This list of resources for people with life-threatening diseases and their
families and caregivers was prepared by the staff of NPR's All Things
with grateful acknowledgment of the help of the Hospice Foundation of America.
Many of the organizations listed here welcome your e-mail and maintain
their own Web sites, which you can access using the hyperlinks provided
throughout the list.
AIDS Information Network
1211 Chestnut Street, 7th Floor, Philadelphia, PA 19107.
Runs projects related to education and prevention of HIV/AIDS. Library answers
questions by phone, fax or e-mail.
Phone: 215-575-1110 x131 Fax: 215-575-1123 E-mail:
21021 Ventura Blvd., Suite 321, Woodland Hills, CA 91364.
National information resource for Amyotrophic Lateral Sclerosis (ALS), commonly
referred to as Lou Gehrig's disease.
Phone: 818-340-7500 Web site: http://www.alsa.org.
919 N. Michigan Ave., Suite 1000, Chicago, IL 60611.
The only national voluntary organization dedicated to curing Alzheimer's
disease and providing education and support to people with he disease and
their caregivers. They can refer you to local chapters and support groups.
American Academy of Hospice & Palliative Medicine
The international organization of physicians dedicated to the advancement of
palliative medicine in the management of patients with terminal illness.
Includes information on Certification in Hospice and Palliative Medicine
administered by the American Board of Hospice and Palliative Medicine.
American Brain Tumor Association
2720 River Road, Suite 146, Des Plains, IL 60018.
A not-for-profit organization offering publications addressing
brain tumors, their treatment, and coping with the disease. They also
maintain a nationwide listing of support groups.
Phone: 800-886-2282 Web site:
American Cancer Society
1599 Clifton Road, NE, Atlanta, GA 30329-4251.
The nationwide, community-based voluntary health organization
dedicated to eliminating cancer as a major health problem.
800-ACS-2345 Web site: http://www.cancer.org.
American Heart Association
7272 Greenville Avenue, Dallas, TX 75231.
Committed to reducing disability and death from cardiovascular
diseases and stroke.
Phone: 214-373-6300 or 800-AHA-USA1 (to be connected to your
Web site: http://www.americanheart.org
American Liver Foundation
1425 Pompton Avenue, Cedar Grove, NJ 07009.
National non-profit organization dedicated to preventing,
treating, and conquering hepatitis and other diseases of the liver and
Web site: http://www.liverfoundation.org.
American Lung Association
1740 Broadway, New York, NY 10019-4374.
Dedicated to preventing lung disease with a nationwide priority on
Web site: http://www.lungusa.org.
American Medical Association
515 N. State Street, Chicago, IL 60610.
The AMA’s web site contains extensive links to disease- and
condition-related sites on the www.
Phone: 312-464-5000 Web site: http://www.ama-assn.org.
American Nurses Association
600 Maryland Ave. SW, Suite 100 West, Washington, DC 20024-2571.
The largest professional organization representing registered
nurses in the United States.
Phone: 800-274-4ANA Web site:
American Parkinson Disease Association
1250 Hylan Blvd., Suite 4B, Staten Island, NY 10305.
Committed to serving the Parkison community through a
comprehensive program of research, education and support.
718-981-8001 or 800-223-2732 E-mail: firstname.lastname@example.org.
Association for Death Education & Counseling
638 Prospect Ave., Hartford, CT 06105.
ADEC is dedicated to improving the quality of death education and
death related counseling and caregiving.
Phone: 860-586-7503 Web site:
Association of Pediatric Oncology Nurses
4700 W. Lake Ave., Glenview, IL 60025.
Phone: 847-375-4724 FAX: 847-375-4777 Web site:
Bereavement and Hospice Support Netline
This is a web page listing bereavement support groups and
services, state by state.