me a ceramic tablet with the word, "Faith" I have it on the mantelpiece next to hope. Please hang on to your hope. Sometimes it's all we have.

Sent by Lynne FitzGerald | 2:05 PM ET | 01-24-2007

You're a word guy — may this distract you for a moment or so. Thanks for an irreplaceable service to your fellows.

in rhythm is languagecar wheels train wheelsseasons or centuriesspinning tales that trackthe sun. follow the chariotspath saving mankindwithout explanation.the cadence carryingharvest after harvesthealing those crucifiedby space and time, a thousand facesfor a single journey.

spoken sunlight,gravitys accenttraceablein the photonsrippled messengersstealing fire, stealingperspective, waterrunning from a tap. a billion eyeballssucking up signalunable to avoidthe collapsing fish.

these evaporating islandstangled in a verticalrenaissance, presupposethe heliocentric journeyas fractal surprise.a morphing horizonunwilling to be still, requires the originalto bend new shadows.that we may seeour linked fingers

Sent by Jim | 3:41 PM ET | 01-24-2007

Twenty-seven years ago I was diagnosed with mouth and tongue cancer. I was told I would never eat again, talk again and would die within two years. I am a trial lawyer. I went on to try many cases & retire four years later at age 47.

I was told that drinking and smoking caused my cancer and that I should stop both. I did.

Nine months later I awoke one morning and said to myself "You only have a year and three months to live and your quality of life sucks." I went out and bought a half-gallon of scotch and a carton of cigarettes and I've been as happy as a pig in you know what ever since.

I feel for you and hope that you have the same result as I did. It takes humor, strength and love.

Sent by John Wherry | 12:04 PM ET | 01-29-2007



   
   
   
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Leroy Sievers

Leroy Sievers

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Leroy Sievers in the Ted Koppel Documentary

A Ted Koppel documentary focuses on his friend Leroy Sievers' "My Cancer" blog and the response it evokes.

 
 
 

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