...The Nature of Suffering,Continued

Persons do things. They act, create, make, take part, put together, wind, unwind, cause to be, and cause to vanish. They know themselves and are known by these acts. More than the requirements of a role, more than is necessary in a relationship, more than they know themselves, and some more (or less) than others, things come out of their mouths, or are done by their hands, feet, or entire bodies that express themselves. When illness makes it impossible for people to do these things, they are not themselves.

Persons are often, to one degree of another, unaware of much that happens to them and why. Thus some things in the mind cannot be brought to awareness by ordinary reflection, memory, or introspection. Where some have behaved, in recent times, as though a person was only a political being, others have acted as if the only important part of a person was solely his or her unconscious mind. The structure of the unconscious is pictured quite differently by different scholars, but most students of human behavior accept that such an interior world exists. People can behave in ways that seem inexplicable and strange even to themselves, and the sense of powerlessness the persona may feel in the face of such behavior can be a source of great distress. Persons have regular behaviors. In health, we take for granted the details of our day-to-day behavior. From the moment of awakening in the morning to the manner of sleep at night, a person's behavior follows a customary pattern. Persons know themselves to be well as much by whether they behave as usual as by any other set of facts. If they cannot do the things they identify with the fact of their being, they are not whole.

Every person has a body. The relation with one's body may vary from identification with it to admiration, loathing, or constant fear. There are some who act as though their body's only purpose was to carry their heads about. The body may even be a representation of one parent, so that when something happens to that person's body it is as though an injury was done to a parent. Into this relationship with the body every illness must fit. Disease can so alter the relationship that the body is no longer seen as a friend but as an untrustworthy enemy. This is intensified if the illness occurs without warning so that the person comes to distrust his or her perceptions of the body. As illness deepens, the person may feel increasingly vulnerable or damaged. Much was made a few years back of the concept of body image and the suffering caused by disease-induced alterations of that image. The body does not actually have to be altered to cause damage to the wholeness of the person-- damage to the person's relationship with the body is sufficient. Just as many people have recently developed an expanded awareness of self as a result of the changes in their bodies from exercise, so the potential always exists for a contraction of self through injury to the body.

Everyone has a secret life. Sometimes it takes the form of fantasies and dreams of glory, and sometimes it has a real existence known to only a few. Within that secret life are fears and desires, love affairs of the past and present, hopes of fantasies, and ways of solving the problems of everyday life known to only the person. It is proper that they remain secret-- a separate, private life that cannot be predicted from what is known of the public person. Modesty is not merely a behavior that hides one from public view; it hides the parts of a person what are none of the public's business. There are cultures where women have their pubic hair removed. It is no surprise that in those societies privacy is not allowed. Disease may not only destroy the public person but the secret person as well. A secret beloved friend may be lost to a sick person because he or she has no legitimate place by the sickbed. When that happens, the sick person may have lost that part of life that made tolerable an otherwise embittered existence. The loss may be of only the dream-- the wish or fantasy (however improbable) that one day might have come true. Such loss can be a source of great distress and intensely private pain.

Every person has a perceived future. Events that one expects to come to pass vary from expectations for one's children to a belief in one's creative ability. Intense unhappiness results from a loss of that future-- the future of the individual person, of children, and of other loved ones. It is in this dimension of existence that hope dwells. Hope is one of the necessary traits of a successful life. Alisdair MacIntyr's definition is unsurpassed: "Hope is in place precisely in the face of evil that tempts us to despair, and more especially that evil that belongs specifically to our own age and condition... The presupposition of hope is, therefore, belief in a reality that transcends what is available as evidence." No one has ever questioned the suffering that attends the loss of hope.

Everyone has a transcendent dimension-- a life of the spirit, however expressed or known. Considering the amount of thought devoted to it through the ages, the common wisdom contains very little about transcendence, which is all the more remarkable given its central place in the relief of suffering. It is most directly dealt with in mysticism and in the mystic traditions both within and outside formal religions. But it seems evident that the frequency with which people have intense feelings of bonding with groups, with ideals, or with anything larger and more enduring than the person-- of which patriotism is one example-- is evidence of the universality of human transcendence. The quality of being greater and more lasting than an individual life gives this aspect of persons its timeless dimension. However, the profession of medicine appears to ignore the human spirit. When I see patients in nursing homes who seem to go on forever, existing only for their bodily needs, I wonder whether it is not their transcendent dimension that they have lost.



© Copyright Oxford University Press, 1991. All Rights Reserved. No portion of this work may be reproduced or transmitted in any form or by any means, electronic or mechanical, including photocopying, recording, or any information storage or retrieval system now or hereafter invented, without permission in writing from the Publisher. The names of patients described in this excerpt are fictions. It is purely coincidental if they resemble the names of persons living or dead.