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Patient advocates

Shannon McGrath, pictured with her son Rayder, says it has been a lot easier to make her medical appointments recently, thanks to help from a "patient navigator" — assigned to her by Kaiser Permanente — who arranged McGrath's transportation. Kristian Foden-Vencil/OPB hide caption

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Kristian Foden-Vencil/OPB

Your ZIP Code Might Be As Important To Health As Your Genetic Code

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Ann Mazuca has diabetes and glaucoma that can be aggravated by high blood pressure. The support shown by clinic staff at the University Family Health Center Southeast, in San Antonio, helps her do what's needed to reduce hypertension, she says. "The fact that they care makes me care." Wendy Rigby/TPR hide caption

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Wendy Rigby/TPR

Nancy Roach at a conference in 2016. She's long worked as a patient's advocate and recently teamed up with scientists to help improve the design of studies, as well as to improve clinical care. Andrew Wortmann/Courtesy of Fight Colorectal Cancer hide caption

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Andrew Wortmann/Courtesy of Fight Colorectal Cancer

Advice From Patients On A Study's Design Makes For Better Science

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Some ethicists and consumer watchdog groups worry that the newly revised federal rules governing medical research don't go far enough to protect the rights and privacy of patients. Dana Neely/Getty Images hide caption

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Dana Neely/Getty Images
Hanna Barczyk for NPR

Patients Increasingly Influence The Direction Of Medical Research

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