Brian Vastag suffers from myalgic encephalomyelitis/chronic fatigue syndrome, or ME/CFS for short. He is part of an NIH study of the disease, which is commonly called chronic fatigue syndrome.
Miriam Tucker for NPR
Ronald Davis cares for his 31-year-old son, Whitney Dafoe. Dafoe is seriously ill with ME/CFS. His father, a Stanford University professor, is organizing a study of the disorder.
Courtesy of Ashley Davis
The Institute of Medicine is reviewing how chronic fatigue syndrome is diagnosed and whether that label puts too much emphasis on fatigue over other significant symptoms.
Daniel Horowitz for NPR