Cost Of Treatment Still A Challenge For HIV Patients In U.S. : Shots - Health News Many people living with HIV in the U.S. struggle to remain eligible for public assistance programs that pay for medication. For some that means avoiding full-time jobs or refusing pay raises so they can get coverage for the expensive drugs.
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Cost Of Treatment Still A Challenge For HIV Patients In U.S.

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Cost Of Treatment Still A Challenge For HIV Patients In U.S.

Cost Of Treatment Still A Challenge For HIV Patients In U.S.

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The International AIDS Conference wraps up today here in Washington. All week, the discussion has focused on getting people treatment from the moment they're infected with HIV. Studies show that can improve health and dramatically slow the spread of the virus.

The treatment is expensive. In the U.S., only about half the people living with HIV can afford it. The federal government is trying to make treatment more accessible, as we hear from reporter Jessica Camile Aguirre.

JESSICA CAMILLE AGUIRRE, BYLINE: Ruben Bermudez didn't want to start taking HIV medication. He was diagnosed with the virus in 1999 when he was only 18 years old. After a few weeks on treatments that he said made him sick, he stopped taking them.

RUBEN BERMUDEZ: I was a young guy. I was having fun, going and partying, going to clubs, living a normal teenage young adult life and that's all my focus was.

AGUIRRE: But, when his best friend Vaughn died with AIDS after ignoring his HIV diagnosis, Bermudez decided to go on treatment. He started taking medications in 2008, which were paid for through Medicaid and something called the AIDS Drug Assistance Program, or ADAP, a state-run program funded by the federal government.

BERMUDEZ: I'm really lucky to have those programs available to me because, without them, I probably wouldn't - I would not take medication because I would not be working just to pay for my medication. I probably couldn't even afford it.

AGUIRRE: Almost half the people living with HIV who do receive regular care get it paid for through public assistance programs. That's welcome relief for people like Bermudez because treatment regimens run anywhere from $2,000 to $5,000 a month. But to qualify for assistance, you have to earn below a certain amount annually and many say those thresholds are too low.

Murray Penner is with the National Alliance of State and Territorial AIDS Directors.

MURRAY PENNER: In many states, income eligibility is about $22,000. It's two times the federal poverty level and so, if you make more than that, you would no longer qualify for ADAP.

AGUIRRE: The cutoff leads many people like Bermudez to limit their incomes in order to maintain health care.

BERMUDEZ: One cosmetic company that I worked for - at the time, they were offering me full time hours and, because of the hours, I had to refuse it because I knew that would put me over the bracket to receive free medicine.

AGUIRRE: Problems qualifying for Medicaid aren't unique to people with HIV, but because AIDS drugs are so expensive, access to insurance is even more important. ADAP is meant to cover people who make too much money for Medicaid, but it's faced funding shortages and gaps since it was created in 1990.

ADAP needs to get funding re-approved by Congress every year, though the Obama administration recently released $79 million of additional money for the program.

Medicaid's expansion under the Affordable Care Act may also make it easier for people to pay for the medication they need and many hope that, with patents expiring on vital drugs in the coming years, cheaper generics may bring down the price.

Caring for people with HIV goes beyond treating the virus in the person. It's also critical to stopping the disease from spreading. David Holtgrave studies public health policy at Johns Hopkins University. He says people taking AIDS drugs are much less likely to transmit the virus to someone else.

DAVID HOLTGRAVE: When we can avert HIV infections, we're not only saving lives, we're also saving dollars, as well.

AGUIRRE: And, in the long term, that eases the burden on public assistance programs. As for Ruben Bermudez, who started taking medications four years ago, he's been committed to staying on treatment and, with his health intact, he hopes to eventually be able to buy private insurance and pay for his drugs himself.

For NPR News, I'm Jessica Camille Aguirre.



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