Suzanne Mintz, Making Family Caregiving Easier

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Family caregiver advocate and author Suzanne Geffen Mintz

Family caregiver advocate and author Suzanne Geffen Mintz is president of the National Caregivers Association (NFCA). Courtesy of NFCA hide caption

toggle caption Courtesy of NFCA

Suzanne Geffen Mintz, president and co-founder of the National Family Caregivers Association, talks with Terry Gross on how to make caregiving easier.

Mintz speaks from experience; her husband was diagnosed with multiple sclerosis in 1974.

In the latest edition of her book, A Family Caregiver Speaks Up: "It Doesn't Have to Be This Hard," Mintz writes on ways caregivers can feel more confident through changes to their routine.

Excerpt: 'A Family Caregiver Speaks Up'

'A Family Caregiver Speaks Up'

Being Proactive versus Reactive

Knowing more about yourself and the circumstances that could have an immediate effect on your situation is a start, but taking charge of your life shouldn't end there. Over and beyond gaining an understanding of what you bring to your caregiving situation, there are other actions you can take to boost your confidence and give you more of a sense of ease. It is important to remember that, although you can't control everything that happens, you do have the power to choose your responses and whether you are going to let circumstances take control of you, or you are going to take control of circumstances.

I strongly believe that family caregivers need to become strong advocates for their loved ones and themselves, and that we need to be proactive and resourceful in finding the information and help that we need. Having said that, I also recognize how difficult it is for already over burdened caregivers to find the energy and wherewithal to battle unresponsive healthcare and social-services systems, and unfortunately, sometimes other family members as well, and to meet their loved one's needs, especially if being a fighter doesn't come naturally.

I also know that many of you will do just that. You will find an inner strength you didn't know you had and you will make an effort—indeed, are making an effort every day—to resolve yet another problem with the insurance company, put the pieces in place that will allow you to get away for a day of respite, track down the cardiologist and get him to coordinate with your loved one's primary care doctor. It's hard to be an advocate for yourself and your loved one, but if you or someone you delegate to are not, then life will be that much more difficult because caregiving doesn't come easily, and the services and supports we need unfortunately aren't part of a seamless whole.

Excerpted with permission from A Family Caregiver Speaks Up: "It Doesn't Have to Be This Hard" by Suzanne Geffen Mintz (Capital Books, 2007).

Books Featured In This Story

A Family Caregiver Speaks Up

It Doen't Have to Be This Hard

by Suzanne Geffen Mintz

Paperback, 232 pages |


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A Family Caregiver Speaks Up
It Doen't Have to Be This Hard
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