A-B   C-I   J-Z Kids Home A web page just for kids with cancer, sponsored by the National Cancer Institute. Web site: http://wwwicic.nci.nih.gov/occdocs/KidsHome.html. Last Acts Robert Wood Johnson Foundation PO Box 2316 Princeton, NJ 08543-2316 Last Acts is a call-to-action campaign designed to improve care at the end of life. Its goals are to bring end-of-life issues out into the open and to help individuals and organizations pursue the search for better ways to care for the dying. Phone: 609-452-8701 E-mail: mail@rwjf.org Web site: http://www.lastacts.org The Leukemia & Lymphoma Society 1311 Mamaroneck Ave., White Plains, NY 10605. Dedicated to the cure of leukemia and it’s related cancers – lymphoma, multiple myeloma and Hodgkin’s disease – and to improve the quality of life of patients and their families. Phone: 212-573-8484 Web site: http://www.leukemia-lymphoma.org. Med Help A non-profit organization founded to assist those in need of medical information written in non-technical terminology. Web site: http://www.medhelp.org Multiple Sclerosis Association 706 Haddonfield Rd. Cherry Hill, NJ 08002. Provides direct care services to those with MS, including a national toll-free hotline, peer counseling, support groups, therapeutic equipment loan program, educational literature, and symptom management therapies. Phone: 800-833-4672. National Alzheimer's Association National organization providing caregiver resources as well as information on current medical research and public policy. Phone: 800-272-3900 Web site: www.alz.org National Association of People with AIDS 1413 K St. NW, Washington DC 20036. NAPWA provides free publications on treatment and have an extensive information and referral department that includes a fax-on-demand system. They also have a health and treatment department that provides up to date treatment information and a free bi-monthly publication, Medical Alert (Available in English and Spanish.) Phone:202-898-0414, fax: 202-789-2222. Web site: http://www.thecure.com National Brain Tumor Foundation 414 13th St., Suite 700, Oakland, CA 94612-2603. Provides a variety of support and education services for patients and their families, including booklets, newsletters, support group listings, and assistance starting new groups, and a toll-free tumor information line. Phone: (800) 934-CURE (2873) Web site: http://www.braintumor.org National Cancer Institute 9000 Rockville Pike, 31 Center Dr. - MSC 2580, Bethesda, MD 20892. The NCI is the largest component of the National Institutes of Health. It coordinates a national research program on cancer cause and prevention, detection and diagnosis, and treatment. In addition, it provides information about cancer to patients, the public at large, and health professionals. Phone: 301-496-5583 or 800-422-6237 TTY: 800-332-8615. Web site: http://rex.nci.nih.gov National Coalition for Cancer Survivorship 1010 Wayne Avenue, Suite 505, Silver Spring, MD 20910. NCCS offers information on employment and insurance issues and provides referrals to sources of support and information. Phone: 301-650-8868. Web site: http://www.access.digex.net/mkragen/canserach.html National Hospice Organization 1901 N. Moore St., Suite 901, Arlington, VA 22209. NHO provides referral services to link individuals with hospices in their local communities, and various educational programs. Phone: 703-243-5900 Web site: http://www.nho.org National Kidney Foundation 30 East 33rd Street, New York, NY 10016. Supports research projects and sponsors community programs in treatment, service, education and prevention of diseases of the kidney and urinary tract. Phone: 800-622-9010 Web site: http://www.kidney.org. National Multiple Sclerosis Society A comprehensive world-wide resource on MS-related information offering more than 2,000 support groups to aid families in dealing with the challenges of chronic illness. (MS is not a terminal illness except in the rarest cases.) Phone: 800-244-4867 Web site: www.nmss.org E-mail: info@nmss.org National Parkinson Foundation 1501 NW 9th Ave., Miami, FL 33136. Committed to finding the cause and cure for Parkinson’s disease and other allied neurological disorders through research, to provide diagnostic and therapeutic services, to improve the quality of life for patients and caregivers, and to educate people about Parkinson’s disease. Phone: 800-327-4545 Web site: http://www.parkinson.org. National Stroke Association 96 Inverness Drive East, Suite 1, Englewood, CO 80112-5112. Dedicated entirely to the prevention, treatment and research of stroke, and support for stroke victims and their caregivers. Phone: 303-649-9299 Web site: http://www.stroke.org. The Never-Ending Squirrel Tale PO Box 1562, Columbia, MD 21044-0562. Practical tips and encouragement for the parents of kids with cancer. Web site: http://www.squirreltales.com Pediatrics Home Care Guide Hosted by the Pediatric Oncology Group, this site is dedicated to providing information useful to those caring for children with cancer at home. Web site: http://www.hmc.psu.edu/depts/pedsonco/Homeguide.html Society of Critical Care Medicine 8101 East Kaiser Boulevard, 3rd Floor, Anaheim, CA 92808-2259 This site is designed for anyone who seeks information on critical care medicine. Critical care combines the efforts of physicians, nurses, respiratory therapists, pharmacists and pharmacologists, and allied health professionals in the coordinated and collaborative management of patients with life threatening illness and single or multiple organ system failure. Critical care is most often practiced in the ICU. e-mail: ena@sccm.org phone: 714.282.6000 fax: 714.282-6050 website: www.sccm.org Soros Foundation: Project on Death in America The Project on Death in America seeks to transform the culture of dying by supporting initiatives in research, scholarship, the humanities, and the arts, and by fostering innovation in the provision of care, public and professional education, and public policy. Web site: http://www.soros.org/death.html Tragedy Assistance Program for Survivors 2001 S Street, NW, Suite 300, Washington, DC 20009. TAPS provides services who have lost a loved one in the line of military duty, through peer support, crisis intervention (on-call 24 hours per day), case workers and grief counselling referrals to help families and military personnel cope. Phone: 800-959-TAPS. E-mail: TAPSHQ@aol.com. Widowed Persons Service 4270 Chicago Drive SW, Grandville, MI 49418. A self-help support group for men and women who have experienced the death of a spouse, offering day and evening meetings, seminars, social activities and public education of the experience of being widowed. Phone: 616-538-0101.