NPR: I Couldn't Think of Better Company

My Cancer

I Couldn't Think of Better Company

“I was struck by the diversity of the people sitting around us: All different races. Some elderly people. More middle aged. More young people than I expected.”

Well, my time on TV is over. I am so relieved. The documentary aired on the Discovery Channel on Sunday, and then we did the live town meeting. Luckily, the time flew by. But I was struck by one thing in particular: The audience included doctors and nurses, people from various health and cancer organizations and family members, but the overwhelming majority were cancer patients.

Sitting up on the stage, we were only a few feet from the audience. And the room was lit brightly enough that we could see everyone in the audience. And so I was able to look around. And I was struck by the diversity of the people sitting around us: All different races. Some elderly people. More middle aged. More young people than I expected.

And for the most part, you couldn't tell that they were sick or had been sick. It could have been a crowd at a movie or a game or a play. If you had just gathered in a random crowd off the street, it probably would have looked the same. And maybe that's what we are, a random crowd, all united by one thing: a disease that seems to strike indiscriminately. No one is safe; no one is immune.

Almost everyone in that room has been through hell at some point or they are still going through it or are trying to help a loved one through it. People often talk about "Cancer World" being the club that no one wants to join, and that's certainly true. But I have to say, sitting with all of the members the other night, if I had to go through this, I couldn't think of better company.

As you read this, I'm on a plane, and I'll be writing tomorrow from Hawaii. And I'll say this once again: No, I'm not going there to die. This is just vacation.

Leroy Sievers

6:07 AM ET | 05- 8-2007 | permalink

Comments (Send a comment)

I saw you on the Discovery Channel and as I am a member of the Cancer Club, it was if you were saying the things that I have said, it was strange to have someone voice the same concerns and opinions that I have, the only difference is that you have a reprieve right now from the darkness of the cancer and my darkness continues.....Drink a Mai Tai for me, and enjoy your vacation

Sent by Miriam | 7:03 AM ET | 05-08-2007

WOW Leroy! Look at all those comments! Is 135 a record for your blog? I'm pleased that the TV special has brought so many new people over to your blog, which for me has just been one of the best things about Cancer World.

Instead of a "mai tai for me," I'll ask that you just draw in all that healing power the ocean seems to embody. There's simply something about those negatively charged ions....

Can't wait to read your surfside/poolside blog. And I can't wait to watch the Koppel special, which I had to tape. I couldn't watch it yesterday because I spent the day in that ugly blue naughahyde recliner with the drip, drip, drip of chemo. But you and your TV special were all the talk, at least in my neck of Cancer World.

Have a healing vacation -- that's what they're for, ultimately.

Sent by Jordis | 7:04 AM ET | 05-08-2007

I want to thank you for sharing your story on TV. I wish I had heard about you earlier. You said so many things that I have myself thought.

I can't wrap my mind around your last comment when you said we should tell people. I can't get myself to do that. Why should be burden others with our problem? Will it lessen our burden?

I am 41 with stage 4 (it looks like chemo resistant breast cancer - now in my lungs). I look fine. Over the past two years I had two primary tumors that we thought were "caught early" so everyone thinks I am "cured" . I actually have hair for the first time in a long time. I can't bear to tell anyone that in January I found out that it is in my lungs (8 plus spots) and I'm try the second chemo and they are growing wildly. I have told my daughter, boyfriend, siblings and dad and one person at work. I don't think people believe me when I tell them the doc said I will be unable to work in 6 months and dead in one year (barring a miracle) .

Hang in there and enjoy Hawaii. That is the one place I have alaways wanted to go ( I grew up on the Brady Bunch). I am going to try to read through your blog and get some more inspiration from you.

Sent by Jill | 7:07 AM ET | 05-08-2007

Have a terrific vacation. You deserve it.

While it seems that the "spotlight" is not your favorite thing, the program helped shine a light on just how many people/families are living with cancer. It is everywhere but it is mostly not visible until it is you or someone you love who has it. I would humbly ask that at some future date, another program is done to continue the focus but most of all to give a "voice" to the thousands who are in the fight. Your voice and perspective are "good medicine" for all of us!!!

Blessings and prayers for you and wife and family and now your extended family!! We have adopted you, Leroy, so contemplate for a moment how many prayers are offered each day in your name. The power of prayer is an awesome thing.

Sent by Al Cato | 7:32 AM ET | 05-08-2007

I get so tired of people saying "Well, you are cured of cancer." I always say "No, my husband is not. We just wait for its uly face to raise again. Everyone of us have cancer in our body. It just does not raise its ugly face with some people." We have dealt with mesatsized melanoma for seven years starting in the brain. He has been lucky the four times it has shown up that it has been operatival. And we can name our oncolgy nurse by name. Virginia Scola. She has a PH.D. as an oncolgy nurse. She works in the V. A. in Amarillo, Texas. She has opened doors for us for appointments that would have taken 6 months and we got in that week. This last bout with cancer was on the outside of the intestine and it took 5 months to find it. they did surgery. Got the tumor and took a foot of the intestine. The doctors are calling him the "Miracle Man." They tell us to just watch his health really close for the next bout.

Sent by Jill | 7:34 AM ET | 05-08-2007

Leroy,

Have a great time in Hawaii.

I can't believe I forgot to record the Ted Koppell show. Do you know if it will be aired again on Discovery?
Thanks

Sent by Cindy | 7:41 AM ET | 05-08-2007

leroy: as I travel to the cancer world , and I am a new member of that club, I also find myself looking around, weather in the chemo room, doc office , and I was to surprised by the fact that NO ONE IS IMUNNE... the very sad part is that not even children are.

But it is hard to define what is young, at first I sat at this cancer center and felt that I was the youngest in there by a good 40 years, I am 34, but then once I look closer, there were a lot more "people like me" than I had originally seen. We are all the same as we battle it. It is because of the stigma that cancer is for the old, bold and skinny; I am not old nor skinny... I am bold now tough. But really cancer has no age, no sex, no race, no social/financial status... It is just UGLY!!!
Stay well,
FG

Sent by Francesca Giessmann | 7:41 AM ET | 05-08-2007

I saw you on the Discovery Channel TV show. I am currently receiving treatment for breast cancer. You are a true "mensch." (Ask Ted Koppel what that means, if you do not know). You have faced your cancer with courage and humor. I admire that.

Sent by Helene Weingarten | 7:44 AM ET | 05-08-2007

Dear Leroy, I am glad to be in your company. Have a wonderful, relaxing, restorative time in Hawaii. You certainly deserve a great vacation!

Sent by Marilyn | 7:53 AM ET | 05-08-2007

Dear Leroy,
Enjoy your vacation although now you are probably a celebrity in "cancer world" by virtue of appearing on TV so won't have much privacy. You are no cowardly lion although you remind me of him! My husband also enjoys Hawaiian shirts and got people to wear them at work. We hope to go to Hawaii someday. I was happy to see the response to you and the program on TV as it confirms how many people are going through similar things and how important it is to share your feelings so that no one feels alone. Thank you again and please tell us all about your vacation so that we can enjoy it through your eyes and heartfelt writing.

Sent by Vicki | 8:04 AM ET | 05-08-2007

wow, 135 posts yesterday! You, Elizabeth Edwards, Lance Armstrong and Ted Koppel touched (and educated) a lot of people! I just finished watching the second part of the documentary last night and when my husband asked if he should erase it, I said no- I will want to watch this again. And will want to share it with friends and family members, as I have shared this blog. What great conversaton starters for difficult and necessary conversations. I will echo so many who have already congratulated you on a job well done and what a pleasure it was to put a face to your writing, to Dr. Tejura (I want her for my radiation oncologist if I ever need radiation again!), and to beautiful and articulate Stephanie.
I want to say also how impressed I was with Dr. Meyers. I appreciated his candor AND his desire to keep his patients balanced in their expectations. Although it might (!) be hard/shocking to hear that one will die of this cancer, it is necessary to hear it and internalize it. knowing one will die is not incompatible with having hope. He is being realistic. I was more bothered by the doctor performing the RFA who said, initially, that he would cure your cancer. Later he elaborated on what he meant, he would cure that cancer/kill those tumors in your lungs- but he would do nothing for the microscopic cells that (probably) still are circulating in your body. People need to understand that even if there is no measurable disease, the disease is still there ready to rear it's ugly head. As a nurse on an oncology floor and as a woman with friends who have died from breast cancer, I have seen many people be days from death without having reconciled themselves and their families to the reality of thier passing. I don't think that's fair to anyone. Thus, I applaud Dr. Meyers (and want him as my oncologist if I get colon cancer).
I was diagnosed with metastatic breast cancer last summer and have been undergoing chemotherapy treatment since then. You can be sure I want to know where I stand with my disease and my prognosis. I want honesty and reality checks from my oncologist (and believe I'm getting that) as well as a personal relationship ( which I believe after 6 years of seeing him, I have achieved as well). One thing I do want from my physicians at this point is a bit of humor- or perhaps an acknowledgement of humor- I'd rather not have to say, no..I'm just kidding. Sometimes, the serious, non emotive face gets to me.
Enjoy Hawaii, Leroy and Lori.

Sent by em | 8:32 AM ET | 05-08-2007

I watched the Discovery show from start to finish. I was in awe! The poor doctors though. Yes, we do want to be a person to them, not just the cancer. Quite frankly though, I'd like to see "Living with Cancer - part 2". Elizabeth Edwards was right on target when she stated that our family and caregivers need to be heard. While I think I might know what they are thinking, I sometimes believe that they are walking on eggshells. They don't know what to say to us sometimes. It seems as though they try to hide their grief. I wish they wouldn't do that. It's not healthy for anyone. I'd also like to see reports on new research, perhaps start the process of leveling the playing for all cancer world participants. Of course by raising the bar, not by lowering thresholds.

You have done something new and refreshing. Getting all the players together to start the discussion of change. If you wonder if you have made a difference, you have. Hopefully, this was the beginning of the dialog of change for cancer world.

Have a wonderful time in Hawaii. My thoughts and prayers are with you.

Sent by Kathy Bauer | 8:58 AM ET | 05-08-2007

Bravo to you Leroy & Ted Koppel, Mrs. Edwards and Lance!! And to ALL the audience members. As I watched from my living room in VT I felt attached to a powerful group of hearts and minds. It felt good. I felt included.

It happened to be yesterday that my stage IV diagnosis for breast cancer sunk in for my eldest son, newly arrived home from college. Even though my diagnosis is almost 7 months old, yesterday was his day to fall apart. I encouraged him to cry. He held my hand.Among other things, I told him I'm not dead yet, there is hope. As I sat there comforting him I realized I was remembering the faces in your audience from the night before;caregivers,family, doctors, nurses and patients. All of us have experienced variations of what I was going through with my son.No one said it would be easy. Remembering the faces, remembering the VOICES somehow made me feel calm. For that I am especially thankful.

Leroy one thing that you said really resonated with me - I too feel that cancer is a lesson. I often worry that I'm missing the message or not getting it right.But I agree as well that it is also a gift; one we unwrap everyday with curiosity, hope. Even on the days when we don't like what we find or even feel like it's a really cruel joke - somewhere there's a gift. Tears, anger, letting go...and going on for another day; gifts. What did Lance say? Cancer is his secret weapon? I'm working on getting myself wrapped around that. I'm using Mrs. Edwards' remark....(paraphrased from memory)" if I'm only going to live 12 months I don't want to waste my time...doing that...if I'm going to live 12 years I certainly do want to do that..."to use as a measuring stick. And I'm going to keep remembering all the courage and grace and love that I saw on my TV screen. Thanks again everyone. Penny

Sent by Penny Hoblin | 9:07 AM ET | 05-08-2007

Good Morning Mr. Sievers,
I do hope you arrive at your destination safe and in God's Hands. You are right, looking into the audience there was a diversity of people there and that is what made the show so much more interesting besides your touching story. I am a few days over 25, April 27, 1982, and it seemed like I might of been one of the youngest member of the audience even though I was not present. I watched it twice Sunday night and one more time last night, and it still hit me the same way. You never really realize what you been through, how it effects the family, until you see it from someone's eyes. Don't get me wrong, I know what I have been through and what my family has been through but each case of Cancer is different, no two are the same, and that is what makes it so interesting.
Enjoy your vacation, have a drink on me and continue to live your life on top of the world. God Bless
Bryan Haught 25yrs old, 3yr Survivor

Sent by Bryan Haught, 24 Brooklyn, NY | 9:18 AM ET | 05-08-2007

good morning leroy and blog family members. leroy ,your observations of the variety of people in the cancer club seems so easy to take note of. cancer does not "hold back" or draw discriminations, EVER! i have always believed there is a "reason " for everything that happens in life. joining the "cancer club', meeting persons with an illness that maybe just maybe you would not have shared a conversation with and now you have something in common! without a doubt, cancer once again , forces a person to take a good , hard look at the "real" world full of diversities . maybe it isn't as diverse as you once thought! sitting in the "wait" area for radiation for the past 7 weeks, my "team mates" were, shirley, age 68 ,africanamercian , joyce, age 60, of jewish descent, and myself, the youngest of the 3,and white, all in treatment for breast cancer.
of course i watched the doc on sunday.if anything , i hope the rest of the world watching "our" club can look at people like edwards and armstrong sitting in your company , as just ordinary people with cancer, like the rest of us. nasty stuff , this cancer, ...so i take this cancer and i embrace it for what it is...an "eye opener" for one.
i will join you and your partner in hawaii....in my imagination, of course !
www.caringbridge.org/visit/marianne

Sent by marianne dalton | 9:25 AM ET | 05-08-2007

Thank you so much for your blog, Leroy. I'm a lung cancer patient, I'm relatively young, and I'm struggling with all the BIG questions and feelings. Everything you write in your blog really hits home for me, and you say the things I'm terrified to say. Thank you, Thank you, thank you. I hope you have a fantastic time in Hawaii and I'm so looking forward to reading each and every blog entry you write. !!!!!!

Sent by debbie | 9:26 AM ET | 05-08-2007

I was away most of day yesterday and missed my daily fix of Leroy and the blog. I watched the show on Sunday night, and wanted to make a comment about Stephanie Dornbrook. I have read your posts and most mornings, I admit, I scan through the comments to see if you have written, just so I can see how you are doing that day. I was so struck by your grace and beauty. Your courage is amazing. When I 'see' people like you, I am reminded that there are still beautiful people in the world. We get to know each other on this blog, even if it's just by our first names, so I was very excited when I got to "see" you on the blog and then on the show. I hope you know what an inspiration you are to me.

Sent by Patti | 9:54 AM ET | 05-08-2007

Leroy!

I'm glad you survived the townhall meeting (even though you were a bit nervous beforehand..and couldn't eat)..you did superb!

You are a gentle and genuine human being who has touched so many people. Meeting you and Lori was a very special moment for me.. (you are both lucky to have each other!).

Hopefully you will be reading this by the time you are in the surf and sand...

Krupali
p.s. em--thank you.

Sent by Krupali Tejura MD | 9:57 AM ET | 05-08-2007

My grandmother is heavily ill although not due to cancer but heart disease.She is a traditional Chinese woman who had a very miserable childhood.She did so much for us but now fell ill when it is time to enjoy life. Because of her miserable childhood, she is not the least confident in her health condition. I worry about it so much that I just write down my comments as a token of hope. Hoping that she could be as brave and optimistic as all of you:)

Sent by Kristy | 10:20 AM ET | 05-08-2007

LeRoy,
I've always been taught to respect my elders and to address them as "Mr. and Mrs.", but in your case, I can't. Forgive me. After watching the "Living with Cancer" special, you are now my friend. My mother is in the active stages of dying from extensive stage small cell lung cancer, with mets to the brain and spleen and by now other places too, I'm guessing. She's in hospice care at home in Florida. She is 74 years old and my father who is 78, is her active caregiver when hospice is not present. My aunt (mom's sister) died from the exact same disease a little over a year ago. My husband's uncle died from SCLC also, in 2005. I wanted to thank you for the "wholeness" of your comments regarding cancer. Yes, it is happening directly to you, but you take into consideration at all points the people that care about you also. I've told my Dad that this disease is one that the whole family gets, though one person has the physical aspects. We all suffer from the emotional aspects as well. You mentioned in the program as well as in your blogs that late at night you think about your friends going about their lives and for a minute, you resent them. It's so true. It's very hard to listen to the "problems" other people have when you are going through this, but in a way it's very therapeutic. It's a sign that life goes on around this disease and you can either choose to participate or not. What an insight not just for the cancer patient, but for the families of the people that have cancer also. I wish you the best of luck with your treatments and I hope you have a blast in Hawaii. Have a mai tai for me, would ya?

Sent by Heidi | 10:23 AM ET | 05-08-2007

Dear Leroy,

I missed Sunday night's viewing but was able to catch part of it last night. WOW!! I can relate to everything you talked about on the show and have written on your blog. I too am a member of the Cancer World for a second time. I was diagnosed with breast cancer in July of 2003 and was just diagnosed with metasticized breast cancer in my liver. My oncologist and nurse (she is truly an angel)informed my husband and me that this is not curable, but it is very treatable. I just had my 2nd chemo yesterday and am feeling really good today. I have put this journey in God's hands and have the love, prayers, and support of my family and friends. On top of that I have 120 7th graders at my school cheering me on and praying for me. I truly believe that not only my faith will get me through this. A positive attitude and humor are also a part of this journey. I have a wonderful, loving husband who just seems to know when I need a good laugh and will say or do something silly. He is my soulmate. My sister sent me a book to read called "The Secret". I would highly recommend it to anyone and everyone!! Enjoy your vacation in Hawaii; you deserve it. Take care.

Sent by Mary McLellem | 10:24 AM ET | 05-08-2007

Wow. What a powerful program you appeared on. Thank you for your words on this blog and may you have a relaxed and fantastic vacation.
I am the primary caregiver for my 19 year old son. He was diagnosed with a stage IV abdominal sarcoma (DSRCT) when he was a Junior in high school. We have been dealing with all the emotions that you describe, as well as dealing with a teenager who should have been on the brink of attending college with his friends. He has also had to face difficult issues such as infertility, lack of independence, isolation from his peers, future issurance, employment and education issues . . and issues about religion and the reality that his disease could be fatal. It is so hard. He is so young and my heart breaks daily. But, he is also always positive and asymptomatic the majority of times. It is difficult to know that he is so ill.
But enough. We are filled with hope as he faces a stem cell rescue in the next few days. I have encouraged him to plan a vacation, similar to yours . . go to Hawaii or wherever he wants to celebrate his life.

Peace and joy to you.

Sent by Patty R | 10:26 AM ET | 05-08-2007

Hello Leroy,

Enjoy your well-deserved, long overdue vacation. I was among the many trying to post yesterday afternoon, and I guess that my comments were lost in the bit bucket in the sky while the Processing Box displayed for a very long time. Or perhaps the moderators have a huge Inbox, and I'm still in the review queue.

What a fantastic program! I won't repeat all that I wrote yesterday as so many have expressed the same sentiments I hold. Thanks to you and Lori for sharing what has become some of the most intimate details of your lives with us. Thanks to Stephanie Dornbrook and her wonderful family, also. Stephanie, while many profess to no miracle cure, the spontaneous remission of your pancreatic cancer has got to be in the miracle catagory. Thanks to all of the professionals who took time to share their perspectives with us. Thank you Elizabeth Edwards and Lance Armstrong for acknowledging and taking action on correcting the inequities in our current health care system.

To Maddy Ayre who posted yesterday, if, as your husband said "... the only ones watching this are those somehow affected by cancer", then that would be tens of millions of Americans, or more. How wonderful is that?

Sent by Sheara | 10:35 AM ET | 05-08-2007

I missed the show, bummer, but I found your blog spot. My blog is http://pgorman.spaces.live.com I have brain cancer, yet I LiveStrong Have a drink for me, and enjoy your vacation.

Tricia

Sent by Patricia Gorman | 10:39 AM ET | 05-08-2007

Hi,

The documentary really helped to re-enforce some conversations I was having with people close to me. Thank you for your insight to your own journey.

My name is Coralee. I was diagnosed with Stage II Breast Cancer in early February 2007. I am currently undergoing a 6 cycle chemo regiment. I instively seemed to know that keeping my family, friends and colleagues informed of my progress would not only help them but encourage me. I send periodic progress briefs to a list of people. The responses and sense of humanity at its best has inspired me in my darkest hours.

I also couldn't think of a better company to work for than I do. I work for a Biotech whose drug I now take as part of my chemo. I moved into biotech in 2001 as I wanted to really see how my work affected the product produced and in the end customer/patient. I never thought I would be the customer. When I return to work, I know I will be able to be a better advocate for Quality than I ever have.

Enjoy your vacation, I am thinking about going to Greece.

Sent by Coralee | 10:48 AM ET | 05-08-2007

Dear Leroy,

I wasn't able to watch your show Sunday night, I ended up taking my daughter to the ER (she's fine now).

I had an appointment with my oncologist on Monday and she said "everyone" was talking about your show.

She let me know it would air again that night so I was able to watch it.

Leroy, you got it right!

On your show, you wondered if you had made a difference in your life. Let me inform you you have. Here are just two examples.

My oncologist and I had a heart to heart about what patients want. I commented to her that we don't all want the same thing. I want her to be honest with me but I don't want her to "rub my nose" in my prognosis every visit. We are on the same page.

She also shared with me that she has a newly diagnosed patient with a "very bad" cancer. He watched your show and it helped him and his wife immensely. They needed the "crash course" on living with cancer and you provided that for them.

God bless you Leroy for having the courage to speak out on some very tough subjects. You have no idea how much you have helped your fellow club members.

Please drink a Mai-tai for all of us ;-)

Sent by Karen | 11:02 AM ET | 05-08-2007

Leroy I hope you enjoy Hawaii and are fully in vacation mode by now. The documentary was extremely well done. When my mom had cancer 10+ years ago, it was taboo even to mention the word "cancer" around her or anyone in the family. My dad still won't say that mom had cancer and finally succumbed to it. When mentioning it, he can only say when your mom was sick. My niece, who is 10, is recovering beautifully from her second bone marrow transplant for ALL and she has been so involved with her treatment and her disease, I can see that times have really changed. Your documentary reaffirms that you can't bury your head and that you must be not only a patient put a participant in your treatment. It certainly doesn't eliminate the fear people have about dealing with cancer but your documentary showed it can be dealt with and you have choices in how to deal with it and new choices are thankfully available more frequently.

Keep the faith and don't forget the sunblock.

Sent by KC | 11:10 AM ET | 05-08-2007

Leroy, I watched the show Sunday night. You were superb! I enjoyed your segment more than the others. Ted Koppel seems to be a very sensitive person. I never watched him before buy I will in the future. What happened to the bloggers comments? I was anxious to hear them. I guess they cut that segment. What a shame, maybe they will do a second show and include them. I envy you going to Hawaii, but you definitely deserve it. I like hearing from Lorie and would have liked to hear more from her, from the caregiver's prospective. She seems like a truly genuine, caring person. Have fun in Hawaii!!

Sent by Ruth White | 11:21 AM ET | 05-08-2007

Jill - Tell people. Sure, you need to be somewhat discriminating.But talking to others, sharing your story is strong medicine. I remember approaching an obviously bald woman in a cute hat while she shopped in my store. We were both so glad to share , comfort and confront our cancer stories. We hugged and both of us went away with happier hearts and more hope.You really aren't alone. Karil

Sent by Karil | 11:22 AM ET | 05-08-2007

Thank you Leroy for sharing your journey, and to everyone else who has been a part of this blog. You have highlighted a beautiful part of humanity during such a tragic part of life. The community that all this has created is incredible. Thank you!

Sent by Caroline | 11:42 AM ET | 05-08-2007

Aloha, Kuuipo!

Sent by Diana Kitch | 11:45 AM ET | 05-08-2007

Leroy,
Saw the documentary (twice) and if you're still wondering if you made a difference, you have. I lost my mother to cancer (stomach) and my brother is a cancer survivor (kidney). I had a donation request from Sloan Kettering sitting on my kitchen counter that I had been meaning to get to and when I saw your documentary I immediately filled it out and gave more than I was originally planning to give. I think you and the others afflicted with this disease set a great example and if I should become afflicted with it as well I would draw on your examples of how to cope and live under these incredibly tough circumstances. The only other thing I want to say is in this day and age of athletes and entertainers getting upwards of $20 million a season or per movie, what are the doctors worth who are giving you this additional time and hope? Seems like $20 mil wouldn't be enough.

Sent by Steve | 11:45 AM ET | 05-08-2007

Watching the program last Sunday night opened a whole new avenue of communication for my wife and I. She was dianosed with small cell lung/liver cancer in July of last year. Her battle continues, as she is doing well. Your point about the milestones, yes the scans, report card or whatever you want to call them really do help. Her doctors have made adjustments in her treatment because of those scans.
When she was first diagnosed the doctors didn't give her much time. Maybe 2 months. Well now it's 9 onths later and she's fighting with the help of her team.
Leroy, keep up the faith (and blog)and really enjoy Hawaii

Sent by Mike Augustine | 12:02 PM ET | 05-08-2007

Again, have a wonderful Hawaiin vacation and enjoy yourself to the fullest. I will be picturing you with mai-tai in hand, hawaiin shirt, and a huge smile of accomplishment as you continue to show the world that we truly do "live with cancer."

Sent by Suzanne Lindley | 12:11 PM ET | 05-08-2007

Hello Leroy, Thank You for doing the documentary & the Blog, I'm new to the site. I'm not in the club, but unfortunately my wife is, she had breast cancer. She has been a surviver for 3 yrs and counting. The show brought back memories/emotions which I have forgotten, maybe even pushed away. ie...sitting in the chemo room with my wife waiting for the treatment to end. I would have liked to hear more about the care givers/loved ones also. The times they cried, were in pain, & had to put on a strong face. My wife and I still argue about this & that, like any good marriage, but I charish the time with her that I have been given. Thanks again & have a great vacation.

Sent by Matt | 12:25 PM ET | 05-08-2007

Thanks Leoroy for all that you are doing to put a human face on cancer. I watched the program hesitantly because I was afraid of what it woudl invoke in me. My mother has ovarian cancer and is in her third recurrence. She is strong and we are hopefull to keep here around for as long as we can. My fatheralso previously died of cancer. I am angry alot of the time, oddly greatfull too for the clarity it brings to whats truly important in life.. Im also scared for my own future health. Your program shed light on the journeys we all take when we or one we love is afflicted. I think any way we can create dialogues and send a message that its ok and good to talk about this, the sticken and the affected is of profound value.
So as they say in Hawaii Many Mahalos to you for sharing.
Enjoy your vacation

Sent by Roger Chabot | 12:46 PM ET | 05-08-2007

Dear Leroy, I watched the Show Sunday night and by far your segment was the most informative. I was, although disappointed that more time was not spent on brain tumors. Our 7 year old grandson lives everyday with the after effects and his unknown future. Did you know that brain tumors are the leading cause of cancer related deaths in children? How can we share our story, it is so important to spread the word about all forms of cancer. We are now trying to raise money for Childrens Hospital of Philadelphia through the Kortney Rose Foundation (a schoolmate of our grandson, diagnosed 2 weeks after and passed away 4 months later, age 9). What else can we do, please help us.

Sent by Louise Mackay | 12:48 PM ET | 05-08-2007

Dear Mr. Sievers,

And here I thought I was the only one thinking the thoughts you so eloquently expressed Sunday evening.

I struggle with the words, "cancer survivor", although I have been a member of that particular club for two and one-half years and plan to remain a member until I die in some exotic location of some exotic disease with some exotic drink in hand when I am a very old lady.

I am afraid that the words will make a liar and a failure out of me. What do I do if my breast cancer recurs? How do I tell my friends and family that I have failed? But I don't really have any words to define my status at this particular stage in my life.

I struggle being the friend who has cancer. Even though I know that I never could have come through my diagnosis and recovery without the care and love of my wonderful friends and family, I don't want this disease to define me. I don't want to be the person people feel sorry for. I don't want to be the "brave" friend. Some days, when friends ask how I am doing, I just want to say, "Lousy." I guess what I really don't want to be is the person with cancer.

Thank you for allowing us to share in your personal journey.

Best,
Mo

Sent by Mo Spikes | 1:35 PM ET | 05-08-2007

Leroy

It is certainly true this disease is indescriminate and no one is "safe" and it affects people from all walks of life!!

I have thought for many many years (a 32 year survivor)... what I endured was not fun.. in fact it was a living hell... but no matter how horrible it was... I do not need look very far to see others whom have and continue to endure much worse horrors than I ever did!

I was so very fortunate to have attended the LIVESTRONG Survivor Summit last fall... and I met sooo many incredible people... and listening to their stories ripped at my heart and once again helped to humble me and to be THANKFUL for all the blessing I have had in my life!!

In a bizzare way.. I am grateful for how my cancer changed me and opened the opportunities of meeting such incredible people!!

One of the above comments spoke about not talking about it.... I was silent for 30 years... but I now know I must listen to the "obligation of the cured" as Lance has termed it... we owe it to others to speak out!! To hopefully make people LISTEN to deal with this horrendous situation... to reach out to others to hopefully give HOPE where there is non otherwise... to SUPPORT each other in this "club no one wants to hold membership in"!!

Thanks Leroy

My son is going to college in Hawaii.. yeah I know.. it is a tough job but someone has to do it... so please say Hi to him while you are there and make sure my hard earned money is being well spent! :-)

Sent by Ronald K. Bye | 1:43 PM ET | 05-08-2007

The show was wonderful..I am a stage 1a cancer survivor but many of the feelings you talked about are feelings that my best friend who passed away almost two years ago had. Thank you for doing the show..this blog..it really helps other patients and their loved ones. I see you are heading to Hawaii..that is where I am. Aloha and welcome to the islands. Enjoy a Mai Tai..you deserve it !

Sent by Amy | 1:45 PM ET | 05-08-2007

Guard your liver! Your liver is your greatest weapon against cancer. Skip the mai-tai! Have a pineapple juice instead. Pineapple contains bromelain, an enzyme that helps digestion and can help dissolve tumors. Orange jucie will give you vitamin C, and sunshine in moderation helps give you vitamin D. Alcohol is a toxin, you don't want to drink toxins after you've worked so hard! Don't take your liver for granted, it took a terrible toll during your chemo. God bless!

Sent by Kevin | 1:49 PM ET | 05-08-2007

I very much enjoy your commentary on Morning Edition and find you are such a refreshing voice for all of us "cancer survivors". As a Breast Cancer survivor, I will be celebrating the one year anniversary of finding my breast mass this Mother's Day. It has been a very incredible year for family and friends alike. With surgeries, chemotherapy and now recovery, I am thankful to everyone that allowed me to go through my treatments and make my new life with cancer part of the everyday routine. I am now cancer free and ever hopeful for the future.

Sent by Lina | 1:50 PM ET | 05-08-2007

Thank you so much for sharing your story. I was diagnosed in Jan. 2006 with metastatic breast cancer, stage 4. My first breast cancer was 8 years ago and a very "curable" one. It was a complete surprize to me that the backache I was experiencing was caused by breast cancer. It was found to be in my bones, liver and lungs. So far, the bones seem to be the biggest challenge. I have met some of the most wonderful people through this experience. Unfortunately not all have, or will make it. I am so happy to have been introduced to your story. I have had many of the same feelings. If I die, I know that I will not be in pain and perhaps it is a better place to be. But how do I leave my family behind? What place will they be in? This is so sad for me, but in reality, it could be worse. Thank you again.
Judith

Sent by Judith Jegier | 1:52 PM ET | 05-08-2007

Hawaii will be glorious. I started my day with my chemo treatment - the doctor made a comment that HE was expecting a great day - no bad news to give anyone. I watched as much of the special as I could until I had to go to bed. I know everything you were talking about but I still sat silently with tears forming and dripping until bedtime. My bonus today was getting done early at chemo and having an extra 2 hours before school would let out.

Sent by Cheryl | 1:58 PM ET | 05-08-2007

Hi Leroy, I want to thank you for doing the documentary. You have said the words and feelings I have not been able to express. I am new to the club. I have stage IIb malignant melanoma. But I am also in the club that stands on the outside looking in. By that I mean -surgery is done, tumors removed, lymph nodes removed and we are told to get on with our lives. No chemo, no radiation etc. But wait - there is a catch - you have to come back every 3 months for testing - to make sure it does not rear its ugly head. On one hand I am ever so grateful that it was removed with surgery but on the other hand I am at a loss as how to fight. You hear about the strength of people that endure the chemo, the radiation, and all other options. Me - I feel like I am sitting on eggshells every day. I can't fight - fight what??? I know its still in there, its just a matter of time before it rears its ugly head again. But everything that you have written and have spoken on the documentary helps put things in perspective. And I am eternally grateful for that. You helped open a communication door for myself, and my family. You have made a difference. Have a great vacation!

Sent by Kathie | 2:11 PM ET | 05-08-2007

from robert in hot phoenix az, i am your age, with 2 younger children, throat cancer announced in sept 2006 radiation.chemo atomic bombs, til jan stopped it, cancer survivor is my name , a name that i stole from the gates of hell, , as we both look normal to others, we are always asking ... what's that bump, or lump, can i buy thr r.v for a 10 year payment,,, how much fun should i partake in, before the email from hell comes in,again,,, funny how we notice ,the body language of all the accessories to our plight, attentative nurses or , going thru the motions, as i am just starting to swallow from all the side effects, that were not printed on the box, catch a good buzz for me, at the swim up bar , robert highsmith, participant in life again

Sent by roberthighsmith | 2:15 PM ET | 05-08-2007

Hi Leroy, I tried earlier to send you a comment but, I don't think it went because I got an error. I just wanted to write and say: THANK YOU! Thank you for making that documentary. I could relate to so much of it.

I was diagnosed with NHL (nope, not the national hockey league... (lol)) but, Non Hodgkin's Lymphoma in 2001 when I was 37. I have not reached a remission yet but am still trying and have a specialist at the Roswell Park Cancer Institute in Buffalo. I believe also it is better to be treated at a "specialty hospital". The care and knowledge is better, also I think I have a more optimistic outlook because I trust these people and I know all they do is research how to treat and cure cancer.

I have also been through a great deal in my life: my infant son was murdered when I was 22 by my (now) ex-husband (his father). I had another child that died of SIDS. The way that I have "gotten through" these events is by trying find something positive or a "reason" for it. I have a blog that I used to call "To hell and back" but have changed it to "Angel's do exist". I've been told by others that its an uplifting story of how I've seen the good through the bad. If you'd like, you can read it at: http://www.myspace.com/skwerally and click on Angels do exist.

Your documentary has made so many people more aware. I myself have found that my friends treat me differently. They just don't know what to say any more. I can understand that because I've been on the "other side" prior to being diagnosed and having a friend with cancer. The awkwardness of not knowing what to say. But you've brought that out into the open and I think it's going to help so many people, I'm sure it already has.

Anyway, I just wanted to say: Thank you! And enjoy your vacation.

Sent by Shirley Dolitz | 2:30 PM ET | 05-08-2007

Leroy,
I missed the TV program last Sunday. This morning while searching to find out if there would be a re-run I found your blog and I can't stop reading. Thank you for writing so eloquently about all the issues and questions that us, people living with cancer, face.

I am a stage IV melanoma survivor, I've been living with cancer for 17 years. I had tumors in my lymph nodes, lung, small bowels, spine and brain. I am currently NED and "beating the odds".

I hope you enjoy your vacation. I look forward to reading your blog.

Alicia

Sent by Alicia | 2:30 PM ET | 05-08-2007

Enjoy your vacation! I was one of those younger cancer survivors in the audience. I am a five year breast cancer and 3 year hodgkins disease survivor..All at the ripe old age of 36.

Your story really touched me! I am hopeful for you and me both ... and ALL of those striving and surviving each day.

Thank you for sharing your story!!!

Sent by ~Dana~ | 2:33 PM ET | 05-08-2007

Aaargh! I tried to post a few hours ago but the computer ate my loooong message. Anyway, it's all been said by others and far more eloquently than I can. So I'll just say it was such a pleasure to watch you and Stephanie on the show, as well as all the others, of course. But you two are like family to me after all these months on the blog -- and I felt proud and a little nervous at the beginning. You did great!

Yes, you have made a difference in my life, too. The blog is my daily "fix" of calm, hope, friendship, wry laughter. Thank you.

Have a wonderful vacation. "Don't worry, be happy!"

Sent by Doris | 2:34 PM ET | 05-08-2007

Leroy: Have a great time in Hawaii. You did great on TV. So many of my friends saw it and everyone that I spoke to was touched by your story, your attitude and your courage. Good job.

Sent by James Ray | 2:39 PM ET | 05-08-2007

I am a bit embarassed to say that before watching the Living with Cancer special on Sunday night, I had never heard of Leroy Sievers. After watching you on Sunday night, Leroy, I will never forget you. I watched with my husband and as I laughed with you and nodded my head about shared experiences, my husband would ask if I too had gone through the same things. Though Jeff has been through my side since my diagnosis on January 31 of this year, I have learned that he and I have come at this fight from completely different perspectives. Like Elizabeth Edwards, I wished your partner had been part of the program. Perhaps that could be part of the next Living With Cancer segment.

On January 31st I was diagnosed with Stage III uterine leiomyosarcoma with metastises in my lung. My initial oncologist was a nightmare. He didn't care. He never examined me physically, never returned phone calls, nor visited me in the hospital or the infusion room. I stayed with him through 4 chemo sessions and found myself utterly lost and sad and completely out of control. I finally realized that I needed to take control and I fired him. My new oncologist has been a breath of fresh air. My cancer is not cureable, but the cancer in my lungs is treatable. My doctor and I have a plan and he has encouraged me by paying attention to my questions, laughing at my jokes, asking me questions about my care and my hopes and dreams and he has told me to travel (not because he thinks my demise is imminent, but to live life to the fullest). I am lucky enough to have a loving family, loving friends and a team of doctors who want what I want - to be on this earth for as long as possible. Aloha, Leroy, and mahalo for the gift you have given me - hope. I will make sure when I walk into the infusion room on Thursday that everyone there knows who you are, if they don't already, and that none of us will never forget you.

Sent by Ellie Algatt | 2:53 PM ET | 05-08-2007

Dear Leroy,
Your program really touch me. I am a member of the club, stage II breast cancer diagnosed January, 2006. Your program enlightened my family to things I could never have told them. My 10 year old son was surprised to know that
so many others were in the club. His jaw dropped at the numbers Lance quoted for cancer deaths. I am grateful to you for opening the doors of comunication with my husband. He now understands that I was n't just being a wimp. Even strong men went through the same hell I did with Chemo and radiation. Thank you so much. Enjoy your vacation in the sun.

Sent by Julie Schiff | 3:14 PM ET | 05-08-2007

Leroy-

My Husband is very ill with high grade pleomorphic sarcoma (started in small intestines and spread with metastasis to lung, brain, liver, and more). It was a privalege to watch your program on the Discovery channel. I am curious as to where you had your radio frequency abalation done and who were the doctors because my husband needs one too. like you, my husband has outlived the life-expectancy that the doctors gave him and our story is very similiar to yours. I f you can, please post a comment on where and who conducted RFA. Thanks,

Yonit

Sent by Yonit Viner | 3:14 PM ET | 05-08-2007

Hi Leroy,

I have been listening to you on NPR and was so happy to have seen the documentary on Discovery Channel. This is the first time I've read your blog and one person said the following in her comment, "Elizabeth Edwards was right on target when she stated that our family and caregivers need to be heard." I also wish that there had been more about the caregivers. It's not only the patient that is living with cancer. My mother was diagnosed at the age of 45 with non-Hodgkin's lymphoma. For the next 13 years she went through many rounds of chemotherapy, every 2-3 years, until the cancer morphed into colon cancer and she decided she'd had enough. At 18 years of age, I sat with her through every one of her first chemotherapy treatments. I helped her throw away her hair as it fell out in clumps. I held a cool washcloth to her head as threw up in the toilet. I stayed home and went the local college rather than going away to college so that I could help take care of her. My father, brother and I all lived with cancer for those 13 years. We never knew if we should plan trips because we couldn't count on her feeling well enough in a month or two to go. You mentioned in the video about wondering whether to buy clothes for the next season. We as her family also wondered whether we should buy her certain gifts for Christmas or her birthday. I moved out of town for graduate school a few years after her first diagnosis, and every vacation after that was spent going home. I went home for every Christmas, even if it meant not spending time with my significant other's family. I went home every summer and spent as much time as I could because I wasn't sure if it would be her last summer. I agonized over every single doctor's appointment and dreaded those phone calls even though some offered good news. We were always waiting for the bad news. Eventually, after 10 years or so, I finally started taking some of my time off for myself. You reach a certain point where that "last Christmas" never comes. Ironically, the only time that I didn't go home for Christmas ended up being the last Christmas. I regret that very much 2 years later, however, I can at least know that it was the only one I'd missed. The year before she died, I got engaged and my fiance' and I began planning our wedding. At the time, my mother had been rediagnosed with colon cancer and was going to start another round of treatments. Every other time before that, her treatments had given us another 1-2 years. So we planned the wedding, thinking it would take place 2 months after the end of her latest treatment and that would give her time to feel better. Her treatment did not go well and she decided she'd had enough. She voluntarily stopped treatment and died 2 days before my wedding. I'm telling you this because we spent the first 5 years or so scared to death of death. And it didn't come. Those were the years when we should have done more things, taken more vacations, spent less time worrying and obsessing about the disease. But you can't see the end then. We had no idea we would have 7-8 more years. We should have all done a better job of living with cancer. Instead we spent a lot of time dying of cancer. It's very very hard not dwell on the disease. It's very hard to avoid that elephant in the room. It's big. Thank you for being so honest. Every emotion you discussed was exactly how my mom felt. It was so good to hear someone say those things out loud. I think both patients and caregivers and even those not directly affected need to know what's it's like. I wish this blog had been around 15 years ago.

Have a great trip. My mom did actually get to go to Hawaii. She loved it. And we drank mai-tais. I'm so glad we did that. Keep on living!

Sent by Lorie | 3:43 PM ET | 05-08-2007

Aloha Leroy,

I live on the Big Island of Hawaii and am visiting my daughter and grandsons in Seattle. I must say I was delighted to receive a call from a friend who told me about your show that aired the other night with Ted Koppel. As a breast cancer survivor, and more recently an ovarian cancer patient, I loved the content of the show. You put into words, as you may already know, what most cancer patients feel in the very depths of their being, but perhaps have not articulated.

I am, however, disappointed that not more information was put forth on alternative treatments. My breast cancer (2000) was very aggressive and after a lumpectomy, and while undergoing chemotherapy and radiation, I radically changed my diet and cleaned up my spiritual life. I feel that is why breast cancer has not reared its ugly head. But "what about your ovarian cancer," you may be thinking. Well, I got very lax over the last couple of years, suffered the deaths of my parents, in addition to some other stresses. After my surgery in November of 2006 to remove my uterus, ovaries, appendix and omentum, I knew that drastic measures were again necessary. I declined chemotherapy as suggested by my oncologist and got myself on enzymes, amino acids, No sugar (yes, I mean NONE), and other supplements to support my immune system. I have to say I feel better than I have in years.

I am not suggesting that everybody disregard traditional treatments, after all I did it, but that perhaps we might all consider that cancer is a systemic disease like diabetes and heart disease.

Will I be here a year from now, or two or ten? Who the heck knows. As you know, there are no guarantees and virtually ten out of ten of us will die.

Well, I am rambling. Thanks again for a great service. Who knows, maybe I'll see you Hawaii. My husband and I take people to swim with dolphins in the wild. Now, that is healing!

Malama pono,

Sent by LesLee Vetorino | 3:45 PM ET | 05-08-2007

Hey, hope you have a great vacation Leroy!! Talk about your cancer? YOU BET TALK! As a 2 1/2 year Stage IIIa Colon Cancer survivor, I talk to anyone who will listen. People used to hang their heads and want to walk away when they heard the BIG "C" word. Being Pro-Active about your body is the best defense! How many doctors do you know who say "lets make an appointment for a colonoscopy because you are at the age to be tested"?? Not many. So many younger people are being dx with colon cancer these days that new guidelines need to happen so people won't have to go through what we have. Your show was so wonderful to see. Get the word out and re-train people to not be so scared of the "C" word. Early detection, being pro-active, and the new treatments out there are getting better and making the "C" word less and less an automatic death sentence. I would love to see more shows like this and involve the caregivers as well. Talking about it is the only way to help with this fight against cancer. We need to be hammering the guidelines for screening so it will become a natural thing to do like going to the dentist for a cleaning instead of fearing it. Thank you SO much for doing this show and getting the word out!! Prayers are with you for the future and for your trip!! ENJOY!!

Sent by Peg | 3:53 PM ET | 05-08-2007

Leroy, I saw a commericial for your broadcast "Living with Cancer" a few weeks ago and made myself a note to watch it. It was the first time I have really ever publically heard the term living with cancer. I live with cancer everyday. I appreciate having this venue to write about it, because unless you are in it it's hard to know about it. I was a healthy 45 year old woman completing my doctorate in speech and hearing sciences when I went to the doctor for a routine exam and the results of a mammogram revealed a "speculated" mass, aka bad. Plans were made to handle the breast cancer and then I was asked to volunteer as a subject in a breast cancer study which involved the administration of a PET scan. Results of the PET scan revealed lung cancer. The breast cancer seemed like a bad cold after that news. I had never smoked and lived the life of a big time nerd and here I am with lung cancer. I actually told the doctor he must have the wrong number. Well that was in 2003, and I am still fighting, finished my doctorate, defended my dissertation bald and continue to work as a professor and being a mom and wife. Right now I am living in another state separate from my family because my oncologist moved to another state. After long hard consideration I decided to follow him, because he knows all of me and treats all of me not just my cancer and I need that. While cancer controls a huge part of my life and is part of every thought and decision that I make, I want someone to treat all of me and I found that in him, so I became a groupie. My family will follow me once my high school senior graduates and decides where to go to college. My family is incredibly supportive, but thankfully they are not part of the club. Your television broadcast articulated so many things that I have been trying to say for so long and I thank you. I can see myself becoming a regular. This is another way to feel hope and connect. Thanks for "getting it" and sharing it with all of us. Don't forget your sunscreen in Hawaii, best wishes

Sent by Estelle | 3:53 PM ET | 05-08-2007

Dear Leroy,

My heartfelt wishes go with you to enjoy a most relaxing and restorative vacation. Don't know if you'll be in Kailua-Kona on the Big Island but I've always loved these words of Mark Twain (Letters from Hawaii) and I thought you'd enjoy them too. After the roller coasters and pitfalls and cliff hangers you've encountered these past 16 months, you deserve a lovely slice of paradise in which to while away the hours with a tall, cool drink. As do we all .... "Ye weary ones that are sick of the labor and care, and the bewildering turmoil of the great world and sigh for a land where ye may fold your tired hands and slumber your lives peacefully away, pack up your carpet sacks and go to Kailua! A week there ought to cure the saddest of you all."

Sent by Peggy | 3:54 PM ET | 05-08-2007

Hi Leroy,

I am lucky to have been able to go to the Town Meeting. My daughter works at Discovery and I had colon cancer 3 years ago. I had surgery and am doing great. It was such a pleasure to be there and hear your story. It did get me thinking that maybe I should be having more than just a colonoscopy yearly along with blood work. After hearing your story, I began to worry about whether or not we have been doing enough. Should I be getting a Pet scan yearly or MRI?? I do have a doctor's appointment next month, along with the colonscopy and plan on asking those questions. I truly felt a connection with everyone at the Town meeting and again was very lucky to have been invited. Thanks again and God Bless you. You are such an inspiration to all. Donna

Sent by Donna Clarke | 3:57 PM ET | 05-08-2007

I was surprised that CANCER PREJUDICE was not brought up in your special.It is something I have faced and has nearly ruined my family. My husband has been laid off of his 11 yr job, we are swamped with med. bills from my cancer and my millionaire father in law won't help unless my husband gets rid of his cancer ridden wife who is nothing but a burden. We were even turned down by a landlord when he found out I had cancer earlier this year. I have Non Hodgkins lymphoma. I am 49 years old with a 14 yr old little girl. Both of my parents died from cancer when I was in my 20's. I am frightened. Not of death, of what I am doing to my family. This is what I wanted to hear about on the show.
Thank you for reading this.
Penny

Sent by Penny Powell | 3:57 PM ET | 05-08-2007

Leroy,

I do not have cancer. My father, however, was diagnosed with stage 4 metastatic squamous cell carcinoma of unknown origin just over a year ago and, at that time, was given 2 years to live. Just over 6 months ago, we were told that he is cancer-free.

We still go in for CAT scans every 3-4 months, but the bloodwork and the scans look great. The doctors call it a miracle.

I say "we" because when my father was diagnosed, he and I became a team. I have 4 brothers who are there for him, but who acknowledge that I have become my father's "security blanket."

I go with him to all of his doctor's appointments (not just to his oncologist, but also to his cardiologist because he has since developed congestive heart failure and had to have a heart valve replaced).

I was not there when they told him he had cancer, but I was there when they told him it was gone. The journey between the initial diagnosis and the ongoing monitoring has been one that has pulled my father and me closer than ever before. In fact, if he had not gotten sick, I don't think I would know him as well as I do. I even dragged him to a StoryCorps booth here in Milwaukee and had him talk with me about his life... something I never would've done had I still believed he would live forever.

I am interested in what I've heard people say about caregivers and what they go through. I've been my father's primary caregiver since he was diagnosed; this is a role I did not seek out--it sought me out.

I saw a lot of my father in you--when Ted kept saying that you are a "big, healthy guy" who "doesn't look like he had cancer"--I heard people talking about my dad. When you said that the only pain you've had related to cancer is from the chemo--I heard my dad. When you said you wanted the truth from your doctor, no matter what it was--I heard my dad.

But we never saw you with a caregiver. Someone who can sit with you through the chemo, advocate for you when you are too sick to make the doctor understand you, or just be there when you are too sick to talk and too sick to be alone.

That is the only part of your story which didn't ring true for me. Friends are wonderful. Family is great. A caregiver, though, is someone truly unique who can play a unique role in your life. I hope you have someone like this in your life.

I have marveled at your periodic stories on NPR; I appreciated your appearance on Koppel on Discovery; and I will read your blog with interest.

Be well, Leroy.

Colleen

Sent by Colleen McGuigan | 4:27 PM ET | 05-08-2007

Hello Leroy. You enjoy Hawaii to the fullest. What a great place. I also took in your tv special. What a service for cancer people. I am another pancreatic patient. Diagnosed in October '06, Whipple operation Nov. 06
Was thought to be bile duct until pathologist report came back. I'm about 2/3rds through with my treatment.
The new chemo/rad treatment that uses the constant infusion pak along with radiation 5 day's a week for 6 weeks. I'm in rest period to recover from radiation. Then 4 mos. more of chemo. I've pretty much sailed through all of this so far. Little fatigue for side effects. All of this treatment is the latest cutting edge. Maybe I'm lucky.
Like you I mostly feel great. Please keep you blog going so we can follow your progress. Feel like I know you now. Best regards,
Lou Mayers

Sent by Lou Mayers | 4:29 PM ET | 05-08-2007

What do you do when a loved one is very young (46), with a lovely wife and 2 small children, who has given up completely? My uncle was diagnosed in Jan., 2007, and this past week he tried to commit suicide. He has Stage 4 Lung cancer that has traveled to his brain and neck. He doesn't want to see anyone, or try to fight. I tend to only here the stories of the fighters, but is it possible to try to "convince" someone to fight. He was told he has 6 months, and given his attitude I am afraid he will not make it past the summer. Even though he has given up, we are not giving up on him.

Sent by Danielle | 4:30 PM ET | 05-08-2007

While watching the program, I realized how thankful I was that you bravely chose to share this experience with the world. So many of your statements left me nodding my head in agreement - you so candidly expressed most of my same experiences over the past 10 month. I want to sincerely thank you for sharing this with us, and the world community. Your words have been a comfort to me.

Sent by Lesa | 4:42 PM ET | 05-08-2007

Leroy,

I am a recent member of the cancer club. I was diagnosed with esophageal cancer two days before Thanksgiving 2006 and I could tell my doctor was terrified of telling me so I knew something was up but wasn't sure what. When he told me what I had my reaction to it was, I guess, odd. My immediate reaction was I was going to beat this, no matter what. My mom was with me when I found out, I am 38 years old and have never smoked and was never a heavy drinker nor did I have any acid reflux symptoms so this took everyone by surprise especially my parents. They took it especially hard. I am sitting here watching the TV show you did "Living with Cancer" and find myself feeling eternally grateful for what you are saying and is what drove me to your blog site and has prompted me to share a bit of my story here and now. I truly appreciate your blog and wish I had known about it sooner. Have a good time in Hawaii!!!

Sent by Tom DuBois | 4:44 PM ET | 05-08-2007

To Kathie with Stage IIb melanoma: Please believe that the "eggshell" feelings get better with time. In the meantime, hang in there. The comments you hear from family and friends about your "cure" and getting on with life are perhaps uninformed but well-intentioned. I'm a Stage IIIc melanoma veteran and have heard a lot of that! Take care.

Sent by Rich McDonald | 4:50 PM ET | 05-08-2007

Dear Leroy,

I saw the special and was so touched by your willingness to share such a personal stuggle in such a public way. You have done a service to those of us who have been fortunate enough to not have been touched by cancer in the family (and I'm knocking on wood with my other hand as I type this). What an amazing, emotional trip you took us on. And kudos to your friend Ted for documenting your journey with love and respect.

I wish you nothing but good health and a long, happy life. Aloha!

Sent by Amy Braden, Sacramento, CA | 5:10 PM ET | 05-08-2007

Hello Leroy,
I watched the program last night. I had read that it would be televised so set it up to be recorded. Now I'm so very glad it is. I have several people in my family or circle of friends whom I'd like to share it with.

Thank you for your desire to open your world up to us. I'm grateful for the friendship you have with Ted and for the great gal in your life. You are surrounded by people who are dear to you and you to them.

I'm thrilled to know you are probably in Hawaii as I write. How lovely! and I particularly enjoyed how you described how this trip would be thought of..not as an end but as a beginning. Just another guy in a Hawaiian shirt sipping a cold beverage in a beautiful, tropical local. We are all jealous back here on the mainline!

I soaked up every word that you 4 shared last pm. Thank you for bringing us all into your private world, all the different feelings and thoughts that go through you...because it allows us to be better people. Better because we can be more touched and educated and better because you've help equip us with the notion that we, too, will find strength, bravery, hope, courage, well-placed anger. Whatever. To walk our own road, when we've heard the words, 'You've got cancer'. Thank you for all that you've done, even while feeling terribly sick, at times. Thank you for sharing your most private thoughts, fears and sweetest hopes. You make us feel like we, too, will be able to do what we need to do, when our time comes to fight hard.

Stay in Hawaii for as long as you can..
Soak up the sound of the waves lapping on shore at night..the aqua water...the balmy tropical breezes..all of it!
Make us proud! When the waiter comes around - please say 'yes, I'll have another'.

Donna in Fullerton, CA

Sent by Donna Scutti | 5:23 PM ET | 05-08-2007

All I can say is BRAVO! I watched the Living With Cancer special and you are an amazing man. My thoughts and prayers are with you through this journey and beyond.

Sent by Julie | 5:30 PM ET | 05-08-2007

Dear Leroy-
Enjoy Hawaii. May it be a restorative trip.

I am going to wear Hawaiian shirts for the rest of this week in your honor. Maybe, other members of the cancer family will join with me in their own quiet but colorful celebrations.

Sending you wishes for a fine vacation and looking forward to your postings from the sand- Barbara

Sent by Barbara Goun | 5:35 PM ET | 05-08-2007

Dear Leroy,
First of all..enjoy Hawaii!! Secondly, I want to thank you for this blog and your participation in the live Town Hall on Sunday night. I watched it, completely riveted by your story. I am currently working with a woman whose husband has pancreatic cancer and seven years ago when he was diagnosed was told that he had three years to live. Luckily, Robert is still with his family. However, he lost his job a year ago without warning and without retirement, has been forced to bear the burden of medical costs without insurance (he lost that when he lost his job). Because he and his wife own their apartment and make over $19,000 per year, he doesn't qualify for medicaid or medicare.

I'm desperate to try to point them in the right direction in regards to how they can handle paying the astronomical bills his last visit incurred ($21,000 for a 10-day visit), and if you or anyone on this blog could help I would be most appreciative.

You and yours remain in my prayers,
Fred Howard

Sent by Fred Howard | 5:52 PM ET | 05-08-2007

Hello Leroy. WELL DONE!!! I saw your show and you spoke like you were in my head. I am 33 yrs old and have a Glioblastoma. (grade 4 brain cancer) dx 9-05 so already beating the odds. The thing about your show that I found really interesting is how one adapts to living with cancer. I am over a year into it and had forgotten about some of the beginning feelings so the break down was overwhelming. Made me feel a lot stronger on where I stand today and how far I have come. I have a five year old son and worry about leaving him and my husband but you just have to push it back like you said. I have met several people now with GBM and nothing pisses me off more than when a doctor gives a time frame. I did fire my first oncologist due to his lovely personality. Sometimes I find it important to remind them there are no guarantees in this cancer business so until they tell me they have a cure they sure as hell can't give me a time of death..I find that VERY IMPORTANT to pass on to fellow cancer patients. Every individual is different. So all we can do is fight like hell and remember to keep living life the best we can. I have been going to a site called YASG since I was first diagnosed and it has been a godsend. All of us in the same boat. A great place for real info not just statistics. I have lost a few people to this, but that is part of the deal. And it makes me strive even more to help as much as I can. If there is ever anyway that I can help you out. Don't hesitate to ask. I look forward to catching up with your blog and reading future entries. Than you for making a difference.
Enjoy hawaii and have a couple mai tai's for me!
For The Greater Good!!
Christine

Sent by christine | 5:52 PM ET | 05-08-2007

I watched "Living with Cancer" again last night and found it both as interesting & moving as on 1st viewing. I want to challenge your readers... I want to encourage those who are "healthy" to be become platelets donors. As many know, platelets are given to cancer patients whose immune systems are totally compromised following chemotherapy. I just feel it's some little something I can do to help the many people who are fighting cancer.

Sent by Rebecca Weber | 6:31 PM ET | 05-08-2007

Tomorrow, May 9th, I'll be 60 years old with a cancer diagnosis+treatment going back 16 months. I finally got the "vital statistics" of my life expetectency at birth. In 1947 a white male could expect to live 65.2 years the day they were born although I don't recall expecting much at the time. Childhood diseases and premature births still kept the numbers low until a kid got about grade school age in the 1950's. Polio was a killer in my age group. I had that too (1953).
In any case, my survival each day is what I love and want for my family. If I make it another 5.3 years I will have hit the jackpot.
While in Hawaii knock one back for me tomorrow Leroy.

Sent by Jim | 6:55 PM ET | 05-08-2007

Enjoy your vacation, you deserve it after all you went through, I want to express my respect and admiration and wishes for total recovery.
I watched the discovery program on Sunday, I saw it twice, and it answered few of the questions that I always think of, the questions about the cost of treatment and how can we afford it if we had a reoccurrence. I was diagnosed with cancer back home, in Baghdad, Iraq, that was in August 2002, I started my chemo in September, it was all free of charge, as the government covers all cancer treatments, but then my oncologist asked me to leave the country and continue the treatment in Jordan, as the war was inevitable, and true, after a month of my leaving the country the war started, I took my last two doses in Amman, and it was expensive! In March 2003 I came to the United States, and was introduced to something called Health Insurance, I didn't have it at the start, but then I found a job and had health coverage. To my dismay it did not cover everything, for a whole year my cancer was not covered as it was a pre-existing condition, so, for a whole year I paid cash for everything, my mammograms, my blood tests, visits to the oncologist, etc. after a year passed I was relieved to know that I am fully covered, but still, when I needed an MRI, I paid more than half the cost, then I needed a minor operation, a small test that was preformed in a lab, but again they told me that this is considered an operation, I paid 1/2 the cost. Now I live in constant fear of a reoccurrence, what if? This is the eternal question, what if it came back? What am I going to do? Will I be able to work and get treatment at the same time? Will the insurance company ask me to pay part of the cost? Will I be able to work if I'm sick? So many questions turn around my head. I came to the States to live in dignity, was ready to work hard, pay another thing that I was introduced to here, Taxes, and I am doing a great, but still, I am scared. My family and friends tell me that I am lucky to be in the States, they say "you are in the greatest place on earth to get the best medical treatment", they don't know anything about health insurance, and they think that All Americans get the same treatment, (I never tell them the truth). I was scared all my life living in Iraq, but now I have a different kind of scare, in my country people are fatalists, whatever happens to them they say it is the will of God, and we are all going to die one way or another, if not cancer, it will be a heart attack, if not this, an accident, or nowadays, a bomb, explosion, kidnapping and killing, but the end result is death, I do believe this is true, but at the same time, we are an intelligent species, I believe we can do something, I don't know what or how, but we must. I saw President Clinton today on CNN talking about AIDS treatment, and how they are trying to make it cheaper for the poor, I think this is great, but also I think ALL medical care should be available and cheap to EVERYBODY.

Sent by Mona Sulaiman | 7:22 PM ET | 05-08-2007

Dear Leroy:
You are truly inspiring. Thank you for sharing your life with the whole world. You are really amazing but we knew that before. We hope that you and Laurie have a fantastic time in Hawaii, that you get to see whales close-up and personal( ya'll must come back this winter so we can get you eye to eye with these magnificent creatures and name a special one in your honor, and that most of all you have the opportunity to visit the holy grounds of Blessed Fr. Damien of Molokai. (Fr. Damien is currently being considered for canonization in Rome for the miraculous healing of a cancer patient.) We pray especially on this Thursday May 10th, the feast day of Blessed Fr. Damien of Molokai, that you may experience the intercession of Blessed Fr. Damien for your healing and that God will continue to pour out upon you many abundant blessings throughout your life.
Much love to you and Laurie. Aloha, Debbie, Mark, and Chantelle Center for Whale Studies

Sent by Mark, Debbie, and Chantelle Ferrari | 7:29 PM ET | 05-08-2007

Leroy,
Thanks for bringing all of us together. As a pancreatic cancer survivor your program and has meant much to all of us. I have been thru the "whipple-chemo and radiation and now headed to John Hopkins next month for the Pancreatic cancer vaccine trial.You are so right in that we must do everything we can to beat this beast and not give up. I hope the Discovery channel will re-run the program. More people need to see it and learn about living with cancer.
Have a great time in Hawaii.

Sent by Bill Crawley | 7:58 PM ET | 05-08-2007

Leroy-
It's the size of the smile that counts. There is so much humor associated with cancer that people never really get to laugh about. I can recall sitting up after the first round of chemo one morning and saying "hey this isn't so bad," and then promptly turning my head and throwing up. The nurse rushed over and said "oh we have a really good drug for the nausea associated with chemo!" "Now you tell me, I replied. Or the time sitting on the "little white hat," (ha! ha!) pondering if I've ever felt so much pain in my life as I tried in vain to have a bowel movement. Exausted and about to faint I rang the nurse and she calmly explained that that was just how chemo works- it sheds the lining of your bowels along with all the other rapidly dividing cells. "At the moment," I said, it feels as if I'm trying to shed a Buick!"

Sent by Ehren Heyer | 8:30 PM ET | 05-08-2007

It was an honor and a privalege to participate in the Town Hall and to meet you, Leroy. Cancer is a part of our lives. There is no one that has not been touched by this disease. My hope, beyond wishing you the vacation of your dreams, is that the Living With Cancer special is just the beginning of an ongoing dialogue that will shed light on so many still very dark corners and extend a hand to the many in need. We all, doctors, nurses, caregivers, family and friends as well as fighters and survivors, all need so much more and we have only begun the dialogue with this special program. Sometimes, it is just knowing that you can talk about it that brings comfort. Sharing with so many who know your experience is an almost overwhelming feeling of relief and joy. I would like to extend an open invitation to survivors to join others at our Survivor's reception and walk in the Victory Lap at the Relay For Life in Southern Montgomery County, Maryland. Information can be found on our website, www.SoMoCoRelay.org
Thank you again Leroy, Ted, Elizabeth and Lance for your candor, your guidance, and your humanity. Please let there be at least a follow up to this very important program, as we are all Living with Cancer in some way.
Lu Merrick

Sent by Lu Merrick | 9:16 PM ET | 05-08-2007

I never heard of you, Leroy but so happy I got to "meet" you on the Discovery Channels special on "Living With Cancer" I am a cancer survivor. I was diagnosed in June 2005 with stage 2 breast cancer at the age of 45. After surgery, chemo and radiation I am presently NED (no evidence of disease) and coming up on my 2 year anniversary. Hearing you describe your feelings surely hit a cord with me as you hit every emotion on the head I had/have. Of course, any person who has heard the words "you have cancer" feels the way you described.

I couldn't have been happier on your good news that the ablation took care of your lung tumors. If nothing else it reinforced what I already believe. NO ONE knows what our time table is. Only God. Anything is possible with Him at the helm. As long as we have life/breath we have hope.

Enjoy Hawaii and live and love the life you've been given one day at a time.

Mary Jo

Sent by Mary Jo Cyr | 9:38 PM ET | 05-08-2007

I watched your show on Discovery last night and was glued to the tv!!I lost my dad to cancer a year & half ago...two weeks before he died my mom comitted suicide. My dad's cancer was a closed subject...maybe if we had watched a show like yours last night..things could have been different. Cancer is such a closed topic with so many people. I think you have really helped many families and friends to try and open up about cancer...You really made a difference...I wish I could shake your hand!!"Take it one day at a time"!!Enjoy your holidays

Sent by Ruth | 9:45 PM ET | 05-08-2007

Dear Leroy, you are a most amazing gentle - man. Your openness & integrity on your blog & on the Discovery Channel "Koppel - Living with Cancer" has helped those with & without cancer & is an extremely monumental achievement & extraordinary legacy for you. Ted did an amazing job. The TV program was well organized & tremedously informative. Your bravery & eliquence in discussing your personal life, feelings, treatment & thoughts is truly a selfless & monumental deed. I hope you live a long & healthy life, cancer free & hope you receive the recognition you deserve for sharing your privacy & wisdom. Fondly, Jan Levin

Sent by Jan Levin | 10:08 PM ET | 05-08-2007

I hope you are having a great time in Hawaii!

I am new to this club that I never wanted to be a part of. I taped the Discovery special and just watched it. It was very moving. You said so many of the things so many of us in this club have thought to ourselves.

As I watched the show it brought back memories of going to chemotherapy with my Mom and of the looks on the doctor's faces when they told my Dad that he had one year to live. The interviews with the doctor and nurse in the oncology department reminded me of how compassionate everyone has been so far. My journey is not over yet.

The hardest part of this for me has been the reactions of my sisters and my brother. I am the oldest of four children. Because both our parents died of cancer, my family is scared I am going to die too. I feel very fortunate that my cancer was found in the early stages. I have chosen to have a bilateral mastectomy, so with the surgery I will not have to get radiation or chemotherapy. I feel fortunate for that, for both me and my family.

I look forward to reading your blog on a daily basis, now that I know about it. I think you are a very brave person and I admire you for sharing your very personal story!!

Sent by Karen T. | 11:14 PM ET | 05-08-2007

Since I was diagnosed with cancer, I have come to appreciate my friends a lot more. The friendships I have mean so much now. I have also made friends in my cancer support group. These are a special group of people for me as we share the same concerns. I think that is what this blog is for me.

Sent by Betty in Germany | 4:17 AM ET | 05-09-2007

Dear Leroy,
Thank you for making a positive difference to the "Cancer World" through the quality of your blog and the part you played in the recent Discovery Channel presentation. The high standards of Nightline were present as Ted Koppel asked the tough questions that were necessary but hard to answer. Being by my Nancy's side as she lived and died with cancer, encouraged me, "her survivor," to watch and benefit greatly. To suffer with or have compassion, as Dr Rick Montz of Johns Hopkins used to say, is the necessary ingredient for the Oncologist. It seemed like your entire medical team reflected his words. Have a well deserved vacation, good luck and congratulations to Carol for her eloquence. Love+Hugs/Jerry

Sent by Jerry Cook | 8:52 AM ET | 05-09-2007

Hi Leroy,
Thank you for sharing your story with us, it was very informative and helpful. My Dad is battling bladder cancer and I lost my Grandmother (his Mother) to colon cancer. So our family is all too familar with what this disease can do.My heart has been heavy for my Dad as he had just retired after many years with a company. He had bought a nice big motorhome for himself and Mother to travel, only to get this news soon after. I have faith that he will one day be back to enjoying life again, but for now it is constant chemotherapy treatments.
I wish you the very best and will keep you in my prayers.
I sure hope you are sitting on a glorious spot somewhere in Hawaii having that Mai Tai enjoying yourself.
God Bless You and yours....S. Saginar

Sent by Sabrina Saginar | 9:01 AM ET | 05-09-2007

Leory,

Happy landing, my friend! As I sit back thinking of what a grand time it will be and especially as you see the islands approaching from the air, my thoughts stray to a time long ago and far away. It was October 2000. My mother had endured tremendous destruction from both the ovarian cancer and the almost two years of non-stop treatments and surgeries. At this point her entire torso was laden with tumors as well as at least 4 significant tumors in the brain. I was happy, though, because she was only supposed to last through March and here it was October and we were fulfilling one of her "wishes" to see the Bahamas. I literally carried her up the stairs to the small plane leaving Miami with my arms full of bags of medical supplies.

I will never forget the frail, sheepish, toothless grin as she looked at me with total amazement and softly said to me, "I'm going to the Bahamas!", as we saw the islands approaching from the air. She knew at that moment that this would be the last trip of her life yet she approached it as she did everything in life...with enthusiasm, intensity and a desire to see it through.

My mother was 9 years old, as she often told the story; sitting in a tree looking towards the big mushroom cloud about 70 miles away. Days later in the same tree she saw the exact same sight in another direction about the same distance. She spoke of the months of foraging for greens since nothing was growing at this point anywhere. The trees were all burned up and food was scarce.

Yet at that moment as we stepped off the plane all she knew was "life is good". Yes, indeed, life is only what we make of it and because of folks like you, the world is a better place each and every second of every day!

Enjoy your down time but never let you attitude go in that direction.

Sent by Ed Brown | 10:08 AM ET | 05-09-2007

I am utterly humbled to read this blog -- every day. I was a caregiver to my husband. The disease stretched our hearts and our minds. We both grow in ways I never thought possible.

I am grateful that more men are beginning to write back now, especially now that the special has aired.
Leroy, you, NPR, and the Discovery Channel have made a huge difference. Thank you, thank you, thank you. Just look at what you mean to people by simply living.
Have some pineapple juice and a mai tai and buy a new shirt. And give Lori, your caregiver, a big ole hug.
LiveStrong! ~ Deborah

Sent by Deborah | 10:09 AM ET | 05-09-2007

As a former cancer survivor (uterine ca 3 yrs ago) and a current breast cancer patient, I understand what being in the club is all about. My friend Kim who is 2 yrs out of breast ca called me when the news of Elizabeth Edwards new fight came out. We don't know Mrs Edwards, we were barely able to tell you about her husband, yet, we felt like a friend had been stricken .We both actually cried for her. When one of us suffers a set back, it hits all of us, because we understand the sorrow involved ...and because we know that it could very well be us next time. Enjoy your vacation Leroy, we are all on it with you!!!

Sent by Liz Zimmerman | 11:07 AM ET | 05-09-2007

If you missed "Koppel: Living with Cancer" it will be televised again on June 2, 2007 at 4:00 PM ET. Blessings to all. Enjoy Hawaii, Leroy!! Kathleen

Sent by Kathleen Wallace | 12:41 PM ET | 05-09-2007

Thank you, Leroy, for letting everyone step into your life and into your inner most thoughts. You have done a great service. I was lucky enough to participate in the Discovery program on Sunday night. I am a 30-year breast cancer survivor and a 4-year melanoma survivor. I was diagnosed with breast cancer and underwent a modified radical mastectomy in 1977 at the age of 23. Back in the day, if you were node negative, there was no follow-up therapy. I got lucky again when my melanoma was found at the earliest stage possible. Sometimes I feel like I don't belong in the club because I have not suffered as so many others have. Nonetheless, the threat of a new cancer is always there, as I found out with my melanoma 4 years ago. That one caught me by surprise. I've been feeling for lumps my whole life, not looking for moles on my Mediterranean complexion! Of course, I'm looking for them now! During the program, a physician asked what more can doctors do to assist their patients. I wasn't able to get the mic to respond, but I wanted to tell physicians to please not forget about the other challenges that some forms of cancer present -- the loss of a breast, dealing with a colostomy bag, or learning how to speak using a device due to undergoing a largyngectomy. The Amercian Cancer Society, of which I'm proud to have been a volunteer with for 26 years, provides informtion and one-on-one support for all people dealing with the disease itself and the other challenges it presents. It goes beyond dispensing information. There are many survivors who are ready to reach out and help. So I say to the physicians, please don't forget about those other challenges. True, they pale in comparison to a disease that can kill you, but it's important to address those needs as well. Please remember to make your patients aware that these services are available to them for free from the American Cancer Society. I know that I will be forever grateful to the Reach to Recovery volunteer who met with me soon after my mastectomy. She was a trained volunteer who had undergone a mastectomy 7 years earlier. She emanated a postive energy when she walked into the room. As we talked, she told me that she just finished painting her whole house herself! As I looked at my arm that I couldn't lift above my head, due to an axillary node dissection, I thought, wow, if she can do that, so can I. Seeing her looking great and living life to the fullest helped me to deal with the loss of my breast at such a young age. Again, these other challenges pale in comparison to the suffering so many on this blog have endured, but they are still important components in the recovery process. Thanks, again, Leroy, for the good you have done so many people. Have a great vacation!

Sent by Darlene Parker | 1:25 PM ET | 05-09-2007

I am so happy for you! Cancer treatment is just like being "grounded" when we were kids...It must be heaven getting to finally get away, for pure pleasure. On another subject...Don't you all think it would behoove one of the major networks or Discovery or TLC to do a series about cancer topics? Or a weekly show maybe? The statistics of how many Americans are affected by cancer would seem to warrant that much coverage!!! If we can investigate "dirty jobs", deadly catches, home improvements, the nanny shows, etc., why not cancer? "Living w. Cancer" was great, but it is tip of the iceberg, eh? How about teens with cancer? How about a show about just caregivers? It definitely needs more attention, and people would definitely be interested in it as it affects all of us at some point. Thanks for listening, love and prayers to everyone.

Sent by Sherri in Texas | 3:40 PM ET | 05-09-2007

Leroy,
Your show was brilliant. Thank you. I told my family all over the country to
watch so they can now understand what my husband is going through. Recently
"given" 12-15 months. Question: How did
the Dr. who did the radio fequency abl.
get involved with you? Did you search him out, did he hear of you? I am at a
loss as the oncologists only know what they know...How can I find this doctor?

Sent by Mary Griffo | 3:46 PM ET | 05-09-2007

I saw the show on Sunday, very interesting and informative. I'm not a member of the cancer club, but I know 6 people who have been diagnosed in the past 5 months. It is so overwhelming, it is difficult for me to wrap my mind around.

Sent by Jody M. | 8:51 PM ET | 05-09-2007

Leroy...I saw the Dicovery Channel special as well. Amaizing! I too am a survivor. Your words brought me back to an isolating time that I always will remember. My story is tenuos next to yours...

You've earned this time to do nothing and relax on the beach! Have an extra mai tai for me and all of my survivor friends! We all pray for you. Savor each moment...

Sent by PD | 4:49 AM ET | 05-10-2007

Leroy

I was afraid to watch your show, since I don't have cancer and for some reason thought that watching your show somehow brought me closer to something I don't want to ever see.

But I could not take my eyes off the show, and was totally drawn in by your openness, your honesty, and your insights regarding the big picture of life and death.

I wish you well and I know that you have changed many many lives in sharing your story. This is something very few of us can do.

Sent by Deb | 5:59 PM ET | 05-10-2007

The show was wonderful and did a great service to an entire community of patients, doctors, caregivers, etc. I just wish when asked what do patients really want, someone would have said loudly "To be heard". I found my neurosurgeon the least understanding of all the "millions" of doctors and nurses I saw over the last 3 years time. Only my oncology nurse was a good listener. I was lucky in that my chemo was pill form and I had a great antinausea drug...so I didn't lose my hair or get super sick. I just felt like a slug for a few weeks. I really just want to say thanks for the good work and good luck with your future plans. I am personally fortunate enough to be back in graduate school to try to do what I've always wanted to do - teach. My brain cancer is supposedly gone, but it will always be a part of me. Do you ever really get rid of it??? Or the long-term side-effects??? Thank you so much for your documentary!

Sent by Tammy Malachowski | 7:17 AM ET | 05-12-2007

I was riveted to the in-depth broadcast and pleased to find such a thorough investigation of surviving cancer. The "cancer club" IS a surprisingly well-appearing group of people. Three plus years beyond diagnosis, I too have achieved good health. I also know this state of being is delicate...understanding the continuum of illness, remission, wellness, survivorship (cure?) remains a huge challenge. The show provided clarity...thank you!

Sent by Pat | 10:47 AM ET | 05-12-2007

I would have been watching The Sopranos then Brothers and Sisters but happened to check the programming for the evening. Talk about divine intervention - I was glued to the TV for 3 hours. Your story was riveting, Leroy, and for the first time since 2004 I was able to truly identify with another survivor. Wow! My husband and kids, who might have benefited from hearing you put "my" feelings into words, went about their business. That, however, was the beauty of the evening. Who could possibly know that a stranger appearing on the Discovery Channel would share so many of my intimate thoughts, fears and hopes?

Enjoy Hawaii and keep active. We have a saying here in Brooklyn, "keep moving and they can't get you." Believe it or not, I think it might be sound advice.

Sent by Renee | 8:46 PM ET | 05-13-2007

I taped your appearance on the Koppel show and waited quite a while before watching it. I'm ashamed to say I put it off because I'm a coward. My parents both have cancer. In the last year I have had to deal with the thought that both of my parents will die from the cancer. I have also had to deal with the great possibility that I will get cancer as well.

What a process! At first I was visiting every week, calling every day. Then treatment was going well, my life got busy, and I went every other week. Soon I wouldn't visit at all, but just call. Finally I sat myself down and had a talk. I was mourning their death! How ridiculous, but how accurate!!! Tomorrow I am going to visit them again on my day off. It is such a head trip to deal with loved ones and cancer! I'm so grateful that you had a hard time thinking about saying goodbye to your loved ones. It made me feel normal. Whatever happens, I have made a decision to DEAL with it, not hide any more!

God bless you as you continue warrioring against this disease!!!!

Sent by Elaine Eversole | 9:45 PM ET | 05-14-2007

Leroy, I just wanted to tell you that your story on the Koppel show could have been written by me. Your thoughts and their timing were exactly like mine. I have the program on tape and show it every chance I get. When someone asks me how I feel about things, I refer them to your thoughts and when they occured and tell them THAT'S ME!!!!
Thanks for such eloquence in describing wheat I'm feeling and when I felt it.

Sent by David L Mochel | 9:12 PM ET | 05-17-2007

Welcome Home Leroy, The thing about cancer is it seduces you into thinking positive again. I feel so poorly right now, I can't do anything. The chemo, this time around, seems worse than before. I have had a 50% reduction in active tumors, a good thing to be sure, but what happens next. You seem always to be waiting for that next CT or MRI for any good news. It wears on you, you feel so badly while on chemo, then you get that short break, and start all over again. I really don't worry so much about how long I have, but rather, how long can I take the treatments. It takes so much out of you, but what choice do we have? You can't give up and just start watching the clock, it is, after all, running for all of us. But for a cancer patient, it adds all this additional work; chemo is work. Life is work too, so let's just keep fighting. Wondering "How long" just comes with the territory. Mahalo,, Stan

Sent by Stan Wozniak | 12:46 PM ET | 05-21-2007

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