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Nancy Roach at a conference in 2016. She's long worked as a patient's advocate and recently teamed up with scientists to help improve the design of studies, as well as to improve clinical care. Andrew Wortmann/Courtesy of Fight Colorectal Cancer hide caption

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Andrew Wortmann/Courtesy of Fight Colorectal Cancer

Advice From Patients On A Study's Design Makes For Better Science

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Some ethicists and consumer watchdog groups worry that the newly revised federal rules governing medical research don't go far enough to protect the rights and privacy of patients. Dana Neely/Getty Images hide caption

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Dana Neely/Getty Images
Hanna Barczyk for NPR

Patients Increasingly Influence The Direction Of Medical Research

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