The Price We Pay to Stay in the Game

 
“Pain teaches its own lessons. If I've lost track of time and forgotten to take my next pain pill, when I cough I can feel the difference in the pain if the last pill has worn off. I know something's different.”
 
 

It's sort of amazing how fast we all adapt to new lifestyles, how quickly we learn new habits. When I used to go to bad places as a journalist, I'd always count the number of stairs in the hotel stairwell, so I could go down fast in the dark if we lost power. I'd move my bed away from the window. "If there are soldiers on the street, where are their trigger fingers?" I'd ask myself. "Inside the trigger guard, or outside? Ready to shoot, or a little more relaxed?"

Those same habits have come with me into cancer world. On chemo, you learn the warning signs when a fit of nausea is about to come on. Spearmint gum would end those for me, so I had it stashed everywhere: in my car, in my jackets, in my office. That way it was always handy. When I was feeling the worst of the side effects, I'd make sure I knew the best routes to walk wherever I was going: level, no hills. My wind power just wasn't up to it. And I learned to recognize those times when I just couldn't fight it, when it was time to sleep.

I've learned a whole new range of habits in this last week's bout with the collapsed lung. First off, you cannot suppress a cough forever. At some point, even though you know it's going to be excruciating, you're going to have to cough. So go ahead and get it over with. I was on oxygen most of the time I was in the hospital. If I went to blow my nose, I had to remember to take out the oxygen hose. It's funny, even after being at home a couple of days, I find myself checking that before I reach for a tissue.

Pain teaches its own lessons. If I've lost track of time and forgotten to take my next pain pill, when I cough I can feel the difference in the pain if the last pill has worn off. I know something's different. I've learned that even when you find a comfortable position, it will only be comfortable for so long, and then it will become painful, too. The trick is to keep moving. I learned that I was an idiot, as many of you pointed out, and rightly so, for not going into the hospital immediately. My pain pump allowed a dose every 10 minutes. I pretty much learned to time that out in my head, and also to keep an eye on the clock, so I could get my dose every 10 minutes on the dot and not lose any time.

But as with all the new things we've had to learn, the ways we've had to adjust our lives, more than anything I relearned the most important lesson of all: The pain will pass. And almost all the time, it's worth it. It's the price we pay to stay in the game.

 

Comments (Send a comment)

What a price it is! It;s just another way we cancer patients and our families have learned just how precious life really is despite the changes we have had to make. I will take these "changes" with me until the day I die.

Sent by Marianne Dalton | 9:23 AM ET | 02-27-2007

Leroy,

I am so glad to have you back! Use the pump, take the pain meds! Usually they are too stingy with them anyway. Wonderful news about the dearly departed tumors!!!

Sent by Elizabeth | 9:57 AM ET | 02-27-2007

Leroy, I am back among the living. I want to sincerely thank you and everyone on this blog for your support, concern and most of all your prayers. I relied strongly on all of your support, I truly did. I am a miracle, and I'm not joking either. The doctors managed to get the nasty tumor off my aerota, AMAZING! That was the most traumatic part of the surgery. I am now all cut off, full of pain (sort of reminds me of Uma Thurman in Kill Bill) but I am alive and cancer free for the moment, thanks to you all and all my family and friends prayers. WHAT A WONDERFUL FEELING in spite of all the pain. Let me tell you I went through hell, this surgery was awfully tough, nothing like I've had in the past, but I survived. I'm home, popping pain and medicinal meds now. God Bless you and your lung Leroy, I too have had a collapsed lung and I know how awfully painful it is. Thank you all for coming with me to surgery. Bless you all.

Sent by Ruth White | 11:12 AM ET | 02-27-2007

Stay strong. You are an inspiration.

Sent by Mary Lynne Bailey | 3:18 PM ET | 02-27-2007

Hey, Ruth! Good news! So glad to hear from/about you! Hang in and please keep us posted.

Leroy,

A person surely learns to be vigilant, yes? Different life, different rules, different priorities, but life nonetheless. Glad you are doing better. I love the way you are able to put your feelings and thoughts into words. What a gift.

Sent by Diana Kitch | 3:19 PM ET | 02-27-2007

Now we have two of you to welcome back!!! Nice to hear from you both, Ruth and Leroy.

Sent by Don Winslow | 3:24 PM ET | 02-27-2007

Wow — we get to double up on the great news today. Leroy proves to be nearly puncture proof and Ruth is back among the living as well. And we still all manage to survive the pain with some grace and style in the process. What a team!

Sent by Bob Maimone | 3:26 PM ET | 02-27-2007

So good to know that you are back Leroy and writing again. Sounds like a terrible ordeal you are going through but what good news to hear that they have possibly gotten those two tumors! Another optimistic note was to see that Ruth is passed her crisis and back with us, though in lots of pain also. Boy, a tumor on the aorta — Wow, what an operation! Will pray that the pain subsides and you will have peace and a painfree life once again.

Sent by Jeanne C. Rakowski | 5:17 PM ET | 02-28-2007

Ruth — you had us all worried there for a while. I was SO happy to sign on tonight and see your comment. Congratulations on coming through everything with flying colors.

And that goes for you too, Leroy. If there was some way to take a little of the pain off you both you know your cancer friends out here would do it.

Keep on keeping on.

Sent by Geneva | 5:19 PM ET | 02-28-2007

Hooray for Ruth, too. It's so good to hear from you, Ruth.

Sent by Connie Brown | 5:20 PM ET | 02-28-2007

I've been taught how and when to use my pain meds.

I find it shocking that I might take a vicodin at school, but it equalizes the throbbing in my pancreas and I can get back to the task at hand. I took advantage of the feelings I got from intravenous benedryl before chemo today — a glorious 4 hour nap that was actually restorative.

Sent by Cheryl M. | 5:22 PM ET | 02-28-2007

Leroy and Ruth,

I have prayed for you both every single day and know you will do well. Bless you.

Sent by Aisha | 5:23 PM ET | 02-28-2007

Glad to read both of your notes, Ruth and Leroy, and that both of you are back in your homes. I need your words, Leroy. My son is going to have an MRI to scan his brain to see if melanoma cells are there, another PET, and an experimental vaccine from NIH. Keep us posted, Leroy.

Sent by Maureen J. Patton | 5:26 PM ET | 02-28-2007

Today's entry is powerful and so well expressed. The parallels to wartime travel, the clear-eyed telling of truths. And you did it on pain meds... that journalistic discipline pays off in times like the ones you are living right now!

And Ruth, the news of your successful surgery, and that you managed to log on while still recovering, is another great gift of this last day of February. My heart is soaring for you both, and for us all, and with gratitude for this community, and each person in it.

Sent by Sarah | 5:27 PM ET | 02-28-2007

Yay, Ruth!! We were all thinking about you and hoping you were well! You ARE a miracle!

For those of you, who grew up as I did in the "pre-computer" era when "neighborhoods" and "communities" were "physical" rather than "virtual" — are you not amazed on a daily basis at the "community" that Leroy has created here, among people who, a year ago, were total strangers? This phenomenon never ceases to amaze me and I am continually grateful.

Sent by Suzanne M. | 5:28 PM ET | 02-28-2007

Leroy,

I, too, had a bought with pain from both my hip, shoulder blade, and rib. My biggest problem was getting off the pain meds when it was time, and found that even though I thought I could handle it, it was much harder than I thought. I hope you don't have that kind of problem.

Sent by Steve S. | 6:25 PM ET | 02-28-2007

For me to remember that the wonder i.e. moments of feeling alive will pass just as the wail i.e. intense physical and emotional pain will pass too. In fact my own spiritual practice for years, even before I had cancer, was to see that samsara and nirvana are not opposites but seamless. Since my diagnosis of ovarian cancer two and a half years ago, I have changed samsara to wail and nirvana to wonder.To not have a preference for either one is certainly a challenge. At the end of every day I recall all the instances of when I wailed and all the instances that I felt wonder. This helps me remember that they are seamless. It is then that I feel a sense of peace. Not having a preference remains difficult, bur there is nothing like my experience with ovarian cancer to give me practice in reaching these moments of liberation and surrender. Often in ovarian circles we say, "How do I know that I am alive, if I don't know my CA125 - tumor marker." I don't need to know my CA125. I know I am alive when I am can note both the wail and wonder that comes to awareness every single day. Some days are big wail days and some days are big wonder days, but most of all I am still here practicing the art of not having a preference. In Buddhist circles I have heard said, "The path isn't difficult for those of no prefernce - no strong opinions for or against." May will all be so blessed.

With deep gratitude to you Leroy and all of you are in our blog family.

Sent by Tamara Engel | 5:09 PM ET | 03-05-2007

I would like to know the name of the
doctor who did your rfa treatments and what hospital he works at. It is very important to my daughter Beth's survival (age 28). Thank you.

Sent by Elaine Hartman | 11:27 PM ET | 05-17-2007

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