Sofia Jarvis, seen here with her family at a press conference in February, is one of several dozen children in California who have been diagnosed with a rare paralytic syndrome. It has left her left arm paralyzed.
Tom Murphy, 56, in his home in Gainesville, Va., was diagnosed with ALS four years ago. An experimental drug seems to have slowed the progression of his disease, he says, though most ALS patients aren't as lucky.
T.J. Kirkpatrick for NPR