Eliminating the Tumor, Once and For All

 
“I had joked before about becoming a bionic man. Well, I'm not joking anymore. ”
 
 

Well, at least we think we finally know what's causing the pain I've been feeling. My last scans showed something strange on the vertebra we had glued. The consensus now is that it's tumor cells. For whatever reason, they survived the hot glue treatment that should have killed them. They may just have been growing on the outside of the bone. In any case, they're dangerous. My doctors think they could start having an impact on my spinal cord in as little as a month. That's very bad.

So it looks like I'm going to have back surgery. I had joked before about becoming a bionic man. Well, I'm not joking anymore. The surgery would remove that vertebra and replace it with an artificial one. The doctors will look at the vertebrae on either side of the one in question, too.

I think this is going to be a big deal. Not that the other procedures haven't been. But the recovery time for this one is probably going to be about eight weeks. So once I have this, I may be away from the blog for a little while. We'll have to see how it goes.

I'm getting ahead of myself. The good news is that this surgery will eliminate that tumor once and for all. As painful as back surgery is, or at least as everyone says it is, we hope this will end the pain that has kept me from sleeping the past several months. And that will be a huge relief.

I'm still trying to process all this. I'm meeting with the surgeon this morning, and I'll know more then. This stuff just never ends.

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Thank you for sharing this news, Larry, as always with balance and grace. You and your docs will be in my thoughts today. Sending you all wisdom~
LSF

Sent by LSF | 7:26 AM ET | 09-26-2007

Leroy,
I'm sending you and all those close to you my thoughts and prayers for energy, strength, wisdom and clarity today. I know days with information and decisions are draining.

Sent by Rhonda | 7:32 AM ET | 09-26-2007

Sorry Leroy to hear this news. Sending positive vibes your way for your appt. with the surgeon today.

Sent by lisa | 7:53 AM ET | 09-26-2007

Well, your post this morning is a perfect example of good news/bad news. It's great that the source of your pain has been identified, but I'm sorry that you have to go through back surgery to eliminate it. As I've said before..."Cancer, the gift that keeps on giving." Best of luck to you Leroy, and to all of us.

Sent by Nancy K. Clark | 7:53 AM ET | 09-26-2007

So very sorry to hear the recent news. Please, focus on what you need to do medically and emotionally. The readers here will support you with thoughts and prayers as well as for all those who also are on the same journey as yourself.

Best wishes....


Sent by Leslie | 8:00 AM ET | 09-26-2007

Leroy
As painful as this will be...at least you have options, options that may make life again good for you. Be strong my friend you will endure.

Sent by Patricia A | 8:09 AM ET | 09-26-2007

The bionic man, circa 2007! Guess we'll see you on TV again, eh Leroy? Practice your slow motion running to funky music before you go in for surgery.

Hey if you can't blog for a while we will miss you but the great thing is that this terrible pain will be gone in time. You're in a lot of peoples' thoughts and prayers.

Make it a good day.

Sent by Art Ritter | 8:10 AM ET | 09-26-2007

Your bravery, whether you want to term it that or not, continues to amaze me. Great luck on the upcoming back surgery. Killing the tumors, one a time...keep up the fight!!

V/R
Bill Combs

Sent by Bill | 8:10 AM ET | 09-26-2007

Hang in there Leroy. We'll be thinking of you!

Sent by Karen | 8:15 AM ET | 09-26-2007

You will indeed be well on your way to becoming the bionic man after this surgery! The surgery sounds simple as you describe it but we all know that back surgery can be a test for both the patient and the doctors. After you recover from the surgery, hopefully your pain will be gone! The surgery is not an easy one for you but we'll hope and pray that the intended results are achieved.

As always we'll keep you and Laurie in our thoughts and prayers. While the blog is important for so many, it is more important that you have time to fully recover before resuming it. Don't feel the pressure to come back before you are ready. We'll still be here!!

Prayers and blessings as always.

Sent by Al Cato | 8:27 AM ET | 09-26-2007

Leroy I am so happy that you have a plan for pain releif but so feel your frustration that the cancer experience is battle after battle after battle for you.

I am sending you postive thoughts and prayers today for strength. I am sorry you feel so worn down by all of this.

Of course anyone would but I am still sorry just the same.

Prayers for peace, strength and healing for you.

Sent by Melissa T | 8:29 AM ET | 09-26-2007

leroy, hang in there. if you have to leave the blog. we'll wait and pray for you. i read this blog every single morning. very helpful. thanks so much

Sent by Sarah | 8:40 AM ET | 09-26-2007

Yes Leroy, this is "serious stuff". You sure have a wonderful way about you and I can't even find the words to express my love & respect for you!
I can only wish you the very best with whatever treatment you decide on. Please never let your optimism fail! You will survive all this and get rid of the blasted pain you have been enduring. Love & Blessings!

Sent by J C R | 8:59 AM ET | 09-26-2007

Funny car driver John Force just crashed his car at 300mph and broke a bunch of bones, and he is up giving interviews. Stephen Hawking has almost no control of his body, and he still writes books.
I am sure you will still find time to get your blog out. After all, you are so much tougher then that.
Good luck.

Sent by Brit | 9:04 AM ET | 09-26-2007

Praying for you and Laurie.

Hugs,

Lori

Sent by Lori Levin | 9:09 AM ET | 09-26-2007

My prayers are with you. A friend sent me you site and I have been reading it ever since.

I had back surgery for a ruptured disc 12 years ago and really didn't have a problem with it and have been fine since.

I'm on my third recurrence of breast cancer and am happy to have been able to go back to work after 8 months of intestinal blockages due to tumors leaning on my colon. They tell me they can't see them on any test, they found them when I had gall bladder surgery. Right now I can't eat solid meat or fibrous foods such as beans, nuts, skins on fruits and vegetables etc. I am fortunate that my husband peels everything for me and adapts meat recipes by using chopped meat (beef, turkey, chicken etc.) Hopefully a colonoscopy (they were unable to fit the scope in the colon earlier this year) will be successful and I'l be able to eat solid meats and fiber soon.

Good luck on your surgery!!

Sent by Linda | 9:16 AM ET | 09-26-2007

Nothing I say can take your pain away. Nonetheless - my thoughts and prayers are with you.

Sent by Marcia | 9:16 AM ET | 09-26-2007

Dear Leroy, Although I am glad that they have found the source of your pain, I am scared for you getting the surgery. I pray that all goes well. We will all miss you but you will be constantly in our thoughts. Thanks for sharing all that you have as it helps so very much. Love surrounds you.

Sent by Vicki (FL) | 9:18 AM ET | 09-26-2007

I don't know what to say. I'm so sorry you have to go through this. You are an inspiration and deserve only the best. May this be the solution to your pain.

Sent by Laurel M. Jones | 9:25 AM ET | 09-26-2007

Good luck with back surgery. I hope this will be the answer to the pain in your back.

Sent by MT | 9:29 AM ET | 09-26-2007

Hi Leroy,

I am so sorry to hear about the latest development but know that my prayers and thoughts are with you. Once the back surgery is done, tho, you should have immediate relief of that pain.

Hang in there,

Lianne

Sent by Lianne Friedman | 9:31 AM ET | 09-26-2007

Leroy,

You'll be in my thoughts and prayers.

Elaine

Sent by Elaine Barnes | 9:33 AM ET | 09-26-2007

Oh, Larry. I am so sorry to hear this. I will be praying for you.

Sent by Ruth from Virginia | 9:34 AM ET | 09-26-2007

Dear Leroy, Thank you for sharing the news. You sound relieved to know the cause of your dilemma and also appropriately sobered by the potential back surgery, and simultaneously glad there is a next option to stop these cells from impinging on your spinal cord. I expect everyone on the blog's highest wish is that you take whatever time you need for yourself, now or in the future, including stopping it altogether if there comes a point when you need the time and energy for yourself. You continue to make a powerful impact on people's understanding of the experience of the cancer journey. You have created a powerful legacy in this and in your other ways of being and working in the world. This is dessert time, buddy. This is the time to say "What do I want? What do I need?" and put that high on your list of priorities. You'll have much support whatever choices you make as you go along. And the prospect of being able to sleep again is huge. I am glad you have the ability to access the back surgery if you choose to. I am glad you have choices! I am glad you are you, only more fiercely so, as you weather and ride the vicissitudes cancer has added to your already-lively life. With celebration and solidarity! Sarah

Sent by Sarah | 9:35 AM ET | 09-26-2007

Leroy, I'm glad that they found the source of your pain, but I'm sorry that it means more surgery, but I'm glad that it will take care of the tumor. Sometimes I think cancer is like the Whack-a-Mole game - hit it in one place only to have it pop up in another. Hopefully the 8 week recovery is worst-case scenario, and you will be feeling better long before then. We will all survive without you, but will miss your blog terribly! Honestly, it helps keep me sane.

Sent by Gretchen Hoag | 9:36 AM ET | 09-26-2007

Leroy--my heart is heavy for you this morning. I hate that you'll be going through even more painful procedures, but hopefully this will alleviate the restless nights!!! I don't really have the words to say how sorry I am that you're going through this...it seems like when it rains...it pours! You're in my thoughts and prayers, Leroy! With love!!!

Sent by Tess from KY | 9:42 AM ET | 09-26-2007

Mr. Sievers, my thoughts and prayers are with you. My father is fighting as hard and strong, as you, against Multiple Myeloma and you inspire me each and everyday with your strength and outlook. Sometimes I read your blog and it just helps me to understand what my dad might feel inside as the patient, the one feeling the misery of cancer. Other time I read your blog and it helps me, the family member, understand things better and even get through my day much easier. It's hard sometimes, I ask myself, WHY him, WHY us, WHY ANYONE??? Your blog helps to relieve those uncertainties and see things in different perspective. At times it makes me sadder, but I think that is just human nature and the factor of wanting to take the pain away from my dad, you and ALL cancer patients alike. My love to you and my best!

Sent by Cristina Gonzalez | 9:44 AM ET | 09-26-2007

This stuff just never ends.

Truly. And not just for the person with cancer.

Quick update, since I've been absent for a while: I was in Orlando last week doing the third of seven memorials across the US for Terry. I ended up quite ill towards the end of the week, but the memorial was wonderful.

I've stopped wearing my ring, finally, partly because I've lost so much weight that it no longer fits and partly because it's time to begin moving on.

And I've developed epilepsy. I had a grand mal (aka tonic-clonic) seizure driving home from work last month and woke up in the hospital. I see a neurologist next week. And to top it all off, I believe depression is setting in...but that's not surprising.

Life goes on, though, and life still beats the alternative.

As always, my thoughts and prayers go out to you, Leroy, and all who need them.

Sent by Bruce | 9:49 AM ET | 09-26-2007

It seems like stairs in a building...you get to the top of one flight, turn the corner, and there are more stairs. Praying that this will give you the pain relief you need and deserve.

Sent by Nancy Kelly | 9:49 AM ET | 09-26-2007

Oh Bother, Leroy(as Pooh would put it)! I am sorry you have to have back surgery. I am glad, however, your docs are so on top of it and not dismissive, as some can be of even the most glaring symptoms.

You may want to install a TV on your ceiling. And up your Netflix subscription.

There are so many people focused on you, who like you, and want you to be happy and comfortable, that I hope it makes an impact. Somehow, some way, wouldn't it be nice if all the prayers and hopes and well-wishes could slow the progression of the Beast? I sure like to think it could. So I'm sending you healing thoughts and prayers, not only for your cancer but for surgery and post-surgery, whenever that happens.

Sent by Alycia Keating | 9:51 AM ET | 09-26-2007

Leroy - I am so sorry to hear about the new development, I'm sure you feel you've been hit head on by a 16 wheeler. You're right about being a soldier at war, killing off the outlaws at high noon, always looking over your shoulder. The word "survivor" doesn't even do justice. It never seems to end...
I was diagnosed with breast cancer three years ago, went for my follow-up check with the oncologist several months ago complaining about rib pain. A bone scan was ordered, they saw a suspicious "spot" at the bottom of my spine - next, a spine MRI, spot is still there. Meet with a bone specialist, they want to do a biopsy but say it's atypical. Doctor calls back, scratch the biopsy "let's do a pet/cat scan instead to further look into it". Probably happen next week, they are being cautious because the lesion is located in an iffy spot for the biopsy. You're right, it never ends - I'm thinking positive thoughts for you. Just to hear those words "at ease soldier".

Sent by teri g. | 10:01 AM ET | 09-26-2007

Oh Leroy - don't you feel like somedays, if is not one thing it is another?! I know I do. Cancer battle for 7 years now and like you I would just love to find what "normal" is now! Good luck with the surgeons, keep us posted and we'll keep you in our prayers, thoughts, whatever it is each individually do to sending you good things. Andi

Sent by Andi Arabak | 10:01 AM ET | 09-26-2007

Leroy, My hopes are aligned to your heart. I think of you every day...I am in awe of how you continue to keep us all in the loop, while you go through these major trials. You are also my "avenue" to travel through my bladder,and prostate procedures. Thanks for keeping me stronger than I really am. God bless you.

Sent by Peter | 10:02 AM ET | 09-26-2007

If memory serves, it wasn't too long ago that you were debating whether or not to buy some new pants, and now here you are looking at getting a new vertebra! What's changed, Leroy? Have you finally realized that you are, indeed, worth the effort and time it's going to take to keep you here? Because sir, you most certainly *are* worth it.

Good mojo for your pre-op tomorrow.

jj

Sent by Joan Jones | 10:22 AM ET | 09-26-2007

Ok Mr. Bionic,

I wish you well with your surgeon visit, and what he/she has to say. By the way, on Dancing with the Stars last night, 7 weeks after a total hip replacement, he is dancing.

The implants are good, so.... positive thoughts heading your way...

Sent by Sue Chap | 10:25 AM ET | 09-26-2007

Dear Leroy,
I am sorry to hear that you need a painful back surgery. However, if it ends the pain you are having and gets rid of the tumor that will be wonderful relief.
You will be in my prayers.
Charlotte in Temecula

Sent by Charlotte Kewish | 10:36 AM ET | 09-26-2007

Leroy ,
we love you....concentrate on your health...the rest will take care of itself.
love
liz

Sent by liz zimmerman | 10:37 AM ET | 09-26-2007

Leroy, just keep your head up (at least figuratively) and keep fighting. I plan on reading this blog for the next few years. I'm not a cancer patient/survivor, but, like many, I've lost several family members to it. I can't thank you enough for doing this and shedding light on what you're going through. I trust it's been as therapeutic for you as it has been for me.

Sent by Ben | 10:39 AM ET | 09-26-2007

Damn! Sometimes the hits just keep coming, don't they? It does sound like surgery will ultimately render you better off and out of pain, but the journey sounds daunting. As you mentioned recently, cancer is not for the faint of heart. Courage is essential, and you have proven yourself in that arena over and over. Hope it can be done soon so you are quickly better and recovering. As always, thoughts and prayers are with you.

Sent by Leslie Erickson | 10:39 AM ET | 09-26-2007

Double prayers for you today, Leroy.

Sasha from yesterday: My distant family told me we needed to more positive, etc. Don't listen to them, they really don't know what is going on. Just forgive them, thank them, and keep doing whatever you have to do. You, not just your husband, have Cancer, maybe not in the physical way, but in every other way. After as many years as you have been together, you are as one and you both need love and support.

Nikki

Sent by Nikki | 10:42 AM ET | 09-26-2007

Hi Leroy and All

Leroy, I am very sorry to hear that you have to have back surgery and for your having to go through the pain and angst over the persistence of the cancer in your back. It never seems to let up does it? I continue to admire your courage and your insights as we all go through this unrelenting nastiness together. I very much hope that the surgery will be successful and both tumor and pain will be gone. You are in my thoughts and prayers.

John Shippee
Atlanta, Georgia


Sent by John Shippee | 10:43 AM ET | 09-26-2007

as always ...still praying for all of us with cancer .....

Sent by marianne dalton | 10:53 AM ET | 09-26-2007

Dear Leroy,
I am so sorry to hear about your potential upcoming surgery after all you have been through. My husband just recently passed the same comment as you when he said " This stuff never ends"

I want to say something that matters or means something to you and I am struggling to find the words. But, all the words I can come up with cannot come close to express how I feel.

May God give you the strength to sustain this ordeal. As distressing as this news is, you know your entire blog family will be praying for you.

As always, prayers to you and Laurie.

Sent by sasha | 10:58 AM ET | 09-26-2007

Leroy, I don't think that there is anything more I can say that hasn't been expressed in the comments so far. I just want to add another voice of support for all you've done and will continue to do.

The recovery from back surgery these days is miraculous. My mom had major back surgery several years ago, when she was in her early 70s. The PT/OT process over the first two weeks in rehab had her practically running around with a walker. It wasn't long before she left that walker behind altogether. Only a few years later now, you'd never know she has bionic parts, too.

Wishing you and all on this site well today and everyday,
Sheara

Sent by Sheara | 11:00 AM ET | 09-26-2007

I had back surgery at Hopkins for a tumor on my spine years ago. It was painful but the drugs were good. All is okay now. You will get really good care there. Keep fighting the good fight. We are with you.

Sent by Irene | 11:00 AM ET | 09-26-2007

I'm so sorry to hear you're facing surgery, Leroy. I will pray that this will relieve your pain and that your surgeons will make this as easy as possible for you. If you find you need time away from the blog, we will understand ... but we will all remain out here in cyberspace cheering you on.

My husband had back surgery at the beginning of his cancer journey to remove a tumor. They took one of his ribs to rebuild the vertabra and also used titanium rods (on his way to bionic!) to hold everything in place. That surgery went well, but it's hard to give you a good idea of what to expect in recovery time as he had some bleeding issues (think related to the type of cancer he has - multiple myeloma) and when they went back in for second surgery to stop that bleeding they gave him 4 units of the wrong blood type on the operating table. Not something I would recommend as it led us down a very slippery slope. It may be worth considering having Laurie emblazon your gown with your blood type? A year later, hubby is in remission and walking again ... so NEVER GIVE UP, no matter what that ol' cancer beast tries to throw at you!

God bless you.

Sent by Dianne in NV | 11:04 AM ET | 09-26-2007

I hope your surgery is successful and your pain will be gone. You are in our thoughts and prayers now and always.

Sent by Denise | 11:12 AM ET | 09-26-2007

Mr. Sievers:

Do NOT lose sight of the forest for the trees...

The surgery you are alluding to is "A BIG DEAL" & frought with danger. You have widely metastatic colon cancer. If I've followed you correctly, the present vertebral body(ies) disease is regrowth in a previously treated field, that's why before the "hot glue" you were investigating additional, more sophisticated radiation procedures. (That the radiation oncologists decided to withhold due to the benefit risk ratio.)

Again, pause, take stock, ask your primary oncologist to give you an estimate of your overall disease burden. When I first wrote on 09/10/07, I asked about CEA levels over time. Is the biochemical marker of your total cancer volume continuing to rise, or has it plateaued or declined? Is this extensive, complicated procedure worth your while? How long is rehab? What chance(s) of additional chronic pain or disablity to be shackled with in your remaining life?

Vertebral bodies can be removed, replaced, additional structural support can be given in those cases where surrounding tissues, both mesenchymal & parenchymal, are healthy. Then there is a reasonable chance of achieving pain relief, preserving an acceptable level of function. This proposed procedure is beneficial in those who can commit to the long view of rehabilitation....not days to weeks, but many weeks to months & months do become years....

After I first wrote, the tenor of the blog shifted to more contemplative, I caught a clearer glimpse of your battle fatigue, your weariness, it happens to all those who inhabit Cancer World. Marshaling your resources, physical, psychological, emotional, becomes more difficult with each looming battle. Only you, not even those you trust or love, can decide when it is time to put it down. Remember, buying the ticket & taking the ride doesn't mean one has to peddle furiously downhill if there is no leveling off & distant rise to the topography. Experiencing an undulating, sustainable ride is why the ticket was purchased in the first place. Just don't be lured into "eliminating the tumor, once & for all" when the tumor is just a part of the larger overwhelming forest that surrounds you.

What alternatives are there to surgery? Is the present primary concern pain only, or are you already experiencing spinal cord compromise? Can the procedure be held in abeyance, reserved for the first sign of structural failure, a last resort? You've already acknowledged quality trumps quantity of life. Not being your physician, I can't possibly opine as to the "best" course for you, individually, I just hope those who do care for you, do so with Providential guidance.


Sent by Tom | 11:19 AM ET | 09-26-2007

Well, shoot! I know it's disheartening to think of those nasty cancer cells with evil grins on their faces, having survived the hot glue weapon you attacked them with. But at least this surgery should "take them out," relieve your pain and let you get some sleep. And it may not be as bad as you fear. I know a couple of people who had major back surgery and were surprised to find the recovery easier and faster than predicted.

Hope your meeting with the surgeon goes well. I wish you a peaceful mind and release from pain.

Sent by Doris | 11:20 AM ET | 09-26-2007

Dear Leroy,

I read your blog every day, though I never post. Today, I must tell you how much value and heart you add to my life. You are in my prayers, along with all the cancer survivors out there. May you be the person you wish to be, every minute of every day. Radha

Sent by Radha Speer | 11:20 AM ET | 09-26-2007

Dear Cyber Buddy...I have had three back surgeries. The longest was a 12 hour procedure that put metal in and on my spine from bottom on up.

Yes, it is painful BUT...the surgery eliminates the pain that caused the surgery and, once you heal, you WILL feel better!

Life is good, even with decreased mobility. You are in the DC area with access to the best doctors in the country. Their skilled hands will have you feeling better soon.

Peggy

Sent by Peggy Miles | 11:24 AM ET | 09-26-2007

I am sorry you have more surgery to go through.

I think what they do will be similar to what my mother-in-law had to have when a MRSA infection destroyed some of her vertebrae, causing great pain. She had the remainder removed and a sort of metal cage was put in their place, to protect the spine. I think we all expected this to be inferior to the bones, but we were all very surprised at how well she did with it and how it stopped the pain.

I will stay hopeful that this surgery will help you meet your goal of telling the tumors, "Hasta la vista, ba-by!".

Sent by Celeste | 11:24 AM ET | 09-26-2007

Leroy,

It's been a while since I investigated back surgery, but I know there are new techniques that didn't exist five years ago. I know you are in the best of hands. I trust that if something is doable, it will be done. Blessings.

Sent by Diana Kitch | 11:25 AM ET | 09-26-2007

I'm often amazed at how quickly your health team responds, how creatively they solve new issues, and how aggressively they continue to attack your cancer. I wish every community had those resources!

Sent by Kelley E | 11:28 AM ET | 09-26-2007

Mr. Sievers, My thoughts are with you today. This is a never ending battle. I know there is some days I just want to say I quit, but your insights always help me drudge on. Bless You, Roxi

Sent by Roxi | 11:34 AM ET | 09-26-2007

Leroy great news about the source of back pain ... those tumors are resourceful but not as good as you. Take this development as you have in the past, NEXT. Bionic is a little intriguing ... just don't end up getting yourself into some recording contract like Lee Majors who, in my humble opinion, can't sing worth squat, that is unless you have a singing voice worth sharing outside your shower. Lean into the resistence Leroy and keep going.

Sent by Pat Z. | 11:49 AM ET | 09-26-2007

Sorry to hear that you have to have a surgery. Postive thoughts always coming your way. Best of luck. We're all pulling for you!

Sent by Sandy Lathe | 11:53 AM ET | 09-26-2007

As always, LeRoy, you are in my prayers.

Sent by S. S. | 11:55 AM ET | 09-26-2007

Hi Leroy

I predict that you will have less pain after the surgery than you've been having in the past few weeks. I also think you'll be back to writing this blog in no time at all.

But Leroy, if you cannot write for a few days or weeks, could you have Laurie pen a note for us because we'll be thinking of you and would appreciate any news. Just imagine- 1 surgery equals many pain-free months or years.

Sent by Linda H. | 12:00 PM ET | 09-26-2007

Leroy, If this surgery will eliminate the tumor once and for all, then I think its wonderful. I have a titanium cage and rods in my spine, you may be suprised how many times I set off alarms in the stores : ) We will all be praying for you throughout this next phase in your life...

Warm hugs,
Robin

Sent by Robin T | 12:02 PM ET | 09-26-2007

Your undaunting courage is amazing. Prayers are coming your way and will continue to come from me. Doris

Sent by Doris Witmer | 12:02 PM ET | 09-26-2007

I'm sorry you have to go through yet another rough sounding procedure. You're right, it never ends. With cancer, it's always something! Good luck and best wishes to you.

Sent by Marcia Greer | 12:02 PM ET | 09-26-2007

You absolutely amaze me Leroy.I don't know how you have managed to keep up this blog with all the treatments that you have already gone through.I just had radiation to several parts of my spine and it wiped me out completely for the last few days.
You are an encouragement to all of us.Just hearing what is available for your situation, gives us hope for our situations.
God bless you and help you as you make this decision. My prayers are with you.

Sent by Dianne | 12:06 PM ET | 09-26-2007

You are truly in my thoughts, Leroy. So much of what you are going through really hits home with me right now. While my cancer is much different than yours, your hopes, fears and feelings are so in touch with mine and I am so grateful for your sharing.
I wish you all the best with your surgery and recovery.

Sent by Andi Daschbach | 12:45 PM ET | 09-26-2007

Leroy, you are in our prayers! You always amaze me with your fight to win this battle and I am happy you have such a wonderful team of soldiers working with you in your fight...keep it up! We are all with you!

Sent by Laurie | 12:47 PM ET | 09-26-2007

You never know Leroy, I just had a root canal 2 days ago and no pain whatsoever. So you may get lucky, don't listen to the rumors about pain.

Sent by DiAnn | 1:15 PM ET | 09-26-2007

CRAP!! Positive thoughts and prayers are going your way. Your "army" is with you!

Sent by Jenene K. | 1:19 PM ET | 09-26-2007

Dear Leroy,

You're last sentence summed it up perfectly, "This stuff just never ends." I was lamenting to a friend with cancer about a year ago that I had to go in at least weekly to the cancer center for something... blood work, chemo, clinic visit, etc. She said I was fortunate. She had to go every day. After fighting cancer for 8 years, she passed away this past February. She was only in her early 40s. I continue to wonder if she was glad she fought as long as she did. She had an incredible attitude all the way.

I wish for the best for you in this new and never ending battle.

Regards,

Ed Steger

Sent by Ed Steger | 1:22 PM ET | 09-26-2007

Dear Leroy,

I'm sorry to hear this, and I know it is going to be painful for you, but in my heart, I think it is a good thing. I'm no doctor, but I never like that "watch and see" approach. If you've got some of the little bastards in there, and you know it - get them out! I don't like that they know you have tumors in your lung and are just letting them sit there for the time being. At least you're taking action. Easy for me to say, I know. I don't want to minimize this - I know it is MAJOR surgery, but you are tough and you have the love, prayers and support of literally THOUSANDS of people. Despite a curse word now and then I trust in God, ask him to forgive me for those curse words, and pray for everyone here. Keep us "posted" Leroy, as best you can, but don't jeopardize your health. Just make sure somebody is letting us know how you are. Love and hugs to you and Laurie.

Connie E.

Sent by Connie E. | 2:02 PM ET | 09-26-2007

Hi Leroy, though I've been following your blog, I've not posted, but I want to share a positive experience as one who has had the surgery you're about to undergo. I have stage 4 BC with mets to the spine and one tumor on my T5 was pressing so close to my spinal chord I had to have emergency surgery to remove it. I had part of my rib used as a spacer to replace the vertebra and a plate with two screws to fuse my T4 to my T6. My 6 hr, surgery went very well, I was standing in 3 days, walking in 5 without pain (though using pain meds for the post surgical stuff). I was fortunate not to have to use a body brace, though I did need some help in the first month going from lying down, to sitting, to standing, but by month two I was walking well enough (though slowly) to travel (plane) and was back to part-time teaching by month 3. I moved slowly, but could walk everyday and sleep pain free (YAY) and knew I had recovered when I crould cross a street within the alotted red hand countdown (in SF the lights give you about 13 counts to cross). I was unprepared for the fatigue just from the healing process, but still so, so grateful not to be in pain. The surgery was definitely worth it for me and I hope you will get similar relief. My suggestion, get a good comfortable reclining chair for recovery that has different positions that you can operate (hopefully by yourself) so you can change positions. My best wishes to you and thank you for inspiring so many of us on this journey. Keep moving.

Sent by Cherylene Lee | 2:16 PM ET | 09-26-2007

You are in my prayers. I am very thankful for this blog and want you to feel you can take whatever time you need to heal. Please if you can have someone update us on your progress.
Thank you for sharing yourself.

Sent by Patricia | 2:20 PM ET | 09-26-2007

To Nikki,

Thank you so much for your post today. You give me strength and inspiration, and again, I thank you for that. I pray that you heal quickly.......I remember when my dad died my mother told me that God hand picks the best for himself.

Sent by sasha | 2:23 PM ET | 09-26-2007

As much as luck plays a part in all this, the best of it to you. I read your blog daily and will miss you till you are back to tell us all went well and you are pain free. Cancer patients can always hope. Righ?

Sent by laura | 2:27 PM ET | 09-26-2007

There are legends of us who continue to keep you in our thoughts, prayers, hearts. Options are always good!

Sent by Beth | 2:34 PM ET | 09-26-2007

Leroy???I am so sorry to hear your news. How discouraging and exhausting, but as you said the other day, we rise to the challenge, I guess until we choose not to any more.

If it is any consolation, my sister had back surgery--which she had been putting off???to repair and clean up some crushed vertebrae. She woke up in the recovery room saying that she felt 80% better. Her only regret was not having the surgery months earlier. I hope that your results are similar.

All the best with what lies ahead,
Maggie

Sent by Maggie | 2:35 PM ET | 09-26-2007

Leroy, My heart is heavy with your news and my thoughts and prayers are with you in your brave abd relentless battle.

Sent by Karen | 2:43 PM ET | 09-26-2007

Once again, Leroy, you have my prayers for the very best outcome and relief of your pain!

Sent by Jan | 2:44 PM ET | 09-26-2007

I'm so sorry, Leroy. Good luck with your appointment. We'll ALL be thinking of you.

Sent by grace | 2:56 PM ET | 09-26-2007

Leroy,
I will say "best of luck" because that is easy! The hard part will be waiting to hear from you again. Sooo... We'll all be here writing our comments and wondering how you're doing while you are away. Have someone drop us a line here now and again so that we know how things are with you?
Now -again -you'll be scouting the way ahead for us.
All our best wishes for a speedy recovery!

Sent by Deb | 3:25 PM ET | 09-26-2007

May our Higher Power send tender mercies to you and your loved-ones. Please have someone let us know about you not as a "responsibility," but as one human to another. You have helped us care about each other(those touched by cancer) more.
Peace and comfort.

Sent by Deborah of Asheville, NC | 3:29 PM ET | 09-26-2007

I don't know where these vertebrae are that are in question, but I do know that the relief from the pain you're now experiencing will be replaced with pain that will get a little better every day!

Now, that's worth cheering about!

I've had back surgery a few times. I was a lot younger for the biggie, a fusion S1-L4, but, let's put it this way--I don't remember it being so bad. I had to be kind and gentle to it for a long time; I wore a "corset" for 6 months or so, but that helped, not hindered. I was told that 5 years earlier I would have been in a body cast for a year. That was 1972. Imagine what progress has been made since then!

Take good care, Leroy, you're in my thoughts and prayers every day (blog or not!)

Wendy

Sent by Wendy Murphey | 3:35 PM ET | 09-26-2007

I'm always pulling for you. Cancer, the disease that keeps on giving.

Sent by Lisa | 4:29 PM ET | 09-26-2007

Good luck with your surgery...and even though it will be painful, that tumor WILL be gone! There is a reason that God helped scientists invent Vicadin and Percoset! I will be anxious to read your good news in a few weeks. A BIG HUG to you!

Sent by Cynthia V. | 4:37 PM ET | 09-26-2007

Leroy-
I was so sad to hear of your news this morning. I do not have cancer. My brother did when he was 21 and my father just recently passed in August due to liver/pancreatic cancer. I saw your show on t.v. and have been reading your blog ever since.

Maybe try to think of it this way- Have you ever really dreaded doing something (having a procedure done, going out to a gathering you didn't really feel like going to) - just anything that you really were expecting to be pretty awful. Then to come and find that it actually was not as bad as you had anticipated. I know that this surgery is pretty serious stuff and I am not denying that, but just maybe you will find you will come along much easier than you are thinking right now.

All of us come here to this blog because of what you provide in your writings. Whether we are patients, survivors, family members - you give something to each and everyone of us that could not be matched by another. You so easily provide the voice we have inside that may be too difficult for us to put the words to ourselves.

For everyone of us that you have touched- we are with you during this time and we will be here when you are able to come back. You will be in our thoughts and prayers. Hang in there!

Sent by April | 4:41 PM ET | 09-26-2007

Good luck and god bless you. All our thoughts are with you.

I have been following your blog for a long time for a lot of personal reasons. Your courage and candor are inspiring. We are rooting hard for you to get well.

Sent by Jonathan Howden | 4:58 PM ET | 09-26-2007

Dear Leroy,

I wish you weren't having to go through all of this, but you are. And despite the fact that you are my "baby" brother, you are the "big guy," as Laurie would say, an inspiration and hero, not only to me, but to many many people who don't even know you. You make your various appointments, procedures, and surgeries sound like just one more item on your list of things to do, even though they are all anything but small. In that way, you let us in and help us all. Thank you.

I hope and pray for the best outcome on Monday.

I love you.

Linda

Sent by Linda Yates | 4:58 PM ET | 09-26-2007

So sorry to hear the latest news. Maybe it'll actually be a blessing to get rid of the cancerous spine and do better with the bionic one. Hang in there-we're all rooting for you. Stay strong...

Sent by kathy gaffney | 5:08 PM ET | 09-26-2007

I can certainly relate. I had ovarian cancer 10 years ago. Prior to the cancer I had one back surgery (a laminectomy). That was bad, but not as bad as I would come to realize later. My second back surgery came after cancer, and after months of constant pain and trying everything in the book to avoid it. Finally, it was the only option and I had disc fusion. I have screws and rods in my back. After the surgery I had to wear a heavy plastic brace for one full year. And, since I live in Florida I can't tell you how miserable it was in the heat. Anyway, to this day I will say that the back pain was worse than anything with the cancer, and recovery was slow. For at least the first couple of weeks I thought I would never feel normal again. But, time took care of that. I was out of work for about a month, and walked like the Tin Man for the year, but the surgery worked - and that is what I remember most. I still have pain sometimes, especially if I sit too long, but nothing like before. So, even though it will be tough, the end result I pray will be worth it for you, as it was for me.

Sent by Pat Grossman | 5:19 PM ET | 09-26-2007

Sorry to read that you will be having back surgery. It is such a fight, this cancer. My son will be going in the hospital for a month - NIH - Bethesday for a clinical trial in early October. It is so scary. So many bad things can happen but what choice does one have. Last night I learned he has a melanoma lesion on his lung plus others. You are in my thoughts and prayers. I wish I could do more. I so enjoy your blog. It has helped me alot. A funny thing - a piece of luck. My son is eligible for short-term disability again since he has been off it for one month. He had Interleukin-2 treatment in the summer and went back to work on 8/31.

Sent by Maureen | 5:22 PM ET | 09-26-2007

Leroy: You have such a way with words even when you are relating an experience as difficult as living with and trying to beat cancer.

I read your blog each day knowing that however bad things can be in my own life, they are nothing compared to what you and others are dealing with on a day by day, sometimes minute by minute basis.

In your writings today we can feel your pain as you grapple with the news of the new tumors and how the previously painful treatment did not perform as expected.

Our role in your life right now is to keep your spirits intact as we tell you how much your eyes wide-open, heart wrenching account has meant to all of us and that we are in your corner praying and hoping that this surgery will take care of these tumors once and for all as you write. Your openness in telling us that you are still trying to come to terms with the need for the surgery re-assures those of us that have experienced doubts about our judgements and those of our doctors as we traveled down the path that Cancer leads. I could reply to each and every one of your blogs for you touch me in some way with each one. Often I refrain, and believe that someone out there is going to express the same feelings I have. Today, I could not just stand on the sidelines. My prayer is that this surgery, will relieve the pain that you have been experiencing, so much so that you will think that the entire surgery and recovery was a "snap" compared to what you have been going through....and perhaps it will be - particularly if the "hot glue" was not contained and managed to solidify on a nerve. The mere thoughts of the "hot glue" were bad enough.

Should you need to take time from the blog ---- I can't say that we won't miss you for that is the furthest thing from the truth. I have not met you personally, but I, like I am sure many others feel that you are a dear, dear friend and I look for your blog each day to hear how you are feeling and what outlook on life you are going to share with us.

I await further news of your impending surgery and pray that it will provide you with the pain-free rest and continued life that you need ever so desperately.

Sent by Cindy Sivula | 5:49 PM ET | 09-26-2007

Leroy,

I read your blog every day, and I really thank you for telling the truth on cancer. It just never ends. You sound like such a thoughtful, wonderful person, and all of us who follow your journey thank you for sharing yourself with us. I am thinking of you today, as I do almost every day, and trying to send strength to you. Good luck with the back surgery, and we'll all look forward to hearing from you again when you're able, and hopefully in less pain.

All the best,

Leslie

Sent by Leslie | 6:09 PM ET | 09-26-2007

Dear Leroy,
This surgery could be a good thing. Remove the speck of dirt from ones eye and immediately it feels better. My good thoughts and prayers are coming your way. Hang tuff because the posse has your back.

Sent by Teresa in WV | 6:10 PM ET | 09-26-2007

Leroy, This sounds like one of those worse before it gets better situations. The pain from the surgery will be great but perhaps short lived. The pain you've been experiencing may finally come to an end and you can get some sleep. Don't worry about us - we'll be okay while you recover. God speed.

Kim

Sent by Kim Barbato | 6:24 PM ET | 09-26-2007

I cannot believe how much you endure each and every day. I have been through breast cancer treatment this year so I have some idea of your situation vis-a-vis cancer. But not your day to day struggle with pain and mortality. I appreciate your sharing your life with us. And I hope that the support you receive from readers helps you in some way.

Sent by Helene Weingarten | 6:41 PM ET | 09-26-2007

Dear Leroy,

Prayers are going out for you and Laurie continuously. My heart goes out to both of you too.

Take good care,

Kim Blankenship

Sent by Kim Blankenship | 7:00 PM ET | 09-26-2007

Leroy....I think it's great news that they have a viable option available to help you with this persistent pain and which will get rid of "those" tumors permanently. I know you have the strength and determination to come through this with flying colors and you will be surrounded with prayers and good thoughts from all of us.

While you are unable to "blog", I think that we should continue to leave messages on this site for you. Laurie can print them off for you to read (or read them to you) until you're able to sit at a computer again. That way we will be able to help you and also help ourselves by continuing to share our strengths and experiences with you and each other.

Good luck, my friend!!

Sent by betty obst | 7:06 PM ET | 09-26-2007

I just echo what so many have said already - we love you, we share your pain, we hope for the best, we thank you for everything. Blessings on you. Wendy

Sent by wendy | 7:35 PM ET | 09-26-2007

Leroy, is there a pain specialist on your medical team? If not, I would request one. I've seen them make a big difference. They usually can make pain manageable. Take all the time you need. We all love you and will keep you in our prayers. I hope all goes well.

Sent by Laura | 8:54 PM ET | 09-26-2007

Leroy, blast those nasty cancer cells! It's ok to lean on your blog buddies. We care for you and pray that your surgery is successful.

Sent by Jilly | 9:01 PM ET | 09-26-2007

Dear Leroy,

I am sorry that you have to endure more invasive medical procedures in the name of living with cancer. I am so grateful to you for writing your blog. Bless you, and bless those close to you who are hurting because they are seeing you hurt so.

Sent by Beth | 9:48 PM ET | 09-26-2007

Leroy
On the flip side in a way you are going forward, and by it never ending you are still very much a part of the fight, and making progress. Just keep slaying those cancer dragons!!!

Sent by Cheryl | 9:49 PM ET | 09-26-2007

Isn't it wonderful to even have these options? I think of those gone before us who led the way. Wonder what the options will look like even 10 years from now. God Speed Leroy!

Sent by Kathy B | 10:11 PM ET | 09-26-2007

Dear Leroy,
I don't know how many people read your blog everyday, but I am sure that these 90+ well-wishers are only a small portion. I want to add my very strong positive thoughts to that of the others. We will try to carry you through this as gently as possible....you have carried so many of us. Thanks for that, and I look forward to that first post-surgery blog.
Laura

Sent by Laura Hester | 10:23 PM ET | 09-26-2007

Leroy,

I'm mainly a very appreciative reader of your blog, and everyone's responses and knowledge here, but I had to write after reading your piece today. I am amazed and inspired daily by your humor, your fighting spirit and your obvious love for life. Please know that you have an army behind you - as another reader quoted so eloquently above - as you face back surgery and recovery.

Everyone has something they lean on during difficult times, when they're facing the known and unknown. I'm inspired by writers and poets, and songwriters. I leave you with this lyric from Dave Matthews - I know it speaks for all of us tonight in our thoughts for you.

"Where are you going? Where do you go?
Are you lookin' for answers to questions under the stars?
Well if along the way you are growin weary, you can rest with me
Until a brighter day, you're ok."

Godspeed, Leroy. You're going to be ok.


Sent by Amy | 10:55 PM ET | 09-26-2007

Oh, my, it's always something new going wrong. You will continue to be in my prayers. In just the several weeks since I last wrote, I have two more acquaintances to pray for, one with pancreatic cancer and the other having a breast lump removed this Friday.
Do you think this increased incidence of cancer is caused by our poluted environment? Or the hormones in our foods? We all need to clean up our world, if it is not too late . . .

Sent by Judith Newkirk | 11:34 PM ET | 09-26-2007

Leroy - so sorry to hear you have to go thru surgery again! We're praying for you. Teri LM

Sent by Teri La Monica | 11:48 PM ET | 09-26-2007

Leroy, I'm very sorry to hear your latest news. But will keep you in my prayers. It's amazing what the surgeons can do these days. Why can't they eliminate cancer altogether instead of attacking it piecemeal. May God be with you and all of us.

Sent by Robert G Oehl | 12:17 AM ET | 09-27-2007

Dear Leroy, Through your many sleepness nights, and pain, I hope you can feel the love and concern that seems to echo from all your new friends. Your generous sharing has been a gift to us, and just look at the prayers of hope you are receiving in exchange. You certainly deserve all of this, and much more.
We are all with you and Laurie........
Sent by Pam

Sent by Pam Lever | 1:39 AM ET | 09-27-2007

Dear Leroy,
As a survivor of Stage IV Colon cancer surgery, as well as spinal surgery, I can tell you with complete confidence that abdominal surgery is far more painful. After spinal surgery, they'll have you up and walking in no time, and the meds do help :-) Having a great surgeon is key, of course. I would imagine that your resources are excellent, so I'd go for it. Remember to breathe deeply and take it one day at a time. I do not speak to you often, but I listen to you, daily. You have become a habit, so take care. You are in my thoughts and I wish you well.
Beat the Beast!
Victoria B. Murray

Sent by Victoria B. Murray | 4:13 AM ET | 09-27-2007

To Larry,
Your words, you must know, are such a balm of kind and true wisdom. Especially for ME, as I'm going through the back-surgery quandry now too). I admire you so, so much for putting your thoughts and your fears into words. Your courage is palpable -even in the midst of another round of uncertainties and fears, you are touching your readers and listeners. Sending YOU love and strength. Your voice is always in my ear now when the dreaded news, the crazed nights, the agonizing decisions are before me. Stay steady -- we truly CARE about you. Kathy

Sent by Kathleen Hale | 5:25 AM ET | 09-27-2007

Dear friend:
I join everyone in sending you love and positive energy.

Sent by Harriet | 6:07 AM ET | 09-27-2007

Hi Leroy,

I've been reading your Blog for several months now, but this is the first time I've written a comment. I was diagnosed with breast cancer in January and have just completed chemo and radiation treatments. Although I am a busy working mother and receive many email messages each day, I stop whatever I am doing when I see that your blog has arrived so that I can read it. Every single one of your messages has been meaningful to me in one way or another. When I think about the possibility of my life ending earlier than I thought it would, I wonder about the legacy I will leave behind. Yours is obvious, as you have impacted the lives of so many people who are struggling with this difficult disease, both by your words and by your example. I join the throng of your admirers in wishing you the very best of luck with your surgery. You will be in my thoughts and prayers on Monday.

Sincerely,

Cathy Carlson

Sent by Cathy Carlson | 10:07 AM ET | 09-27-2007

Best of luck Leroy, will be praying for you.

Sent by Kathy Carpenter | 11:39 AM ET | 09-27-2007

Thanks for your continuing example of courage and determination - it gives many of us strength to continue our own battles. Our thoughts and best wishes are with you.

Sent by Roxane | 11:44 AM ET | 09-27-2007

Leroy
I am so sorry that you have to experience this surgery, however I am glad that you have that option, one of those lousy lesser of two evils thing. I will be thinking positive thoughts on monday for you and your support people.
Good Luck and look forward to when you can blog again
love and peace
Gillian

Sent by gillian faulkner | 12:04 PM ET | 09-27-2007

Some relief from your chronic pain would be wonderful. Your blog is meaningful, but rest and we will be waiting and supporting you with our good thoughts.

Hoping for miracles and praying for you George Bailey!

Sent by claudia | 12:38 PM ET | 09-27-2007



   
   
   
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Leroy Sievers

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A journalist for more than 25 years, Leroy Sievers worked at CBS News, the Discovery Channel, and ABC News, where he was the executive producer of Nightline. He wrote this blog daily until his death in August.

 
 

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