A web page just for kids with cancer, sponsored by the National
Robert Wood Johnson Foundation
PO Box 2316
Princeton, NJ 08543-2316
Last Acts is a call-to-action campaign designed to improve care at the
end of life. Its goals are to bring end-of-life issues out into the open and to
help individuals and organizations pursue the search for better ways to care
for the dying.
Web site: http://www.lastacts.org
The Leukemia & Lymphoma Society
1311 Mamaroneck Ave., White Plains, NY 10605.
Dedicated to the cure of leukemia and it’s related cancers –
lymphoma, multiple myeloma and Hodgkin’s disease – and to improve the
quality of life of patients and their families.
Web site: http://www.leukemia-lymphoma.org.
A non-profit organization founded to assist those in need of
medical information written in non-technical terminology.
Multiple Sclerosis Association
706 Haddonfield Rd. Cherry Hill, NJ 08002.
Provides direct care services to those with MS, including a
national toll-free hotline, peer counseling, support groups, therapeutic
equipment loan program, educational literature,
and symptom management therapies.
National Alzheimer's Association
National organization providing caregiver resources as well as information on current medical research and public policy.
Web site: www.alz.org
National Association of People with AIDS
1413 K St. NW, Washington DC 20036.
NAPWA provides free publications on treatment and have an
extensive information and referral department that includes a
fax-on-demand system. They also have a health and treatment department
that provides up to date treatment information and a free bi-monthly
publication, Medical Alert (Available in English and Spanish.)
Phone:202-898-0414, fax: 202-789-2222.
Web site: http://www.thecure.com
National Brain Tumor Foundation
414 13th St., Suite 700, Oakland, CA 94612-2603.
Provides a variety of support and education services for patients
and their families, including booklets, newsletters, support group
listings, and assistance starting new groups, and a toll-free tumor
Phone: (800) 934-CURE (2873)
Web site: http://www.braintumor.org
National Cancer Institute
9000 Rockville Pike, 31 Center Dr. - MSC 2580, Bethesda, MD 20892.
The NCI is the largest component of the National Institutes of
Health. It coordinates a national research program on cancer cause and
prevention, detection and diagnosis, and treatment. In addition, it
provides information about cancer to patients, the public at large, and
Phone: 301-496-5583 or 800-422-6237 TTY:
Web site: http://rex.nci.nih.gov
National Coalition for Cancer Survivorship
1010 Wayne Avenue, Suite 505, Silver Spring, MD 20910.
NCCS offers information on employment and insurance issues and
provides referrals to sources of support and information.
National Hospice Organization
1901 N. Moore St., Suite 901, Arlington, VA 22209.
NHO provides referral services to link individuals with hospices
in their local communities, and various educational programs.
Web site: http://www.nho.org
National Kidney Foundation
30 East 33rd Street, New York, NY 10016.
Supports research projects and sponsors community programs in
treatment, service, education and prevention of diseases of the kidney and
National Multiple Sclerosis Society
A comprehensive world-wide resource on MS-related information offering more than 2,000 support groups to aid families in
dealing with the challenges of chronic illness. (MS is not a terminal illness except in the rarest cases.)
Web site: www.nmss.org
National Parkinson Foundation
1501 NW 9th Ave., Miami, FL 33136.
Committed to finding the cause and cure for Parkinson’s disease
other allied neurological disorders through research, to provide
diagnostic and therapeutic services, to improve the quality of life for
patients and caregivers, and to educate people about Parkinson’s disease.
Web site: http://www.parkinson.org.
National Stroke Association
96 Inverness Drive East, Suite 1, Englewood, CO 80112-5112.
Dedicated entirely to the prevention, treatment and research of
stroke, and support for stroke victims and their caregivers.
Web site: http://www.stroke.org.
The Never-Ending Squirrel Tale
PO Box 1562, Columbia, MD 21044-0562.
Practical tips and encouragement for the parents of kids with
cancer. Web site: http://www.squirreltales.com
Pediatrics Home Care Guide
Hosted by the Pediatric Oncology Group, this site is dedicated to
providing information useful to those caring for children with cancer at
Society of Critical Care Medicine
8101 East Kaiser Boulevard, 3rd Floor, Anaheim, CA 92808-2259
This site is designed for anyone who seeks information on critical care
medicine. Critical care combines the efforts of physicians, nurses,
respiratory therapists, pharmacists and pharmacologists, and allied
health professionals in the coordinated and collaborative management of
patients with life threatening illness and single or multiple organ system
failure. Critical care is most often practiced in the ICU.
Soros Foundation: Project on Death in America
The Project on Death in America seeks to transform the culture of dying by
supporting initiatives in research, scholarship, the humanities, and the arts,
and by fostering innovation in the provision of care, public and professional
education, and public policy.
Web site: http://www.soros.org/death.html
Tragedy Assistance Program for Survivors
2001 S Street, NW, Suite 300, Washington, DC 20009.
TAPS provides services who have lost a loved one in the line of
military duty, through peer support, crisis intervention (on-call 24 hours
per day), case workers and grief counselling referrals to help families
and military personnel cope.
Widowed Persons Service
4270 Chicago Drive SW, Grandville, MI 49418.
A self-help support group for men and women who have experienced
the death of a spouse, offering day and evening meetings, seminars, social
activities and public education of the experience of being widowed.