Cancer's Crystal Ball

 
“People who haven't experienced cancer, who haven't come close enough to feel its breath, or to feel its arms tightening around our lives, those people ask sometimes, 'What is cancer like?' ... Cancer is pain. ”
 
 

"Insomnia is good for productivity. Personal pain is good for creativity." Now, I know all of us try to keep a positive outlook on all this, but that's just ridiculous. But that's what my horoscope said in the newspaper yesterday morning. Is that some kind of sick joke? As I've said recently, I'm not a morning person. I haven't been getting much sleep, and I'm in pain. So you can imagine what my reaction was when I saw that in the morning paper. And if you guessed "productive and creative," you're wrong.

Actually, sleep deprivation is a very powerful thing. Various groups, the military, for instance, use it for indoctrination. In its extreme form, it's used for interrogation. In normal times, it just makes us cranky. I was out on a story one time and we were up for five or six days straight, at most an hour or so of sleep each night. At that point, that little bit of sleep is worse than nothing. I'll never forget the last night when, totally exhausted, I sat there reading typed words on a page. There was only one problem. There weren't any words on the page, even though I could see them clear as day.

As for pain, it has a way of crowding out everything else. It makes you nervous, because you're never quite sure what movements might bring new agony. It makes you forget whatever you wanted to do, or what you were thinking about, or what you needed to do. It makes you forget yourself. The other day, one woman wrote in, I'm pretty sure it was Liz but I was a little sleep deprived when I read it, to say that, "Cancer is pain." Those three words pretty much say it all.

People who haven't experienced cancer, who haven't come close enough to feel its breath, or to feel its arms tightening around our lives, those people ask sometimes, "What is cancer like?" Well, for all the words I've written, Liz's three words may get at the truth more directly. Cancer is pain.

That person who wrote my horoscope wasn't entirely wrong. Pain can teach us things. Some people don't like it when I anthropomorphize my cancer. Probably the biggest and most unwieldy word I will ever use here, but I wanted to see if I could pull it off. They don't like it when I make my cancer into some sort of living being, with its own desires and goals and feelings. But as I think about it, my cancer, at least in the form it's in now, isn't quite life threatening. Oh, it is in the broader sense, but right now, all that those tumors are doing is causing pain and damage. So when I'm sitting awake in the dark hours, listening to the night, and I feel my muscles and tissue fighting to repair the damage, I think about that hot glue hitting the tumor cells in my spine, the heat burning them to cinders in my lung, the cold needle in my ribs freezing them to death. And I hope that those cancer cells are alive enough to feel pain. And I hope that it hurts like hell.

 

Comments (Send a comment)

Thank you SO much for todays post Leroy!
I get so tired sometimes of being told by family or other cancer survivors to "just be positive" or look on the bright side, when i'm in pain or not sleeping well, or just in a bad mood. I get sick of it. I feel i'm allowed to have some bad days, this isnt a pretty disease and it effects all of our body and minds. I know what pain and exhaustion can do to a persons mind, i was suicidal. The mind is a powerful thing. Today i am more positive and look forward to my walk, i try to think more positively, but there are still days that i want to scream!
thank you Leroy, and i truly hope you get some relief soon, it will make a huge difference.
jenn

Sent by Jenn | 7:53 AM ET | 08-14-2007

DITTO LEROY...SIMPLY ..DITTO...no one can explain like a cancer patient...it truly sucks.

Sent by marianne dalton | 7:57 AM ET | 08-14-2007

Don't mind your anthropomorphizing at all.
I never could understand all those "isms" to make pain palatable, like "No pain, no gain." Seems like a dumb way to motivate and encourage. I am sorry for your suffering and hope today is better than yesterday.

Sent by Rochelle | 8:23 AM ET | 08-14-2007

Isn't it wonderful to think of torturing those cells? Your own private Guantanamo...

Just wanted to share my good news with this amazing community. After fighting a particularly nasty anaplastic astrocytoma (brain tumor) for a year and a half, I finally got the news yesterday that I have no more cancerous tumor in my brain, and as of yesterday, no more chemotherapy!

To be perfectly honest, I was immensely thrilled by the NED news. But the "no more chemo" news was actually a bit more exciting. I know my chemo wasn't as debilitating as that of some folks, but I hated it so much.

Now we go into that weird place of waiting and scanning. But such a better place than scanning and infusing.

Thanks for letting me share my news. And thank you, Leroy, for hosting this constant community.

Sent by Jordis | 8:37 AM ET | 08-14-2007

Insomnia is good for productivity? well that is the biggest bunch of crapola I have heard! Anyone who is a parent of multiples can tell you that.

When I had my newborn twins I got less than 4 hours a night for over 6 weeks. I was in pain, tired, depressed, you name it..it was horrible! I swear Chemo was easier!

I had a side effect from one of my cancer related surgeries, an inflamed nerve..the pain was sharp and unreal. I could hardly concentrate filling out the forms at the pain clinic.

If cancer cells sleep, I would love to keep them up all of the time, wear them down, and then knock them out!

Pain Sucks. Until one lives with it on a daily basis one can have no empathy about what it is like.

Leroy, I am sorry your pain is so invasive. I hope it subsides soon.

Sent by Janis (BC survivor) | 8:42 AM ET | 08-14-2007

What can one say that makes any difference to one who's suffering as you have been Leroy? I can't say that I understand...not truly, because I've never had the procedures that you've just gone through. I can hear anger, which is certainly understandable, and frustration with the situation that you're in that requires such drastic measures to keep the cancer at bay. I just know that you're giving voice to a lot of us who don't have the public forum that you as a journalist have, or the talent to express what is happening to you so eloquently. You've never mentioned any thoughts about this, but I know that over the many months, lots of members here have expressed the hope that this blog will be made into a book. I think that if such a book were made, it'd be a great addition to the curicula of nursing, physical therapy, and medical schools. Speaking as a nurse, it's difficult to truly understand the suffering that some of our patients endure, and the effects that that has on their lives. This blog provides great insight into that world.

Sent by Nancy K. Clark | 8:50 AM ET | 08-14-2007

Leroy: Oh how I feel for you today. I saw what pain did to my husband, Burge, and I understand why he started watching mindless TV shows, hours of Cops, Jerry Springer, Mory! He said it was just too hard to keep his mind on reading, the news, Discovery or other interesting programs.

I've said a prayer for you today. Hope that little light brings a moment or two of peace.

Nikki

Sent by Nikki | 9:02 AM ET | 08-14-2007

"Cancer IS pain" both physical and emotional. It is sneaky and can come from the treatments as well as the cancer itself. It is difficult to take medication to help the pain as it can cause more problems but no one should have to suffer pain. I have found that I am a better person to be around if I take my pain medicine and can also do more so it's worth it to feel better. You are wonderful to share your pain with us as no one who isn't in cancer world can truly understand. Thank you for writing when you are going through this.

Sent by Vicki (FL) | 9:06 AM ET | 08-14-2007

I'm with you - I hope those damn cancer cells not only feel the pain but get the message that they are on their way out, if not already gone!

Sent by Kay | 9:06 AM ET | 08-14-2007

Dear Leroy,

Once again, I am very saddened by all that you are going through both emotionally and physically. You have to know in your heart that our thoughts and prayers are always with you and Laurie. But, unfortunately at times like this thoughts and prayers can only help to some degree.

My husband and I are also going through our own private hell. Yes.........."Cancer Sucks" There, I've said it! And it feels great! It is a Beast! It breaks my heart to watch my husband try and fight this terrible battle every day with very little positive results.

At one time our social calendar was full of happy events. Now our social calendar consists of chemotherapy, CT Scans, Pet Scans, MRIS, oncology consultations, blood tests, primary care consults. It' like having a full time job!

So........yes, Cancer hurts in more ways than one.

Sent by sasha | 9:16 AM ET | 08-14-2007

Leroy, you mean comments like "When life gives you lemons, make lemonade." Sometimes, it makes me feel better to hurl lemons like grenades at the offending issue (figuratively). Anger is such a wonderful human emotion when released. As far as the humanization of your cancer ... you bet; it is part of you. So pull up your cranky pants and start today with the knowledge you have all day to assess and create what you are going or not going to do. Take a nap. Night listening sometimes can be your best illuminator. Congrats to Jordis!

Sent by Pat Zalewski | 9:19 AM ET | 08-14-2007

'morning Leroy,

Cancer is pain. The first comment most families make when confronted with the diagnosis of cancer is, "I don't him/her to suffer." Of course they are referring to the pain that usually accompanies the process.

Healing also is accompanied by pain, sadly but true. It is the body trying to fix itself.

Leroy, Take you pain meds if you feel you need them, especially at night so you get that well needed rest. We will continue to support you as you support us.

Sent by Susan Chap | 9:23 AM ET | 08-14-2007

Leroy, I am so sorry that this pain and suffering are so intense and long lasting. After any surgery or procedure, the pain seems compounded because we don't know when it will end or what it will do next. But eventually it does get better, at least for a while, and I hold that light at the end of the tunnel vision for you in my heart.

Sent by Karen Q. | 9:26 AM ET | 08-14-2007

(sorry if this is a repost... Problems submitting)
Leroy

It is interesting to watch your attitudes change in your writings as you deal with your cancer at various times. My wife and I have gone through the same with hers.

Sometimes we are focused on the spirituality of goodness, willing the body to heal and repair, willing the mind to stay positive, pulling us forward to understand and deal with this malady the best we can. Focusing us to be the best people we can be and to get the most out of every day.

Other times we just want to kick the crap out of cancer.

I know many in this community feel strongly about both approaches. I don???t think it is a matter of a right or wrong way to look at it. It seems to depend on the situation. As JL said, ???Whatever gets you through the night.???

Keep pitching and thanks for sharing.

Sent by Steve | 9:27 AM ET | 08-14-2007

It means so much to me to read your words every morning. In all your pain you are able to pull it together and describe even your worst experiences so eloquently.

I remember just a few weeks ago laying in bed thinking that I couldn't imagine any possible reason to live with the pain I was experiencing. I got past it thanks to the pain meds and the radiation, but it was excruciating.

I have always believed that even in the worst experiences we can eventually find some gift or at least a positive lesson. You are my gift Leroy. And I am sure I speak for all of us. Thank you once again.

Sent by Laurel M. Jones | 9:28 AM ET | 08-14-2007

Right on, Leroy! I totally agree. Make those cancer cells regret they entered your life. I struggle with the relentlessness of it all. It seems that as soon as I get one thing under some kind of control, there are two more issues to deal with---and most of them hurt.

Sent by glenda | 9:29 AM ET | 08-14-2007

Hi LeRoy,

I so appreciate your candor. Being a cancer survivor (or thrivor) as I heard someone else mention once I can truly appreciate ALL you have to say. Although, my breast cancer did not metastize I know the felling of "it's arms tightening around us." It truly is with us everyday no matter what.

What I really wanted to do today was not ramble on but to send you a GENTLE cyber hug.

Peace LeRoy,

Mary Jo

Sent by Mary Jo | 9:32 AM ET | 08-14-2007

Just as people in combat years ago can't speak about it today, that is what cancer did to us. It took Joe in the cruelest meanest way and I will never be over it.

Sent by Irene | 9:42 AM ET | 08-14-2007

You already know your cancer cells hurt and feel pain. Unfortunately, since they are your cells, the pain they feel is your pain. I always found it ironic that in order to kill the cancer cells we have to kill part of ourselves. I think that may be why the treatment is often worse feeling than the disease. Until the end, that is.

Sent by Stephanie Dornbrook | 9:44 AM ET | 08-14-2007

A little revenge would be sweet.

Sent by Lisa | 10:04 AM ET | 08-14-2007

Sometimes I have to read and think then come back and leave a message.
All I can say is I understand in some ways.
I can understand the feelings about cancer..but the procedures thats a tough one.
I certianly have empathy and compassion when I read here.
Pain oh yeah..I get that. Sometimes I think those not in the cancer world do not want to understand that part of it.
the ones who ask are so dam special.

I don't know I am dealing with some wicked neuropathy pain at this point. Drugs are not doing the trick and heading for the pain clinic today for the first time. This isn't a hand and feet thing like most..but an ulna nerve thing that they don't see much of. So its all up in the air.
So I guess its a holding pattern here to. All I know at this point my funny bone isn't funny at all.

Sometimes not sleeping is productive some of my best art work comes durning that time..but I really hate missing sleep..

Wishing you less pain Leroy and a better day.

Sent by Kerry | 10:08 AM ET | 08-14-2007

Leroy,
I want to come visit your cancer cells and beat them up too! Bam, Bam, Bam!

Sleep deprivation and pain are an agonizing state to be in. This will pass Leroy, hang on, and believe it will get better.

I go in for chemo #5 tomorrow. 8 1/2 hours of toxic drip into my body. I will think of you and your strength and perseverance. You give me hope!

Hugs to you today..... Carolynn

Sent by Carolynn Dubicki | 10:26 AM ET | 08-14-2007

Touche!

& Jordis, wonderful news -- congratulations!

Sent by Marcia | 10:28 AM ET | 08-14-2007

Dear Leroy,
I am an 8 year survivor of advanced breast cancer, diagnosed at age 47. I am doing well for now. The year I spent undergoing treatment was a year of insomnia. I believe it caused an altered state of consciousness (add extreme fear to lack of sleep)and I no longer recognized myself. On the outside I seemed normal to others minus hair, etc. but on the inside I felt, well...kind of crazy. The nights were the worst. I pray daily that you find comfort and strength. Joshua 1:9 helped me through the worst of it. Jane

Sent by Jane | 10:28 AM ET | 08-14-2007

Leroy, you dear, sweet, honest man! What hell you are going through. I, personally HATE the expression "it sucks" To me it is one of the most profane expressions. However you said it right when you said this morning, "CANCER IS PAIN" That says it all and oh how I wish I could wish away your suffering. Maybe your body is reacting to a little too much, in too close a span of time? Maybe it needs some time in between to re-coup and regain strength. May each passing day get better Leroy. Thank you dear friend for keeping the communication coming.

Sent by Jeanne C Rakowski | 10:29 AM ET | 08-14-2007

Sleep.
Ah. Remember when we could sleep? Seems a long time ago. That's what cancer has taken from me. The other night I was watching a movie and the grownup asked the kid, "What do you dream about to help you fall asleep?" I laughed and turned to my husband, "I dream about falling asleep and staying there."
Lack of sleep add to depression and also steals productivity. Whoever talked about her husband watching stupid TV show rather than reading--I guiltily and totally recognized myself in your sentences! Mid radiation and post surgery, I was having a good day if I could get through work and make it to the couch. There was no sewing or knitting or reading or cooking or gardening or talking with friends or taking a walk. There was just inertia.

And the combo hits of pain and no sleep? I, for one, am amazed that you crank out this column five days a week. I am grateful and I am awed.

Sleep WHENEVER you can. Take those painkillers and keep your imagination (especially the part where you see the cancer cells suffer and die) active.

You are right. Cancer is pain.
As always, best to Laurie and all who care for you. I look forward to your perfect words every morning.

Sent by Robin | 10:32 AM ET | 08-14-2007

Sorry you are still in pain. Are you taking your pain meds? Have you thought about taking Lunesta or something like that to help you sleep? Just a suggestion. It worked wonderfully for me. Take it easy Leroy, this too shall pass. TO: Jordis, I'm so happy for your good news!!

Sent by Ruth White | 10:33 AM ET | 08-14-2007

Good Morning Leroy and All,

Leroy, I too, am sorry for the pain that you continue to experience. I would love to put on my pointed toed shoes and help you kick the crap out of those Cancer cells. I wish we could all have a "Kick Cancer Party!" Wishing you strength to get through this!!

Congratulations Jordis!! Your news is indeed wonderful!!

To All, Peace, strength and hope!! God Bless!

Eileen Pruyne
Charlotte

Sent by Eileen Pruyne | 10:45 AM ET | 08-14-2007

Though I am not a patient as a gift to my cancer spouse I did get to treat him to a recliner not a cancer chair but a recliner made from the softest of materials, a microsuede fabric that just wraps around & hugs you or as we imagine is close to being seated in a cloud. Extra special treat as a child he was not allowed to sit in his parent's recliners ! I a decorating snob had resisted any attempts to purchase an ugly recliner in our home for 29 years! Never too late to learn that styles have evolved and perhaps you may want to treat yourself (s)...
As you may have guessed in the family we all fight for the chair when available and the dogs are not allowed to complete!

Sent by Cyn | 10:54 AM ET | 08-14-2007

Today the sun is shining and the birds are singing.....God is all around....That is helping to drive the memories of yesterday's chemo room away....please stay strong for those of us who love you. Peace and Prayers

Sent by Teresa in WV | 11:02 AM ET | 08-14-2007

Dear Leroy,
I totally feel for you. Until you have experienced cancer you have no idea how much it hurts. It is hard for people to understand that when you are in the grip of pain you can't imagine it will ever go away and you forget what wellness feels like. Add insomnia and that is just down right depressing. During the painful periods I can never sleep and I get pretty darn weepy. I am praying for you and all of us who are suffering with cancer. Cancer is pain!

Sent by Martie | 11:04 AM ET | 08-14-2007

This forum you are offering Leroy should be Nobel Prize consideration. It allows so many people to vent and come together even though it is due to a horrible disease. Thank you once again. Reading the comments from other folks with cancer helps me to understand a little better what my son is experiencing inside that he is unable to verbalize. I read awhile ago when he was diagnosed that cancer is a very isolating disease for the person that has it. Thanks for giving people a place to not feel so alone.

Peace out Leroy.

P.S.Congratulations Jordis. Great news!


Sent by Judy Voller | 11:05 AM ET | 08-14-2007

Hi Leroy,

I had heard you on Morning Edition several times before finding the lump on the side of my neck. That's when I started reading here in earnest and continued once I was diagnosed with Hodgkin's lymphoma (early April). The timing of the Discovery special couldn't have been better; I was in the thick of it then. Although I've recently gotten good scan results and am *hopefully* on a path to remission I still feel pain frequently and have sleeplessness every night if I don't take my medication. I never knew the things that treatment could do to my body and I can only imagine that it's much worse with all you've been through. It's inspirational to read it though and I'm glad that you keep doing it.

All the best, Lisa

Sent by Lisa P. | 11:33 AM ET | 08-14-2007

Hi Leroy, another take on the pain: I've been in a lot recently and sometimes the pain-free days are worse. Because then the real battle ,for me, begins. For me right now cancer is desolation. The accepted stats on my disease give me maybe a year if I can tolerate the remaining treatment options. So probably that apricot I ate off the tree yesterday was my last one. And those August monarchs flying in the garden are my last ones. And the firewood I finished cutting this week,well, that was the last time. The battle for me is to not be defeated by those countless losses ticking off each day. That is the only defeat cancer can have over me ;and I WLL NOT LET THAT HAPPEN. I wish we could all someway join hands and say "Cancer, you you might take our lives, but you cannot defeat us!"

Sent by Ron | 11:35 AM ET | 08-14-2007

Leroy,

I am so very sorry you are hurting And I'm sorry for your partner who has to watch you hurt and not be able to do much.Cancer is pain of some sort for everyone involved. As for its supposed "merits" - like being stronger, appreciating life more, no pain-no gain,I wonder if those remarks were written by people with cancer or by healthy philosophers?

Sent by Diana Kitch | 11:42 AM ET | 08-14-2007

Leroy, Sleep was a wonderful invention, but who ever talks about the lack of sleep. Certainly cancer patients do. I lay awake thinking about death, or how my family will do without me, or will I make to finish my next project. I know where you are, don't stay there for too long, it is not a nice place. Stan

Sent by Stan Wozniak | 11:52 AM ET | 08-14-2007

For you I hope it does hurt like hell! And for you I pray for peace!

Sent by Pat Beach | 12:07 PM ET | 08-14-2007

Yeah and thumbs up for Jordis!!! Leroy, peace to your soul, body and mind today in any way you can grab it. Positive energy is being sent your way from all over. You can just feel it everyday within the spirit of this blog.

Sent by Judy | 12:08 PM ET | 08-14-2007

Dear Leroy,

I've been wanting to write in, but have been at a lost for words. Just when you're feeling like hell's half acre, I'm starting, for the first time in two years, to feel like my old self. All outward signs of my cancer are gone. And, apparently, all inward signs at this stage. Last night when I was running, a young man, military, judging by the condition of his body and the cut of his hair, whizzed past me, nearly bowling me over. I wanted to shout, hey, 52-year-old woman with cancer, here, a little respect, but then I realized that he thought I was just another runner, and that made me smile. Can I feel real, real bad for you and at the same time feel real, real good for me?

I found that when the pain from the Taxotere was intolerable, Atavan helped more than anything. I was able to relax my muscles more and that helped relax my entire body. I had pain medication, but after a trip to the ER caused by one of the more notorious, plugging side effects, I tried to limit them. Also, my body started building up a resistence to them and I was having to take ever increasing dosages to get any relief. How about hypnosis?

I realize this post is sort of rambling. All I really wanted to say is hang in there.

All my best,
Mo Spikes

Sent by Mo Spikes | 12:14 PM ET | 08-14-2007

Hi Leroy,
I'm so sorry you are hurting. I hope your pain goes away soon. I realize medical marijuana may not be an option for you, but for my young son, who has Crohn's Disease and is in continual pain, it does alleviate the pain and make it so that he can enjoy life a little bit from time to time. The doctor didn't want him to use prescription pain medicine as he easily is addicted, and so we found medical marijuana on our own. It has literally been a miracle drug.
I read your blog daily and think of you off an on through the days - hoping for your recovery and life enjoyment.

Kind regards,
Kay

Sent by Kay Howey | 1:34 PM ET | 08-14-2007

Hi Leroy,
I recently started reading your blog. I just graduated college and will be studying holistic medicine in graduate school, my true passion. Yesterday I came across an herb that is gentle, non toxic, and great for chemotherapy patients. Please ask your doctor about, or consider taking, "Astragalus." It helps restore damaged immue systems.

If possible, let me know if it helps, or what your docs feedback is.

Hoping for your healthy recovery,
Ali

Sent by Ali Hatcher | 2:12 PM ET | 08-14-2007

I don't know what to say. Maybe just that you are right, those tumors are wild, destructive, procreating endlessly for no purpose other than to kill their own host. Ungoverned, unchecked, they are true chaos, and in my mind, pure evil. I hope too that they felt it. Hugs

Sent by Alycia Keating | 2:14 PM ET | 08-14-2007

Leroy,

You are a true inspiration to people living with cancer. You hit home on so many points. I am also a cancer survivor.

I had testicular cancer, surgery and 4.5 weeks of radiation treatment last year. I cannot imagine the pain you have faced, but I do understand what sits in the back of a cancer patients mind. Before I educated myself about cancer, I thought I was going to die. I quickly learned that cancer does not always mean death, but it does mean pain.

I did get sick from my treatments, but my biggest problem was not running to the restroom 10-12 times a day or felling nauseous daily. It was a metal issue.

Knowing I was going everyday Mon-Fri to get the treatment in my pelvic and abdomen and getting sick and losing weight was hard, but I did my best to tell myself I was doing this to eventually get better, to live life with my wife and daughter. I had so much to live for.

The ride from work to the radiation treatment center was hard. You do not know how many times I wanted to pass by the building so I could stop the treatments, but I showed up everyday 6:00PM. Knowing we have to go through the pain to get better still gets to me.

Leroy - you, Lance Armstrong, Elizabeth Edwards, Tony Snow and all other cancer survivors inspire me to ensure I do all I can for people living with cancer.

Sent by Brian Dowd | 2:45 PM ET | 08-14-2007

What an image!! Cancer cells writhing in agony. I love it!! Thank you, Leroy. You sure do know how to cheer a girl up!!

Sent by Anita Solomon | 3:00 PM ET | 08-14-2007

Hi..this is my first time sending a comment...I'm suffering from stomach cancer and am in the middle of treatment. Your posting today is powerful and right on target. As one author said, being in pain is the loss of fundamental coherence about one's sense of self and the world. You capture that beautifully, especially about pain and sleepless nights. Thank you so much for your powerful articulation!

Sent by Michael Mendiola | 3:24 PM ET | 08-14-2007

Sorry to hear that good, restorative sleep continues to be elusive at best and that pain is a constant companion. I do continue to pray for relief for you as well as all of the bloggers here at this special place.

As for anthropomorphizing your cancer...do whatever it takes to get through each day and night. There is no one way or right way to fight the beast...only the way that is best for you!

Visualization can be a very powerful ally in this fight. I also use accupuncture to help me with pain. It works so consider it! I take supplements to help my immune system fight. I view complementary medicine as another ally to conventional medicine to use as needed to help me. So if anthropomorphizing (a great choice of words, Leroy) cancer gives you an edge in this fight, use it as is necessary. Remember, there is "no one way to fight".

Blessings and prayers.

Sent by Al Cato | 4:17 PM ET | 08-14-2007

Dear Leroy,

I read your post today, and want to tell you that your ability to "show up" everyday, here, right now, reminds me of my mother. This is a good thing. :-)

I'm 46, and life has thrown big punches at her on a sometimes daily basis, and from my adult perspective now, I am often awed at the courage it took for her to get up, and go on with her life, everyday. For her that involved a 8am-5pm job, being the organist at her church, raising 2 children, tending to husband, house, etc.etc., and everyday, she did, and still does, it. Even through her illnesses and cancers.

I do not know how she visualizes her cancers, but she hasn't stopped her life for them. Right now, she, her doctors, medication, and prayer, not necessarily in that order, hold the cancer cells at bay.

My hat is off to both of you. My hat is off to Laurie, too. It's not easy showing up for all this stuff you are dealing with everyday.

Glad you are able to do it.

Thank you,
Kim Blankenship

Sent by Kim Blankenship | 5:00 PM ET | 08-14-2007

Dear Jordis,

I am so happy to hear your wonderful news. May you remain NED for many years and may God bless you.

Sasha

Sent by sasha | 5:35 PM ET | 08-14-2007

Howdy, All!

Leroy>
Regarding the horoscope: Ridiculous is right! We think you need to find another horoscope writer. *laughs*

Kay>
Thank you for your comment, which I find extraordinarily relevant to the current discussion of pain relief. Maybe, with more comments like yours, other states will follow suit and provide it as an alternative.


In our corner of the CancerCommunity, radiation will begin tomorrow, as will our new courses of study regarding its effects and effectiveness.

Leroy, today???s post made me think of other adages, and another (which I find as ridiculous as those in your horoscope) about pain came to mind: ???You have to suffer to be beautiful.??? If _that???s_ the case, we???re all gorgeous!

Be well!

-dp

Sent by dp | 6:31 PM ET | 08-14-2007

To Jordis,

CONGRATULATIONS on your wonderful news.

Sent by Susan Chap | 6:34 PM ET | 08-14-2007

I am fortunate that my chronic leukemia had not caused me much pain over the years. It does cause me anxiety, dread, and apprehension. Every cancer patient knows what I mean when I say waiting for biopsy results or lab tests is very nerve-wracking. I know you know what I mean.

Some people say that they are glad they got cancer, because it takes them from the insignificant and the inane and pushes their faces into the idea of their mortality.

I'm not one of those people. The loss of friends I've met with CLL, the progression of the disease, the sleepless nights, the worry my family has for me.

What's good about that?

I say, ignorance is bliss. Let my life be unexamined. Let my mortality be unconfronted. Let me blithely head down life's path with nary a care.

I know what's around the bend, really. I just want to postpone it as long as I can, and I want to get past that bend quickly. And painlessly, that's for sure.

Sent by Scott S. | 7:05 PM ET | 08-14-2007

Dear Leroy,
I live on an island and when things get bad, i visualize walking the beach----the shells, gulls, rolling surf and the sea smell---- it helps. Please think of the beach---and walk with a loved one.We all have our arms around you. Peace to you , dear Leroy. Thanks for your blogs.

Sent by Dee | 7:06 PM ET | 08-14-2007

Leroy,

I'm so sorry the pain is bad enough that it is keeping you from sleeping. Not very enlightening or creativity enhancing in my book! I know pain meds have their own problems but don't try to be too stoic about this--they have some good strong meds these days and the break they give you from pain, if your pain is that bad, will be worth the constipation, fogginess, etc. that they sometimes bring.

You're in my thoughts--and I like thinking that the cancer cells are hurting worse than you are right now!

Sent by N.R. | 7:10 PM ET | 08-14-2007

Leroy,
I'm glad you are feeling no worse and maybe even a little better. Although it sounds trite, one day at a time is all we can hope for. As the caregiver to my husband, I know how the cancer becomes a living, breathing thing and don't ever feel sorry for putting that message out because it takes over your life and dictates everything you do...on a bad day. Keep your chin up !!

Sent by Kathie | 8:38 PM ET | 08-14-2007

Dear Leroy,
I am sorry that you have been in so much pain lately. I really hope that it's starting to abate a little by now. I also hope that all the procedures you had last week will have the desired effects.

I'm in pain right now, too - a different kind of pain. I fell down the stairs and broke my ankle. I'm now in a cast and on crutches and my whole body hurts. But, I tell myself- it's only a broken bone; it's not cancer.

Best Wishes.

Sent by Marilyn | 8:48 PM ET | 08-14-2007

Dear Leroy,

I am sorry to hear that you are having so much pain. I was very optimistic that the pain would be less enduring than chemo effects.

On a humerous from the distance note, when I was on chemo round six of protocol number two, after lots of other stuff, my boss dragged me into his office to discipline or fire me because I wasn't laughing and giggling enough - the way a happy employee would be. My response? Well, I just couldn't believe it. And I was in extreme pain. Some people apparently just can't imagine... let alone understand.

Here is to your pain leaving you quickly, and taking those badly behaving cells with it. A short term loss for a long term gain.

Sent by Lilly T. | 9:18 PM ET | 08-14-2007

I hope your pain remits and sleep comes soon. It will be so sweet when it does. Your honesty in sharing your journey is immensely helpful. No one know like another cancer patient. Linda

Sent by Linda | 9:33 PM ET | 08-14-2007

I am speaking from the standpoint of someone who has watched a person they love fight this disease for many years now. Despite all she has gone through, I don't believe that she would ever speak to an audience of other cancer survivors about all the pain they are likely to face. What does this accomplish except the spread of fear? People look to this online community for support but these comments can only be filling their hearts with dread. Lately reading this I am afraid and very sad about the future. I pray for all of us, cancer survivors and family members, that we can have some measure of peace and hope.

Sent by "Afraid" | 10:56 PM ET | 08-14-2007

Dear Leroy,

My prayers are with you in this difficult time.

I don't think there is anything worse than to be forced to deal with pain that is intractable, never ending, and it affects every part of your life, whether others believe it or not, and there are many who think it is in your head or something you can JUST DEAL WITH and IT IS NOT!!! When I wrote yesterday about what I endured when I broke my neck, I don't think I have ever come as close to wanting to end my life as then, it had reached the point where I didn't think I could go on another day. I was so opposed to using narcotics for relief, and I tried for many, many months to manage this with anti-inflamatory medications, even injected myself twice a day and, believe me, that was no fun at all. Then the night came when I stood up and I fainted. When I came to, I was in a pool of blood, the medications were so harsh and didn't work, so they caused my stomach to erode and I almost bled to death. Then I tried to endure it with no medications at all. Finally, I consulted a specialist in the management of pain, and he explained how I was actually damaging myself more by denying myself the pain relief I needed, and told me what had been discovered about medications when pain is "real" and the medicine is not abused, and there was no reason to keep torturing myself. I was started on the medicine, and monitored very carefully, and the pain was managed to the point where I had quality of life I had not experienced in a long, long time. This changed my mind about my staunch opposition, and I would never suggest that anyone suffer the way I did because of my fear of "addiction". The physician told me in the world of pain management they do not even use that word, and to lay aside the guilt I felt about taking them. When I did, once again I was able to give my body a rest from the pain and allow it to heal. I think it was a turning point in my life, and I would never judge a person who suffers that type of pain for taking medicine, even though they do have their side-effects, but at least it allowed me some quality in my life.

People who have never lived through this can be so cruel and judgmental, saying things like "JUST LEARN TO LIVE WITH IT", but there are times when that becomes impossible. Some have said to me "Pain cannot kill you", but it certainly can, and almost did, so if there is anyone out there who is on the fence about this decision, I hope you will not have to suffer like I did before I sought help. If the time comes when I have to be hooked up to a pump, perhaps this was the lesson I needed to learn to not be so harsh on myself and take the medication and live with as much quality of life as possible, and I would never want anyone to suffer needlessly like I did because of my false pride, and my mistaken impression of the image I would portray to others. They are not living it, and I choose the most comfortable road possible, if and when that time comes.

Love, Briana

Sent by briana | 11:50 PM ET | 08-14-2007

Just curious - did anyone see the article in the New York Times health section - I think it was called "Surviving the bum rap." Maybe I'm just in a bad mood. My illness has made me appreciate things more etc. but at the same time, I sort of get sick of the notion that living with or surviving a life threatening illness is this sort of "happy world" because I'm now such a better person. Hmmm...having a hard time explaining this. It isn't that I'm horribly unhappy, or haven't grown - just sick of the expectation that now I'm somehow more enlightened. I just sort of wondered if anyone else had read the article, or the book referenced (I haven't read the book, but will look for it). How did you feel about it? Maybe I'll feel better about it in the morning.
Heather from Kansas
Hermansky-Pudlak Syndrome/Pulmonary fibrosis

Sent by Heather Kirkwood | 1:16 AM ET | 08-15-2007

Leroy, if I may call you by name, some days your column makes it possible for me to get through the day, When my once-closest friend told me that I should read the book that explains how I drew cancer to me by my attitude and is angered when I tell her that I don't want to read it, I look to you and the community who really know what cancer is.

And it is to me, also, an entity.

Cancer is pain, cancer is betrayal, cancer is loss, cancer is isolating.

Your blog provides a sanctuary where no one feels the need to lecture about how to lucky I am or tell me how to react to the cancer.

And I am lucky. I have a wonderful surgeon and his nurse. a wonderful oncologist, loving, supportive friends, and your blog that help me deal with the pain, the betrayal, the loss and the isolation.

I really have not had debilitating pain, but what I have had, gives me respect for those who have had it. I had a modified bilateral mastectomy and face a second surgery for a hematoma and a seroma and know that is so much less than most of you. No chemo, because no one really knows if it will decrease my genetically-influenced higher chances of distance recurrence. I sit here awake tonight, kept from sleep by cancer; other nights I have fallen asleep, exhausted by CANCER and its companions who are always with me. (I was fully awake only for Lance???s part of the special on cancer; I hope for a rebroadcast.)

Every day there seems to be a new loss: my husband of almost forty years who said he was repulsed by me with breast cancer who believed it was worse for him and who could not be supportive; my friend who believes I drew cancer to me; the church building that has been in my life for forty years; the violets left by a friend who died that I nurtured for ten years allowed to die while I was receiving treatment. Sometimes the seemingly little things dwarf the loss of my health, my breasts.

But I feel lucky, My dog survived brain surgery and greets me each morning, go for long morning walks, friends call and chat, I read your blog and, sometimes, the comments and feel connected to a community who understand.

Truly, I am lucky. I rise each day, determined to face down my cancer and back it into a corner, I read your blog and feel inoculated against the slings of outrageous fortune.

Thank you for rising each day to compose it and thanks to all of you who write. Please excuse my verbosity; I have not said as much publicly since my diagnosis, in that time that seems almost another lifetime.

Leroy, peace, love, and relief from pain.

Sent by Earlene | 4:12 AM ET | 08-15-2007

After 2 surgeries and 18 chemo infusions for Stage 4 colon cancer, I was told two weeks ago, all clear for now on the PETscan & come back in November for an oncology visit. It is like being let out of school for the summer, or being gently nudged back across the line to the world of "healthy for now", which is, face it, where we all live most of the time anyway. I lived with discomfort during the surgeries and chemo, but not nagging pain, so this may have made a difference in how I regarded my cancer cells. I had one person tell me early on that they imagined the chemo as arrows zinging into and obliterating the cancer cells. I took a different approach. I decided they were living organisms with as much will and desire to live as I had. I decided to try to reason with them. "Look", I told them, "if you continue on this way, you will kill both of us. You will kill me, your host, and guess what happens to you next? If you die now, at least one of us lives. Wouldn't that be better in the overall scheme of life?" Could I ask a cancer cell to sacrifice itself for me? I held my hands over my liver, and offered the cells a deal. I told them about the world outside my gut, I described the blues of the ocean and greens that could be seen in Hawaii. I promised them I would hold their hands and launch them into the universe, with a hope they could come back as something else with a chance to see life outside my liver. I ran with them holding their hands, and together we threw ourselves into space and I let them go. I grieved their deaths inside my body and thanked them for their sacrifice. I did this each night and then fell asleep. Who knows what works in this struggle, but for now, I am well and back from the frontlines and feeling grateful.

Sent by Marlou Imes | 11:34 AM ET | 08-15-2007

you are an inspiration, carry on

Sent by mary ann | 9:31 AM ET | 08-18-2007

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My Cancer will be updated Monday through Friday with posts and commentaries from Leroy Sievers. A journalist for more than 25 years, Leroy has worked at CBS News and ABC News, where he was the executive producer at Nightline. You can follow his story through this blog, his weekly podcast and his monthly series on Morning Edition.

 
 

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