It's Nice to Be Home

 
“My doctor had told me that there was such a thing as a delayed lung collapse; he had read about it in books. Now he can say that he had one of those cases.”
 
 

A little more than a week ago, I was writing about my upcoming Radio Frequency Ablation procedure. I said that the worst that could happen would be a collapsed lung, and then said something like, "Not a big deal; I've been through that before." Well, I was wrong. Hugely wrong. Painfully and agonizingly wrong.

The procedure on Tuesday went fine. The X-ray afterward, where they check to make sure you don't have a collapsed lung, was clear, so I came home. But Wednesday evening, I started to have severe pain in my chest and abdomen. It was so intense that I couldn't really take a full breath. I talked to my doctors. We thought it might be a reaction to the medication, a collapsed lung or maybe even a broken rib. So I gritted my teeth through a long, sleepless, painful night (I know, I should have gone into the hospital right away) and went up to Johns Hopkins on Thursday morning.

By then, they were pretty sure it was a collapsed lung. And sure enough, it was. My doctor had told me that there was such a thing as a delayed lung collapse; he had read about it in books. Now he can say that he had one of those cases. There was only about a 5 percent collapse. But the biggest problem was the pain. I needed to be able to breathe normally. And the RFA makes you cough for a few days afterward. Every cough was like being stabbed.

Pain medication started to help, and then my doctors inserted a chest tube to suck out the excess air causing the collapse. The lung reinflated immediately, but I continued to have problems. Fluid built up around the lung, possibly caused by the irritation of the tube itself, and by the RFA.

Rooms were scarce at the hospital, so by accident I ended up on the VIP floor. Very nice — wood paneling, curtains, free coffee and cookies. It was like staying in a nice hotel, except that the hotel staff woke you up every few hours to take your vital signs. At one point, I was hooked up to what is called "wall suction." A hose was run from my tube to a pump in the wall. That freaked me out a little; I have visions of something going wrong and the machine sucking out a kidney or something.

I had one of those pain medication pumps. You can push the button whenever you feel the need, but it will only give you a dose every ten minutes. I tried not to push it too often. The machine keeps a record and I didn't want to look like I was drug-crazed or anything.

Finally, Saturday afternoon, things started to look good enough that I could go home. I still have the tube in my chest, attached to a cylinder taped to my chest. Taking a shower is something of a challenge. But the pain is better now.

It was an ordeal, but here's the good news: I was being scanned and X-rayed every couple of hours. And in looking at all that, my doctor could see enough to be pretty certain that he has killed those two tumors. That makes going through all of this totally worthwhile. I'll have the third procedure in a couple of weeks.

It was sort of ironic that this happened, and that I missed posting a new blog for the first time ever the day after writing about faking an illness so you could stay home from school. Several of you did point that out in your replies, which made me laugh.

But I want to thank all of you who wrote in with words of encouragement and support. That means so much to me. It's nice to be home.

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Two dead tumors. Awesome!

Sent by Irene | 11:35 AM ET | 02-26-2007

Leroy... you continue to amaze and amuse me. Thank you and so glad you feel better and they got two of those vile tumors. Will take a lot more than that to get you! You go guy!!

All the best.

Sent by Terry K. | 11:37 AM ET | 02-26-2007

Whew! You certainly take us along on a rollercoaster ride! Now, be careful what you wish for!

Sent by Marylee | 11:38 AM ET | 02-26-2007

It's so nice to have you back, Leroy.

Sent by Rhonda | 11:40 AM ET | 02-26-2007

Welcome Back, Leroy. Glad to know things worked out!

Sent by Marilyn | 11:41 AM ET | 02-26-2007

Yeah, yeah, yeah... now spill the truth... we all know you got VIP treatment and five star room service on account of you being the KING OF BLOG... and if you hadn't gotten the five star pain pump you may have just written about it in your blog and then all of your bloggers would have shown up at the hospital to protest... because WE CARE — CARE ABOUT YOU LEROY!!! So happy that you are not only home again but that the 2 tumors are eliminated!!!!! That is AWESOME news! Have a great day!

Sent by Marianne Dalton | 11:45 AM ET | 02-26-2007

I was hoping that all that testing would allow you to have a sneak preview of the results of the ablations and all I can say is "HURRAY!" What fantastic news!!

Does the collapsed lung mean that they will watch you more carefully or for a longer period when you have your final lung treatment, or will you have to be on the alert and make a mad dash to the hospital at the first sign of chest pain? When does the tube come out?

Congratulations on the good news!

Sent by Maris | 11:52 AM ET | 02-26-2007

I feel for you. Sounds like the pain and sucking machines was no fun and I hope the pain is subsiding. We're all relieved that you're home and mending good to read your post this a.m. Hang in there. Love ya.

Sent by Sherri Eggleston | 1:14 PM ET | 02-26-2007

It is wonderful to have you back! We missed you! Take care!

Sent by L. J. | 1:16 PM ET | 02-26-2007

He's Baaaaaaaaaack!

Nice to hear you are doing good and the tumors may have been terminated!

Chalk one up for the good guys!

Sent by Michael | 1:17 PM ET | 02-26-2007

You have made my day. After reading that the doctor thought he had killed those tumors, I got a huge smile on my face. I so sorry you're in such pain, but so very happy for you.

Sent by Heather | 1:19 PM ET | 02-26-2007

Leroy, I am so excited for you! While the ordeal was exactly that, you are ahead 2 to 1 at this writing. Remember that TV show where the running line was something like "I love it when a plan comes together!" You probably watched reruns when you stayed home sick from school. All my best to you.

Sent by Pat Z. | 1:26 PM ET | 02-26-2007

Glad you're back! Sorry for all the pain, but we understand your use of the pain pump. Husband Burge started out trying not to push the button "too often," but finally decided it didn't matter what "they think"... especially when he was having weird dreams and tried to fix the button by "putting that eye back in the socket"... hitting it dozens of times in a few minutes. He must have looked like a real addict. (smile)

Is it a male thing about not going to the hospital earlier in the night, or is the traffic better at 2 am or something? It seems you guys always want to "wait until morning" and in the end, morning turns out to be about the time the wife (caregiver) has finally gone to sleep, warn out with worry. Actually, Sunday mornings are the best for visits to the ER, followed by Friday after 7 pm when everyone needed has left the building.

Hope the rest of the weeks goes well.

Sent by Nikki | 1:56 PM ET | 02-26-2007

Leroy,

It's great to hear you got through your ordeal fine, and got to upgrade your hospital stay by default, to the VIP Suite. That must have been a nice treat.

So, behind this cloud, there was a silver lining. You got a preview that the procedures killed the tumors. That's great news.

Glad to hear to the intense pain is behind you, and it's on to the next win.

Sent by Laura | 1:58 PM ET | 02-26-2007

Dear Leroy,

After reading your blog since the beginning, I am compelled finally to add my well wishes and prayers. I am on chemo for lung cancer — diagnosed last September — and recognize the challenges you are facing. My 38-year-old niece and namesake died of cancer just a few weeks ago. Thanks for initiating this cyber-connection for all of us.

Sent by Merry Marcotte | 1:59 PM ET | 02-26-2007

I am so glad that you are out of the hospital and feeling better. You've been in my thoughts and prayers. Two down and one to go, you're almost there.

Sent by Chris | 2:01 PM ET | 02-26-2007

I'm so glad that you're home, and that all is well with you. I was among the many of your blog friends who was worried for you, and hoping that you'd be OK soon. This could be another chapter for your book! I'm glad that your scans were good. I'm assuming that since you didn't mention them finding any new tumor sites that all is well there too. Consider yourself hugged my friend.

Sent by Nancy K. Clark | 2:02 PM ET | 02-26-2007

Leroy, Glad that you are feeling much better, and got the VIP treatment you deserve. You were greatly missed.

You point out one of the areas where many of us have learned to ease up on ourselves — addressing pain. Our bodies are sending us a message. I tolerated abdominal discomfort for several weeks before I got to my gyn appointment. That pain turned out to be the effects of rapidly growing and spreading ovarian tumors (stage 4). Seeing how quietly this "whisper cancer" invaded my life, I've decided that no discomforts are too small to mention to my oncologist.

Sent by Sheara | 2:03 PM ET | 02-26-2007

Geez, Leroy. This isn't a John Wayne movie. You can't screw around with this stuff. Next time you have that kind of pain promises us all that you'll go in to the hospital.

Sent by Tom Clarke | 2:05 PM ET | 02-26-2007

Yippee! Leroy's back!

Feels like the sun just burst through the clouds. Fight on, my friend.

Sent by Doris | 2:06 PM ET | 02-26-2007

You had a pain pump and didn't play that thing like a Nintendo??!?!?

Feel better.

Sent by Brit | 2:07 PM ET | 02-26-2007

So glad to hear that you're home and feeling better!

Sent by M. Goldberg | 2:08 PM ET | 02-26-2007

Lordy! The things we will put up with! The abuse our bodies take in the name of curing or treating our cancer. How dearly we love life, to be willing to go through this. And it is all worth it. I'm glad it was no more complicated than it was. And about time you got 5 star treatment. You deserve it, after all you've been through. Keep healing.

Sent by Stephanie | 2:24 PM ET | 02-26-2007

Leroy,

Won another round! Good for you. I guess everyone's life is all about winning the next round, but you are a particularly valiant warrior in a particularly tough fight. Glad you're home.

Sent by Diana Kitch | 2:32 PM ET | 02-26-2007

Leroy, you probably can't imagine how many of us there are who come to this site daily to see how you are. We are your invisible cheerleaders who, though we have never met, are so touched by your daily words that we feel like your friends. I am sending you healing thoughts and love. Keep on my friend, what a tough cookie you are!

Sent by Therese Dawe | 6:20 PM ET | 02-26-2007

Leroy,

I feel that if Atlas gets tired you could hold the world on your back!

You're the man!

Sent by Art Johnston | 6:21 PM ET | 02-26-2007

I'm glad you're back, Leroy. I was worried about you. Stay strong Brother.

Sent by Jon | 6:23 PM ET | 02-26-2007

Leroy, sounds like you could use a few days at Rehoboth. We'll be back in May.

Sorry to read about your ordeal!

Sent by Alan M. | 9:24 AM ET | 02-27-2007

I'm so thrilled for you. You are proving the adage true, "you eat an elephant one bite at a time"... dead tumors rock!

Sent by Kim | 9:25 AM ET | 02-27-2007

Leroy — you are just plain TOUGH!!!! That's all I have to say — and GREAT news on the two blasted tumors!!! At least if you had to be in all that pain, you GOT the suckers!!!!

Hang in there — do something nice for yourself.

Love —

Sent by Alice Williams, mother of Lexie, age 9 | 9:26 AM ET | 02-27-2007

Leroy,

Sorry you went through all that ordeal. However, I'm glad you're better now, and that you received good news about the second tumor!! Here's to your health!

Sent by Greg Sheryl | 9:29 AM ET | 02-27-2007

Leroy,

Welcome home. I work in a kids' ICU and there is nothing like watching them leave with balloons and a smile on their face. I'm sure you had both.

Sent by Lisa | 9:39 AM ET | 02-27-2007

Dear Leroy — I am so glad that you're OK. I waited with bated breath (yes, pun intended) to hear how you were doing, and was so grateful that your editor was kind enough to post a note letting us know what you were up to! I "feel your pain" — I had a delayed collapsed lung after the insertion of my subclavian line (Medi-Port) - - they had already cleared me for discharge (the post-procedure x-ray showed no problem) when I started having pains in my back and shoulder and had trouble breathing, and it was all I could do to "encourage" them to take another x-ray, which showed the beginnings of the pneumothorax (also supposedly a "very rare" complication). I, too, ended up in the hospital, on suction, for a week — with 2 different chest tubes (the first one "didn't work", for some reason), and endured the worst pain I can ever recall. My oncologist came by for a visit during that time, and told me that chemo would be a breeze after that — and he was right! So yes, there is always a silver lining, I suppose! But I am so sorry you had to go through all of that — and so glad you're back with us. I am so very grateful for the community you've created here. Be well.

Sent by Suzanne M. | 9:42 AM ET | 02-27-2007

Leroy,

You keep bringing me back to the eternal question in my mind. I see all you go through for the opportunity to live yet another day and I remember well that feeling of "Alrighty then, let's try it" as you go through treatment. I also remember in the back of my mind thinking "Fasten the seat belt, here we go again". Yet I have known so many that just "decide" they don't want any treatment at all or any more treatment at a certain point. I know it is a deeper issue than I will ever understand but I would love to hear any insight you or anyone has as to why some choose completely different ends of the spectrum.

Sent by Ed Brown | 9:47 AM ET | 02-27-2007

Dorothy was so right, "There is no place like home!" Getting home to favorite space with its art and loving puppy was always what "put me right" after a hospitalization. Whatever your favorites are, I hope you will overindulge in them now, as a counterbalance of joy to offset your latest medical adventures. Cheering you onward from Virginia!

Sent by Sarah | 10:19 AM ET | 02-27-2007

I was glad to be back at my e-mail and see you were back in the saddle with your humor intact... not wanting to look drug-crazed, indeed! Please listen to your pain next time — it is talking to you.

Sent by Teresa | 10:20 AM ET | 02-27-2007

If you ever get hooked up to the "Patient Controlled Analgesia" deal again, don't skimp. You'll use less pain meds by staying ahead of the pain instead of waiting too long and having to catch up. I know. I've been there.

Sent by Alan Quint | 10:22 AM ET | 02-27-2007

Mr. Leroy Sievers,

I tip my hat off to you. I do no know how you keep writing your blog every day and keep up with the treatment regiment that you are on. I only have a brain tumor and there are day that I am exhausted from the treatment cycle. Keep up your spirits and keep up the good fight.

Sent by Ivan Gil | 11:13 AM ET | 02-27-2007

Way to go Leroy!!

Your sharing of the long and difficult journey of your cancer therapies has been of immeasurable help to so many listeners and readers.

You have shared some of your deepest, darkest thoughts and fears with us. I have one question, which keeps surfacing when I read of your difficult therapies, the after-effects of the medications and the continuing mental and physical stress you endure.

Not wishing to be intrusive on your personal life — which you share so eloquently—-I often wonder if you have help at home to do the driving, shopping, prepare meals and manage the home. The therapies and surgeries would knock anyone to their knees — I just wonder how you manage the day-to-day tasks of living.

Sent by Nancy | 5:35 PM ET | 02-28-2007

It seems like it's always something, doesn't it, when you have cancer. But we learn to see the upside whenever we can and you have a definite upside — glad to hear those tumors are gone.

Sent by Marcia Greer | 5:46 PM ET | 02-28-2007

Hi Leroy. I am an RN and also a two-time Breast cancer person (recurrence a yr ago after 14 yrs from first diagnosis) and when you indicated last week that a collapsed lung was do-able, I thought "HOLY SH**, he must be tough." Anyway, I'm glad things are stabilized. I missed your regular posting and thought of you all weekend. We all love you — I hope you realize this. Glad to have you back.

Sent by Kathy | 5:48 PM ET | 02-28-2007

There is a collective sigh of relief to have you back blogging!!!

God bless you, Leroy!

Your spirit, candor and courage is absolutely remarkable. With those qualities so freely shared, you help us all remember our own gifts as well.

Keep up the good fight!!

Sent by Kathleen Armany | 5:49 PM ET | 02-28-2007

Dear Leroy,

Hooray!! And prayers.

Sent by Connie Brown | 6:24 PM ET | 02-28-2007

Leroy:

Congratulations on your procedure despite the pain it causes.

One of the commentaries by Ed Brown asked why some cancer patients choose to either never take or eventually stop treatments such as chemotherapy. In my case, after over a year of three different chemo regimens for ampullary cancer my oncologist and I agreed it was not reducing my tumor marker but did leave me feeling fatigued and nauseous. It was not hard to decide to stop all chemo treatments since they were ineffective despite neither surgery nor radiation being available. Now, as Leroy might say, it is a matter of how long can you contain the Beast.

Sent by Christopher Barry | 4:58 PM ET | 03-01-2007



   
   
   
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Leroy Sievers

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