A Breast Cancer Alphabet

by Madhulika Sikka

A Breast Cancer Alphabet

Hardcover, 209 pages, Random House, List Price: $19 | purchase

Purchase Featured Book

Title
A Breast Cancer Alphabet
Author
Madhulika Sikka

Your purchase helps support NPR Programming. How?

NPR Summary

This guide to life during and after breast cancer shares advice on how to plan a life after diagnosis. It covers topics ranging from intimacy and hair loss to working and managing the profound emotions that accompany the disease and its treatments.

Read an excerpt of this book

NPR stories about A Breast Cancer Alphabet

Note: Book excerpts are provided by the publisher and may contain language some find offensive.

Excerpt: A Breast Cancer Alphabet

"G" IS FOR GUILT

So, here are some things that might have caused my breast cancer:

Being a woman — guilty
Getting older — guilty
Genetic inheritance — not guilty
Periods before the age of twelve — guilty
Overweight before menopause — guilty
First child after the age of thirty — guilty
Current or recent use of birth control pills — guilty
Large breasts — not guilty
Dense breasts — not guilty
Not breast-feeding — partially guilty (breast-fed for only three months)
Not exercising regularly — guilty
Not having lots of children — guilty
Excessive alcohol use — not guilty

You get the point. You have been diagnosed with a horrible, possibly deadly, disease. You will go through a wretched regimen of treatment and your body will be (temporarily) wrecked as you do. The embodiment of your femininity, the breast, is the treacherous villain in this drama, and you are the one who feels guilty. How can this be?

G Is For Guilty

Well, this must have been my fault, right? Looking at that list, I tend to focus on the things that were in my control — weight, birth control pills, breast feeding, exercise, childbearing. Of course I must have done something wrong to cause this, and all I can feel is guilty. With the passage of time you realize this guilt is almost irrational. But that is not what it feels like in the moment. I think that is because not only do you feel guilty that you have this disease you might have been able to prevent (not true, but . . .) but also you start to feel guilty because of what this is doing to the people around you.

You feel guilty that your life at home (which you might have been holding together with duct tape and chewing gum, if truth be told) is going to be severely disrupted by the fact that you have this disease. Your family has to adjust to a new you, a sometimes needy you, a you that isn't really you but a vessel for this disease at this moment.

You feel guilty about how this might disrupt things for people around you outside your family. For me it was the strain put on my colleagues who were picking up my slack. They couldn't have been more supportive and generous and loving, but that never stopped me from feeling guilty.

You also feel guilty when you hear someone else's story that is worse than yours and so maybe you shouldn't be feeling so bad about what you are going through. And, in case you thought there was nothing that could compound your feelings of guilt, there is. That guilt feels worse because everyone tells you how lucky you are compared with X. There is probably nothing worse than someone who doesn't have cancer telling you how lucky you are. Luck is when you win the lottery (see "O Is for Odds"), not when you get breast cancer.

There is no hierarchy of cancer by which you must abide, where you have to be upbeat and positive because there is someone who has a worse breast cancer than you. That logic might make sense in some detached, objective way, though in fact it is not true. You, the breast cancer patient, are neither detached nor objective. You are intimately attached to this disease, and everything about it is subjective. So, per- mission granted to feel terrible about what you are going through and to not feel guilty in the slightest about any of it, okay?

Here are the facts about breast cancer. It is an insidious, wretched disease, whose treatment can be worse than the disease itself. You did nothing wrong; you are not being punished for something you might have done in your current life, or your past lives for that matter. The truth is we don't really know what causes breast cancer. Ultimately there is one thing we do know: if you have breast cancer, you have some rogue cells that decided to do their own thing and play havoc with your body. And that is nothing to feel guilty about.

Copyright 2014 by Madhulika Sikka. From A BREAST CANCER ALPHABET, published by Crown Publishers, an imprint of the Crown Publishing Group, a division of Penguin Random House, Inc. Reprinted with permission.

Reviews From The NPR Community

 

Please keep your community civil. All comments must follow the NPR.org Community rules and Terms of Use. NPR reserves the right to use the comments we receive, in whole or in part, and to use the commenter's name and location, in any medium. See also the Terms of Use, Privacy Policy and Community FAQ.